Board of Directors & Medical Research Advisory Board

Board of Directors

  • President
    DeNiece Roach*
    Minneapolis, MN
  • Vice-President
    Charlene Danielson*
    Minnetonka, MN
  • Secretarv/Treasurer
    Larry Loomis*
    West St. Paul, MN
  • Laura Ranum, PhD
    Minneapolis, MN
  • Camille Daglio*
    Hattiesburg, MS
  • Lawrence Schut, MD
    Maple Lake, MN
  • Harry T Orr Ph.D.
    Minneapolis, MN
  • Earl McLaughlin
    EI Cajon, CA
  • Dave Zilles
    Atlanta, GA

  • Harold Crawford
    Terry, MS
  • Julie Schuur
    Luverne, MN
  • Denise Drake-Asselin
    Kenner, LA
  • Robin Smothers
    Golden Valley, MN
  • Arnie Gruetzmacher*
    Plymouth, MN
  • Craig Lisack
    Palatine, IL
  • Jeffrey Scott Storms
    Minneapolis, MN
  • William P. Sweeney*
    Minneapolis, MN
  • Susan Perlman, MD
    Los Angeles, CA


Key Personnel

  • Michael Parent
    Executive Director
  • Susan Hagen
    Patient Services Director

* Executive Committee Members

Medical Research Advisory Board

  • Research Director
    Harry T. Orr, PhD
    University of Minnesota
    Minneapolis, MN
  • Associate Director
    Henry Paulson, MD, PhD
    University of Michigan Medical Center
    Ann Arbor, MI
  • Medical Director
    Susan Perlman, MD
    UCLA School of Medicine
    Los Angeles, CA
  • Medical Liaison
    Lawrence Schut, MD
    CentraCare Clinic - River Campus
    St. Cloud, MN
  • Tetsuo Ashizawa, M.D., FAAN
    University of Florida
    Gainesville, FL 32611

    Sid Gilman, MD FRCP
    University of Michigan
    Ann Arbor, MI
  • Christopher Gomez, MD, PhD
    University of Chicago
    Chicago, IL 60637
  • Joanna Jen, MD, PhD
    UCLA School of Medicine
    Los Angeles, CA
  • William G Johnson, MD
    UMDNJ- Robert Wood Johnson Medical School
    Picataway, NJ
  • Bronya Keats, PhD
    Australian National University
    Canberra, Australia
  • Arnulf H Koeppen, MD
    VA Medical Center
    Albany, NY
  • Albert La Spada, MD, PhD, FACMG
    University of California, San Diego
    La Jolla, CA
  • David Lynch, MD
    Univ. of Pennsylvania
    Philadelphia, PA
  • Russell Margolis MD
    Johns Hopkins University
    Baltimore, MD
  • Martha Nance, MD
    Struthers Parkinson’s Center
    Golden Valley, MN
  • Massimo Pandolfo, MD
    Universite Libre de Bruxelles-Hopital
    BruxellesBelgium
  • Christopher Pearson, PhD
    The Hospital for Sick Children
    Toronto, Ontario
  • Louis J Ptacek, MD
    Howard Hughes Medical Institute
    San Francisco, CA
  • Stefan Pulst, MD
    University of Utah Health Sciences Center
    Salt Lake City, Utah
  • Laura Ranum, PhD
    University of Minnesota
    Minneapolis, MN
  • Jeremy D. Schmahmann, MD
    Associate Professor of Neurology
    Harvard Medical School
    Boston, MA
  • S.H. Subramony, MD
    University of Florida
    Gainesville, FL 32610-0326
  • Michael Wilensky, MD
    Kenner, LA
  • George ”Chip” Wilmot, MD, PhD
    Emory University
    Atlanta, GA
  • Robert B. Wilson, MD, PhD
    University of Pennsylvania
    Philadelphia, PA
  • Huda Zoghbi, MD
    Baylor College of Medicine
    Houston, TX