Events Calendar

Tuesday, June 27, 2017

Northeast OH Walk n' Roll Kick-Off Event

6:30pm at Red Robin, 6750 Rockside Rd, Independence, OH 44131. We would love to get all members involved with this year's walk n roll. Even if its just handing out and placement of the Walk n Roll flyers. Please remember to tell n email all your friends and family. Add it to your facebook pages n add it as a signiture on all emails you sent. Anyone who would like to help out with the walk even in the smallest way please call me at 440-666-6078 or email julieplus3@gmail.com. I would love to see everyone for dinner regardless and catch up with old friends.

Friday, June 30, 2017

NCATS Advocacy Day — Partnering with Patients for Smarter Science

John Edward Porter Neuroscience Research Center - National Institutes of Health, 35 Convent Drive, Bethesda, Maryland. Save the date for the inaugural NCATS Advocacy Day — Partnering with Patients for Smarter Science. The purpose of the event is to inform patients and their advocates about NCATS and its programs, identify patient needs, and collectively discuss ways for improved patient inclusion in NCATS’ translational science activities. The full day event features presentations, interactive activities and a poster session. Designed for patients, families, caregivers and patient advocacy groups, the event will foster an open dialogue among patients and their advocates to discuss common translational science roadblocks, brainstorm ideas for improvement, and apply that knowledge to strengthen patient and community engagement at NCATS.
https://ncats.nih.gov/events#advocacy

Saturday, July 1, 2017

Cars of Summer Car Show & More

July 1-3 at Green Hill Park, Worcester MA 01604. Come out for some family fun and support NAF! A portion of each ticket purchased on Monday, July 3 will benefit the National Ataxia Foundation.
http://www.carsofsummer.com/

Wednesday, July 5, 2017

Western PA Ataxia Support Group Meeting

7pm at the Bethel Park Community Center, 5151 Park Avenue, Pittsburgh, PA. For more information contact Ed Schwartz at eds@ataxia.org or 724-941-2210.

Saturday, July 8, 2017

Central Minnesota Ataxia Support Group Meeting

10am - 12pm at 1038 Sunset Ridge Rd, St. Cloud, MN 56303. For more information contact Marsha Binnebose at 320-248-9851 or mbinnebose@hotmail.com.

Saturday, July 8, 2017

North Texas Area Ataxia Support Group Meeting

10am - Noon at the Ben Washington Baptist Church - Rev Jr Sheppard Educational Center, 615 Davis St, Irving, TX 75061. There is lots of parking and it is handicap accessible. The meeting room is in a separate bldg from the church. For more information contact David Henry at cheve11e@sbcglobal.net.

Saturday, July 8, 2017

Northern California Ataxia Support Group Meeting

11am - 3pm at Our Savior's Lutheran Church, 1035 Carol Ln, Lafayette, CA 94549. Our speaker will be Nancy Cai, Clinical Research Coordinator (CRC) at UCSF. You can RSVP to the meeting directly from the group website below and then clicking on the meetings and entering your name and the number in your party.
http://www.norcalataxia.org

Saturday, July 8, 2017

St. Louis Area Ataxia Support Group Meeting

11am-12:30pm at the St Louis Public Library, Schlafly Branch, Auditorium (corner of Euclid Ave and Lindell Blvd), 225 N Euclid Ave, St Louis. MO 63108. Enter on the corner or from the parking garage. Facing the library, there is a parking garage on the left. It connects to the library, but it does cost. There is also a pay parking garage across Euclid, or you can park on the street. The #13 Metro bus stops in front of the library after leaving the CWE Metro stop. The library is accessible, except the bathroom doors. !?! They do not allow food or drink, but they do have a water fountain. I hope that all of you can attend -- I'd like to meet everyone! This is a planning meeting, to decide when/where to meet in the future, issues/concerns, recruiting and PR, etc. And, of course, to get to know each other! Come with your questions. (Some of us may grab a bite after the meeting.) For more information contact Shannon Dunphy Lazo at 202-306-2738 or shan_d@hotmail.com.

Saturday, July 8, 2017

Treasure Coast Ataxia Support Group Meeting

12-3pm at the Palm Beach Gardens Clubhouse, 2104 Canterbury Dr, Palm Beach Gardens, FL 33418. Gate attendees can provide directions to the clubhouse. Come and make new connections, share your experiences, and learn from others. For more information contact Lisa Cole at 772-370-3041 or lisacoleataxia@gmail.com.

