Board of Directors & Medical Research Advisory Board

Board of Directors

  • President
    DeNiece Roach*
    Minneapolis, MN
  • Vice-President
    Charlene Danielson*
    Minnetonka, MN
  • Secretarv/Treasurer
    Larry Loomis*
    West St. Paul, MN
  • Laura Ranum, PhD
    Minneapolis, MN
  • Camille Daglio
    Hattiesburg, MS
  • Lawrence Schut, MD
    Maple Lake, MN
  • John Day, MD, PhD
    Minneapolis, MN
  • Harry T Orr Ph.D.
    Minneapolis, MN
  • Dave Zilles
    Atlanta, GA
  • Harold Crawford
    Terry, MS
  • Julie Schuur
    Luverne, MN
  • Denise Drake-Asselin
    Kenner, LA
  • Robin Smothers
    Golden Valley, MN
  • Arnie Gruetzmacher*
    Plymouth, MN
  • Millard McWhorter, III, MD
    Andalusia, AL
  • Earl McLaughlin
    EI Cajon, CA

Key Personnel

  • Michael Parent
    Executive Director
  • Becky Kowalkowski
    Patient Services Director

* Executive Committee Members

Medical Research Advisory Board

  • Research Director
    Harry T. Orr, PhD
    Tulloch Professor of Genetics
    Dept. of Laboratory Medicine and Pathology
    Director, Institute of Human Genetics
    University of Minnesota
    Mayo Mail Code 206
    Minneapolis, MN 55455
  • Medical Director
    Lawrence Schut, MD
    11091 County Road 7, NW
    Maple Lake, MN 55358
    Center Care
    St. Cloud, MN
  • Research Medical Liaison
    John Day, MD, PhD
    Professor
    Dept. of Neurology – MMC 295
    420 Delaware St.
    Mpls, MN 55455
  • Associate Director
    Henry Paulson, MD, PhD
    University of Michigan Medical Center
    Professor of Neurology
    4001 Biomedical Science Research Building
    109 Zina Pitcher Place
    Ann Arbor, MI 48109-2200
    Phone: (734) 615-5638
    Email: henryp@umich.edu
  • Tetsuo Ashizawa, MD
    Professor and Chairman
    Dept. of Neurology
    University of Texas
    301 University Blvd.
    Galveston, TX 77555-0539
  • Christopher Gomez, MD, PhD
    Professor and Chair
    Dept. of Neurology
    University of Chicago
    5841 S. Maryland
    Chicago, IL 60637
  • Daniel Geschwind, MD, PhD
    Gordon and Virginia MacDonald Distinguished Professor of Human Genetics
    Professor of Neurology & Psychiatry
    UCLA School of Medicine
    710 Westwood Plaza
    Los Angeles, CA 90095-1769
  • Sid Gilman, MD FRCP
    William J. Herdman Distinguished University Professor of Neurology Director
    Michigan Alzheimer’s Disease Research Center
    Dept. of Neurology
    University of Michigan
    300 N. Ingalls St. 3D15
    Ann Arbor, MI 48109-5489
  • William G Johnson, MD
    Professor of Neurology
    UMDNJ- Robert Wood Johnson Medical School
    UBHC Room D-431
    671 Hoes Lane
    Picataway, NJ 08854
  • Bronya Keats, PhD
    Dept. of Genetics
    Louisiana State University Health Sciences Center
    533 Bolivar St.
    New Orleans, LA 70112-1393
  • Arnulf H Koeppen, MD
    Professor of Neurology and Pathology
    Albany Medical College
    Chief, Neurology Service (127)
    VA Medical Center
    113 Holland Ave.
    Albany, NY 12208
  • Joanna Jen, MD, PhD
    Associate Professor
    Dept. of Neurology
    UCLA School of Medicine
    710 Westwood Plaza
    Los Angeles, CA 90095-1469
  • David Lynch, MD
    Dept. of Neurology
    Univ. of Pennsylvania
    2nd floor-Ravden Bldg.
    3400 Spruce St.
    Philadelphia, PA 19104
  • Jau-Shin Lou, MD, PhD
    Associate Professor
    3181 SW Sam Jackson Park Rd.
    Portland, OR 97201-3098
  • Massimo Pandolfo, MD
    Chef de Service
    Service de Neurologie
    Universite Libre de Bruxelles-Hopital Erasme
    Route de Lennik 808
    B-1070 Bruxelles
    Belgium
  • Martha Nance, MD
    Struthers Parkinson’s Center
    6701 Country Club Drive
    Golden Valley, MN 55427
  • Susan Perlman, MD
    UCLA Neurological Services
    300 Medical Plaza, Suite B200
    Los Angeles, CA 90025
  • Louis J Ptacek, MD
    Howard Hughes Medical Institute
    University of California San Francisco
    Dept. of Neurology Box 2922
    Rock Hall, RM 548F
    1550 4th St.
  • Stefan Pulst, MD
    Carmen & Louis Warschaw
    Chair in Neurology
    Professor of Medicine and Neurobiology
    Cedars-Sinai Medical Center
    David Geffen School of Medicine at UCLA
    8631 West 3rd Street, Suite 215
    Los Angeles, CA 90048
  • Laura Ranum, PhD
    Professor
    Department of Genetics
    Cell Biology Development MMC 206
    420 Delaware Street
    Minneapolis, MN 55455
  • Roger Rosenberg, MD
    Zale Chair & Professor
    Dept. of Neurology
    University of Texas
    Southwestern Medical School
    5323 Harry Hines Blvd.
    Dallas, TX 75390-9036
  • Jeremy D. Schmahmann, MD
    Associate Professor of Neurology
    Harvard Medical School
    Director, Ataxia Unit: Cognitive/Behavioral
    Massachusetts General Hospital
    CPZS-340, 55 Fruit Street
  • S.H. Subramony, MD
    Dept. of Neurology
    University of Texas
    301 University Blvd.
    Galveston, TX 77555-0539
  • Michael Wilensky, MD
    200 West Esplanade
    Suite 610
    Kenner, LA 70065
  • Robert B. Wilson, MD, PhD
    Associate Professor
    University of Pennsylvania
    Room 509 A, Stellar-Chance Labs
    422 Curie Blvd.
    Philadelphia, PA 19104
  • Huda Zogbi, MD
    Baylor College of Medicine
    Dept. of Molecular and Human Genetics
    One Baylor Plaza, Rm T807, MS225
    Houston, TX 77030
  • Honorary Member
    Lee Schact, PhD
    100 S.E. 2nd St.
    Mpls., MN 55414