Board of Directors & Medical Research Advisory Board

Board of Directors

• President
  Charlene Danielson*
  Minnetonka, MN
• Vice-President
  Camille Daglio*
  Hattiesburg, MS
• Secretary/Treasurer
  Arnie Gruetzmacher*
  Plymouth, MN
• Harold Crawford
  Terry, MS
• Denise Drake
  Kenner, LA
• Earl McLaughlin
  EI Cajon, CA
• Harry T Orr Ph.D.
  Minneapolis, MN

• 
  Susan Perlman, MD
  Los Angeles, CA
• Laura Ranum, Ph.D.
  Gainesville, FL
• Lawrence Schut, MD
  Maple Lake, MN
• Julie Schuur
  Luverne, MN
• Jeffrey Scott Storms
  Minneapolis, MN
• William P. Sweeney*
  Minneapolis, MN
• Dave Zilles
  Atlanta, GA

Key Personnel

• Michael Parent
  Executive Director

• Susan Hagen
  Patient Services Director

* Executive Committee Members

Medical Research Advisory Board

• Research Director
  Harry T. Orr, PhD
  University of Minnesota
  Minneapolis, MN
• Associate Director
  Henry Paulson, MD, PhD
  University of Michigan Medical Center
  Ann Arbor, MI
• Medical Director
  Susan Perlman, MD
  UCLA School of Medicine
  Los Angeles, CA
• Medical Liaison
  Lawrence Schut, MD
  CentraCare Clinic - River Campus
  St. Cloud, MN
• Tetsuo Ashizawa, MD, FAAN
  University of Florida
  Gainesville, FL
  
  Sid Gilman, MD FRCP
  University of Michigan
  Ann Arbor, MI
• Christopher M. Gomez, MD, PhD
  University of Chicago
  Chicago, IL
• Joanna Jen, MD, PhD
  UCLA School of Medicine
  Los Angeles, CA
• William G Johnson, MD
  UMDNJ- Robert Wood Johnson Medical School
  Picataway, NJ
• Bronya Keats, PhD
  Australian National University
  Canberra, Australia
• Arnulf H Koeppen, MD
  VA Medical Center
  Albany, NY
• Albert La Spada, MD, PhD, FACMG
  University of California, San Diego
  La Jolla, CA
• David Lynch, MD
  Univ. of Pennsylvania
  Philadelphia, PA

• Russell Margolis MD
  Johns Hopkins University
  Baltimore, MD
• Martha Nance, MD
  Struthers Parkinson’s Center
  Golden Valley, MN
• Massimo Pandolfo, MD
  Universite Libre de Bruxelles-Hopital
  BruxellesBelgium
• Christopher Pearson, PhD
  The Hospital for Sick Children
  Toronto, Ontario
• Louis J Ptacek, MD
  Howard Hughes Medical Institute
  San Francisco, CA
• Stefan Pulst, MD
  University of Utah Health Sciences Center
  Salt Lake City, Utah
• Laura Ranum, PhD
  University of Florida
  Gainesville, FL
• Jeremy D. Schmahmann, MD
  Harvard Medical School
  Boston, MA
• S.H. Subramony, MD
  University of Florida
  Gainesville, FL
• Michael Wilensky, MD
  Kenner, LA
• George ”Chip” Wilmot, MD, PhD
  Emory University
  Atlanta, GA
  
• Robert B. Wilson, MD, PhD
  University of Pennsylvania
  Philadelphia, PA
• Huda Zoghbi, MD
  Baylor College of Medicine
  Houston, TX