Sunday, July 9, 2017

Disability Pride NYC Parade & Festival

11am Gather at Union Square - March, Roll, Ride down 5th Ave to Washington Square Park. 12-3pm Festival with music, dance, comedy, and speakers. Celebrate ADA's 27th anniversary. For more information visit the event website.
http://disabilitypridenyc.org/

Wednesday, July 12, 2017

Willamette Valley Ataxia Support Group Meeting - Albany Location

11:30am-1pm at Albany Hospital – 4th Floor Conference Room, 1046 6th Ave SW, Albany, OR 97321. For more information contact Jason Wolfer at wolfer.jason@gmail.com or 503-502-2633.

Thursday, July 13, 2017

Tri State Ataxia Support Group Meeting

6:30pm - 8:30pm at Mount Sinai Beth Israel Medical Center - Phillips Ambulatory Care Center - 2nd Floor, Conference Room, 10 Union Square East, New York, NY. Please join us! We look forward to seeing you! For more information, please contact Kathleen Gingerelli at kgingerelli@msn.com.

Saturday, July 15, 2017

Denver Area Ataxia Support Group Meeting

1-4pm at the Swedish Medical Center, 501 E Hampden Ave, Englewood, CO 80113 - 2nd floor Conference Rooms. For more information or to be added to this group's mailing list contact Charlotte DePew at 720-379-6887 or cldepew77@comcast.net.

Saturday, July 15, 2017

Greater Atlanta Ataxia Support Group Meeting

1-3pm at Emory Rehabilitation Hospital, 1441 Clifton Road, NE Room 101, Atlanta, GA 30322. For more information contact atlantaataxia@gmail.com or 404-822-7451.

Saturday, July 15, 2017

NCASG - Sacramento Area Ataxia Support Group Meeting

1-4pm at Sutter Roseville Medical Center - Meeting Room 8, 1 Medical Plaza Dr, Roseville, CA 95661. We meet on the third Saturday of each month. For more information or to be added to this group's mailing list contact Teresa Bredberg at 916-215-2686 or tbredberg@sbcglobal.net.

Saturday, July 15, 2017

Nebraska Ataxia Support Group Grill Out

11am-2pm at Lake Zorinsky, Omaha, NE. Burgers and hot dogs provided. For more information contact Linda Snider at 402-212-3060 or lindasnider@cox.net.

Saturday, July 15, 2017

Rare on the Road - Rare Disease Leadership Tour

8:30am at the Shriners Hospital for Children, 3101 SW Sam Jackson Park Road, Portland, OR 97239 . RARE on the Road will bring critical education and insights to rare disease patients, advocates and caregivers, while collaborating in an interactive and engaging environment. Building on the successful 2016 EveryLife Foundation Regional Legislative Conferences, RARE on the Road will focus on an expanded agenda that includes topics from Capacity Building to the Patients’ Role in Drug Development, including breakout sessions and hands-on workshops. Visit the event website for more information.
http://action.everylifefoundation.org/p/salsa/event/common/public/?event_KEY=8867

Saturday, July 15, 2017

Twin Cities Ataxia Social Group

The Twin Cities Ataxia Support Group meets once a month. Family and friends of an afflicted individual are always welcome! We meet on the third Saturday of every month at 10:00am for 2 hours in a meeting room at Langton Place which is located on the south side of the road on County Road D roughly four tenths of a mile east of I35W in Roseville at 1910 W. CTY. RD. D., ROSEVILLE, MN 55112. We wanted to provide a central location that it easy to access which is why we picked this place. Please join us, and make new connections! For more information contact Lenore Healey Schultz at 612- 724-3784 or schultz.lenore@yahoo.com.

Saturday, July 22, 2017

New Hampshire Ataxia Support Group Meeting

10am - Noon at the Villa Crest Nursing and Retirement Home, 1276 Hanover St, Manchester, NH. For more information or to RSVP contact Jill Porter at 603-626-0129 or jilleporter@comcast.net.

Saturday, July 22, 2017

Wisconsin Ataxia Support Group Meeting

12-2 at the Sequoya Library, 4340 Tokay Blvd, Madison, WI. For more information contact Kory Tabor at kstab77@yahoo.com or 608-237-6090.

Sunday, July 23, 2017

Team Ruehl 60 for 60 Bike Ride to Cure Ataxia

July 21-23 Team Ruehl will be riding along the Erie Canal to raise money and awareness for Ataxia! All Proceeds benefit the National Ataxia Foundation. To Donate or Join Our Team visit our Team website.
https://ataxia.donorpages.com/201760For60/TeamRuehl/

Saturday, July 29, 2017

Central Pennsylvania Ataxia Support Group Meeting

11am - 1pm at the Hershey Medical Center's Hope Drive Facility. The meeting will be followed be a pot-luck style picnic at the Leader Farm. For more information contact Mike Cammer at 610-996-5814 or michael.cammer62@hotmail.com.

Wednesday, August 2, 2017

Western PA Ataxia Support Group Meeting

7pm at the Bethel Park Community Center, 5151 Park Avenue, Pittsburgh, PA. For more information contact Ed Schwartz at eds@ataxia.org or 724-941-2210.

Friday, August 4, 2017

Houston Abilities Expo

August 4-6, 2017 at NRG Center, Hall E, One NRG Park, Houston, TX 77054
http://www.abilities.com/houston/

Saturday, August 5, 2017

Arizona Ataxia Support Group Meeting

1pm at Ability 360, 5025 E Washington Street, Phoenix, AZ 85034. For more information contact Mary Fuchs at 480-212-6425 or mary11115@msn.com.

Saturday, August 5, 2017

Oklahoma Ataxia Support Group Meeting

2 to 4pm at Mustang Conference Center, 1201 N Mustang Rd in Room E, Oklahoma City. For more information contact Christopher DeHaven at 405-387-9227 or photoman94@gmail.com.

Saturday, August 5, 2017

Rhode Island Ataxia Support Group Meeting

11am - 2pm at the Bristol Community Center, 101 Asylum Road, Bristol, RI. For more information contact Anabela Azevedo at azevedo70anabela@gmail.com or 401-297-8627.

Saturday, August 5, 2017

TN 60 for 60 Walk and Run for Ataxia

8:30am at Moss-Wright Park, 745 Caldwell Dr, Goodlettsville, TN 37072. Join the McMurtry Quinn Family in raising funds and awareness for Ataxia! All proceeds benefit the National Ataxia Foundation. For more information contact Karla McMurtry Quinn at 615-390-0922 or kmq88@msn.com.
https://ataxia.donorpages.com/201760For60/TeamMcMurtry/

Saturday, August 5, 2017

Treasure Coast Ataxia Support Group Meeting

1-4pm at PSL Community Center, 2195 SE Airoso Blvd, Port St Lucie, FL 34984. Come and make new connections, share your experiences, and learn from others. For more information contact Lisa Cole at 772-370-3041 or lisacoleataxia@gmail.com.

Wednesday, August 9, 2017

Willamette Valley Ataxia Support Group Meeting - Albany Location

11:30am-1pm at Albany Hospital – 4th Floor Conference Room, 1046 6th Ave SW, Albany, OR 97321. For more information contact Jason Wolfer at wolfer.jason@gmail.com or 503-502-2633.

Saturday, August 12, 2017

Central Minnesota Ataxia Support Group Meeting

10am - 12pm at 1038 Sunset Ridge Rd, St. Cloud, MN 56303. For more information contact Marsha Binnebose at 320-248-9851 or mbinnebose@hotmail.com.

Saturday, August 12, 2017

Hu-Manifest

9am-Midnight at Playground Production Studios, 5529 Bonna Ave Ste 10 Indianapolis, IN 46219. Hu-Manifest is a yoga music festival located in historic Irvington presenting various forms of health and wellness lifestyles, exercise, discipline, motivational speakers, health education, live music, and dance performances. Hu-Manifest's mission is to raise awareness about Ataxia and celebrate the human creative spirit. All donations and a portion of event ticket sales benefit the National Ataxia Foundation (NAF). For event tickets or more information please contact Playground Productions Studio (317) 678-PLAY (7529) info@PlygroundProductionsStudio.com.
https://ataxia.donorpages.com/2017HuManifest/

Saturday, August 12, 2017

Kansas City Ataxia Support Group Meeting

12-2 pm at the Northeast Library, 6000 Wilson Rd, Kansas City, MO 64123. For more information contact Stephanie Wilkins at 816-623-3318 or sfwilkins@yahoo.com.

Saturday, August 12, 2017

North Texas Area Ataxia Support Group Meeting

10am - Noon at the Ben Washington Baptist Church - Rev Jr Sheppard Educational Center, 615 Davis St, Irving, TX 75061. There is lots of parking and it is handicap accessible. The meeting room is in a separate bldg from the church. For more information contact David Henry at cheve11e@sbcglobal.net.

Saturday, August 19, 2017

NCASG - Sacramento Area Ataxia Support Group Meeting

1-4pm at Sutter Roseville Medical Center - Meeting Room 8, 1 Medical Plaza Dr, Roseville, CA 95661. We meet on the third Saturday of each month. For more information or to be added to this group's mailing list contact Teresa Bredberg at 916-215-2686 or tbredberg@sbcglobal.net.

Saturday, August 19, 2017

Nebraska Ataxia Support Group Meeting

11am-1pm at Creighton Prep High School, 7400 Western Ave, Omaha, NE. Guest speaker will lead wheelchair yoga session. For more information contact Linda Snider at 402-212-3060 or lindasnider@cox.net.

Saturday, August 19, 2017

Orange County Ataxia Support Group Meeting

2-4pm at Orange Coast Memorial Medical Center Hospital, Breast Cancer Center-Pacific Coast Room, 9900 Talbert Ave, Fountain Valley, CA 92708. For more information contact Cindy DeMint at cindyocataxia@gmail.com.
http://orangecountyataxia.org/

Saturday, August 19, 2017

Tampa Bay Ataxia Support Group Meeting

12:30-3pm at the University of South Florida - Morsani Center, 13330 Laurel Dr #1013, Tampa, FL 33612. For more information contact Darlene Harris msdee004@yahoo.com 813-431-2859 or Linda Farrow at lndfrrw2@gmail.com.

Saturday, August 19, 2017

Twin Cities Ataxia Social Group

The Twin Cities Ataxia Support Group meets once a month. Family and friends of an afflicted individual are always welcome! We meet on the third Saturday of every month at 10:00am for 2 hours in a meeting room at Langton Place which is located on the south side of the road on County Road D roughly four tenths of a mile east of I35W in Roseville at 1910 W. CTY. RD. D., ROSEVILLE, MN 55112. We wanted to provide a central location that it easy to access which is why we picked this place. Please join us, and make new connections! For more information contact Lenore Healey Schultz at 612- 724-3784 or schultz.lenore@yahoo.com.

Saturday, August 26, 2017

New Hampshire Ataxia Support Group Meeting

10am - Noon at the Villa Crest Nursing and Retirement Home, 1276 Hanover St, Manchester, NH. For more information or to RSVP contact Jill Porter at 603-626-0129 or jilleporter@comcast.net.

Saturday, August 26, 2017

Tri-State Walk n' Roll to Cure Ataxia

Liberty State Park, 1 Audrey Zapp Drive, Jersey City, NJ 07305. All proceeds benefit the National Ataxia Foundation. To volunteer or for more information please contact Kathleen Gingerelli kgingerelli@msn.com or 201-681-7639.
http://www.ataxia.org/walk/tristate

Sunday, August 27, 2017

NE Ohio Walk n' Roll to Cure Ataxia

10am Registration / 11:30am Walk n' Roll at Cleveland Metroparks Lakefront Reservation - Edgewater Park, Upper Edgewater West Reserved Shelter (Located off Route 6/Memorial Shoreway), 6500 Cleveland Memorial Shoreway, Cleveland, OH 44102. No Registration Fee - Donations Gladly Accepted. Participation and donations for our event's silent auction is welcome and appreciated. All proceeds benefit the National Ataxia Foundation (NAF). To volunteer or for more information please contact Julie Clarich at Julieplus3@gmail.com or (440) 666-6078.
http://www.ataxia.org/walk/NEOWalk

Sunday, August 27, 2017

Rockin For Ataxia

1-5pm at Cheers (Formerly Sullivan's Pub), 4660 147th St, Midlothian, IL 60445. Come and have a rockin' good time raising funds to help end Ataxia! All proceeds benefit the National Ataxia Foundation. This event will include live entertainment, raffle, auction, cash bar, and pizza appetizers. Admission is $20 Advance/$25 At Door. Visit the event website for more information.
http://ataxia.org/fundraiser/rockinforataxia

Wednesday, September 6, 2017

Western PA Ataxia Support Group Meeting

7pm at the Bethel Park Community Center, 5151 Park Avenue, Pittsburgh, PA. For more information contact Ed Schwartz at eds@ataxia.org or 724-941-2210.

Thursday, September 7, 2017

Mind Over Miles 60 for 60 Hike to Cure Ataxia

September 3-7 the Mind Over Miles Team will hike 60 miles of the Superior Hiking Trail along the North Shore of Lake Superior. Join us and help the important work of the NAF! All Proceeds benefit the National Ataxia Foundation. To Donate or Join Our Team visit our Team website.
https://ataxia.donorpages.com/201760For60/MindoverMiles/

Friday, September 8, 2017

Boston Abilities Expo

September 8-10, 2017 at the Boston Convention & Exhibition Center - Hall C, 415 Summer Street, Boston, MA 02210
http://www.abilities.com/boston/

Saturday, September 9, 2017

Central Minnesota Ataxia Support Group Meeting

10am - 12pm at 1038 Sunset Ridge Rd, St. Cloud, MN 56303. For more information contact Marsha Binnebose at 320-248-9851 or mbinnebose@hotmail.com.

Saturday, September 9, 2017

Minnesota Walk n' Roll to Cure Ataxia

9am Registration & Social Hour / 10am Walk & Program at Wolfe Park, 3700 Monterey Drive, St. Louis Park, MN (Parking at the St. Louis Park Recreation Center). No Registration Fee - Donations Only. All proceeds benefit the National Ataxia Foundation (NAF). To volunteer or for more information please contact Wendy Sweeney at wendysweeney1@comcast.net.
http://www.ataxia.org/walk/minnesota

Saturday, September 9, 2017

North Texas Area Ataxia Support Group Meeting

10am - Noon at the Ben Washington Baptist Church - Rev Jr Sheppard Educational Center, 615 Davis St, Irving, TX 75061. There is lots of parking and it is handicap accessible. The meeting room is in a separate bldg from the church. For more information contact David Henry at cheve11e@sbcglobal.net.

Saturday, September 9, 2017

Treasure Coast Ataxia Support Group Meeting

2-4:30pm at Southwest Library-Community Room, 7255 Della Dr, Orlando, FL 32819. For more information contact Lisa Cole at 772-370-3041 or lisacoleataxia@gmail.com.

Saturday, September 9, 2017

Walk for Dave to Cure Ataxia

12-3pm at Cornell Botanic Gardens - F.R. Newman Arboretum, Arboretum Rd, Ithaca, NY 14850. This walk is to raise ataxia awareness and funds for the National Ataxia Foundation in Memory of David Alessi. Registration $10.00 Per Participant. All proceeds benefit the National Ataxia Foundation (NAF). To volunteer or for more information please contact Marc Alessi at(315) 506-3260 or mja244@cornell.edu.
http://www.ataxia.org/walk/walkfordave

Sunday, September 10, 2017

Denver Walk n' Roll to Cure Ataxia

8:30am - 10:30am at the Denver City Park, Denver, CO. All proceeds benefit the National Ataxia Foundation. For more information or to volunteer contact Charlotte DePew at cldepew77@comcast.net or 253-720-8132.
http://www.ataxia.org/walk/denver

Wednesday, September 13, 2017

Willamette Valley Ataxia Support Group Meeting - Albany Location

11:30am-1pm at Albany Hospital – 4th Floor Conference Room, 1046 6th Ave SW, Albany, OR 97321. For more information contact Jason Wolfer at wolfer.jason@gmail.com or 503-502-2633.

Thursday, September 14, 2017

Tri State Ataxia Support Group Meeting

6:30pm - 8:30pm at Mount Sinai Beth Israel Medical Center - Phillips Ambulatory Care Center - 2nd Floor, Conference Room, 10 Union Square East, New York, NY. Please join us! We look forward to seeing you! For more information, please contact Kathleen Gingerelli at kgingerelli@msn.com.

Saturday, September 16, 2017

Glow In The Park To Cure Ataxia

6:30pm - 9pm at Hap McLean Park, 6801 N Hydraulic, Park City, KS 67219. Join us an evening of fun and a chance to win a raffle prize to raise ataxia awareness and funds for the National Ataxia Foundation! For kids there will be a small carnival with a few games including a fish pond, face paint, and a bean bag toss. For adults that come we have Zumba and contests for who get dressed up the most and who can Zumba the longest. All proceeds benefit the National Ataxia Foundation (NAF). For more information or to volunteer contact Jalean Retzlaff at (312) 303-2351 or jlrtrolls@yahoo.com.
https://ataxia.donorpages.com/201760For60/GlowinthePark/

Saturday, September 16, 2017

NCASG - Sacramento Area Ataxia Support Group Meeting

1-4pm at Sutter Roseville Medical Center - Meeting Room 8, 1 Medical Plaza Dr, Roseville, CA 95661. We meet on the third Saturday of each month. For more information or to be added to this group's mailing list contact Teresa Bredberg at 916-215-2686 or tbredberg@sbcglobal.net.

Saturday, September 16, 2017

OC Walk n' Roll to Cure Ataxia

8am Registration | 9am 1 mile Walk n' Roll at East Lake Village Community Association - Club House Parking Lot, 5325 Village Center Drive, Yorba Linda, CA. Free event t-shirt to the first 300 participants present at the event. We will have a DJ, opportunity drawing for participants, vendors showing their products/services, children's activities including face painting, balloon animals, and games, and a chance to unite with other affected by ataxiaAll proceeds benefit the National Ataxia Foundation. For more information or to volunteer contact Cindy DeMint at cindyocataxia@gmail.com.
http://www.ataxia.org/walk/oc

Sunday, September 17, 2017

Go On 3! To Cure Ataxia

I'm Mike Cammer and I have ataxia. This year on September 17th, I am entering the "Tour de Shunk" for the 4th year in a row! I have entered to ride my trike the entire 102 miles!!! Please help support my challenge to "GO ON 3! To Cure Ataxia" and complete my ride in the "Tour de Shunk"! All donations benefit the National Ataxia Foundation.
http://ataxia.donorpages.com/2017GoOn3/

Saturday, September 23, 2017

Atlanta Walk n' Roll to Cure Ataxia

9:30am Registration/10:00am Walk at Shorty Howell Park, 2750 Pleasant Hill Rd, Duluth, GA 30096. Come and learn about ataxia while having fun raising funds for NAF. The event is a 1.25 mile Walk or Roll around the Shorty Howell Park. The event is followed by refreshments, ataxia information, and team recognition for the most dollars raised. No Registration Fee - Donations Only. All proceeds benefit the National Ataxia Foundation (NAF). To volunteer or for more information please contact the Atlanta Ataxia Support Group at (404) 822-7451 or atlantaataxia@gmail.com.
http://www.ataxia.org/walk/atlanta

Saturday, September 23, 2017

Little Bit Country...Little Bit Rock n' Roll

St. Elizabeth Ann Seton Church Hall, 345 Bear-Christiana Rd, Bear, DE 19701. Join us for a fun evening of music, food, drink, and raffles. Please donate to NAF is lieu of an entry fee by visiting the event website. All proceeds benefit the National Ataxia Foundation (NAF). Thank you for your support! For more information please contact Joe & Cathy Decrescenzo at jdecr26@verizon.net or 302-369-9287.
http://ataxia.donorpages.com/2017LittleBitCountryLittleBitRocknRoll/

Saturday, September 23, 2017

New Hampshire Ataxia Support Group Meeting

10am - Noon at the Villa Crest Nursing and Retirement Home, 1276 Hanover St, Manchester, NH. For more information or to RSVP contact Jill Porter at 603-626-0129 or jilleporter@comcast.net.

Saturday, September 23, 2017

Utah Walk n' Roll to Cure Ataxia

11am-2pm at Layton Commons Park - Phase 1 Pavilion, 437 N Wasatch Dr, Layton, UT 84041. No Registration Fee - Donations Only. Come and learn about ataxia while having fun raising funds for NAF. All proceeds benefit the National Ataxia Foundation (NAF). To volunteer or for more information please contact Lisa Ord, PhD, LCSW at (801) 585-6635 lisa.ord@hsc.utah.edu or Jenny Durrant jenny@utahataxia.org.
http://www.utahataxia.org

Saturday, September 23, 2017

Western PA Walk n' Roll to Cure Ataxia

9am Registration | 10am Walk n' Roll at Allegheny County South Park Corrigan Drive, South Park Township, PA 15129. No Registration Fee - Donations Only. Food...Music...Donate...Fun...Learn...Walk. All proceeds benefit the National Ataxia Foundation (NAF). To volunteer or for more information please contact Madalyn Gottschalk at (412) 926-8579 or samgotts32@gmail.com.

Sunday, September 24, 2017

Ontario 60 for 60 Walk & Ride To Cure Ataxia

10am at Springbank Park (West Entrance), 1085 Commissioners Rd, London, ON N6K 4Y6. We will begin riding & walking shortly after 10am. We will be taking the Thames Valley Parkway pathway east & north which traverses through many riverside parks including the forks of the Thames. The walk and ride will conclude at Gibbons Park (north entrance off of Victoria Street). Maps of the 10K route will be provided at the start. All proceeds benefit the National Ataxia Foundation. For more information Contact Greg Ostrom at fregs@live.ca or call 519-639-0630. Let’s have fun! See you there. To donate or join our Team visit our event website.
https://ataxia.donorpages.com/201760For60/RideforAtaxia/

Monday, September 25, 2017

60 for 60

Starting Now through International Ataxia Awareness Day of September 25th. Be part of the 60 who will journey 60 miles to each raise $10,000 in recognition of NAF’s 60th Anniversary and in support of NAF’s focused future goals to end Ataxia! All proceeds benefit the National Ataxia Foundation. To register or support this campaign visit the event website below.
https://ataxia.donorpages.com/201760For60/

Monday, September 25, 2017

International Ataxia Awareness Day

The "International Ataxia Awareness Day" is an international effort from ataxia organizations around the world to dedicate September 25 as International Ataxia Awareness Day. The goal of IAAD is for every individual to participate in some activity, creating awareness about ataxia. You could share something you know about ataxia with one other person who has never heard of it, educate a group of people by speaking at a school or civic group, contact the media, or raise financial support.
http://www.ataxia.org/events/international-ataxia-awareness-day.aspx

Saturday, September 30, 2017

Nebraska Ataxia Support Group Engagement Party Fundraiser

5pm at Creighton Prep High School, 7400 Western Ave, Omaha, NE. This is a gala style fundraiser with a silent and live auction in addition to a presentation. Dress is casual. A portion of the proceeds from this event benefit the National Ataxia Foundation. For more information contact Linda Snider at 402-212-3060 or lindasnider@cox.net.

Saturday, September 30, 2017

New England Walk n' Roll to Cure Ataxia

9am Registration / 10am Walk n' Roll at Bristol Town Beach, 50 Asylum Rd, Bristol, RI 02809. Come and learn about ataxia while having fun raising funds for NAF. FREE, FAMILY, FUN! Entertainment and Raffle following Walk n' Roll. All proceeds benefit the National Ataxia Foundation (NAF). To volunteer or for more information please contact Jeannette Viveiros at (508) 837-3565 / jeannette@ataxia.org or John Mauro at john@ataxia.org.
http://www.ataxia.org/walk/newengland

Wednesday, October 4, 2017

Western PA Ataxia Support Group Meeting

7pm at the Bethel Park Community Center, 5151 Park Avenue, Pittsburgh, PA. For more information contact Ed Schwartz at eds@ataxia.org or 724-941-2210.

Saturday, October 7, 2017

Italian Night For A Cure

5-8pm at Floridino's, 590 N Alma School Rd, Chandler, AZ 85224. Join us for an evening of pasta, wine, and fun to raise funds for NAF! This event is a dinner with a raffle and guest speaker Joel Sutherland, NAF's Executive Director. Participants are welcome and encouraged to raise support of this event by sharing their personal fundraising pages that are generated during registration for this event. The registration fee is $25. Visit the event website to donate in support of this event, register for this event, start or join a team, set a goal, and begin raising money in support of NAF! All proceeds benefit the National Ataxia Foundation. For more information contact Mary Fuchs at 480-212-6425 or mary11115@msn.com.
http://www.ataxia.org/fundraiser/italiannight

Saturday, October 7, 2017

New Hampshire Walk n' Roll to Cure Ataxia

9am Registration / 10am Walk n' Roll at the Aviation Museum of New Hampshire, 27 Navigator Rd, Londonderry, NH 03053. Come and learn about ataxia while having fun raising funds for NAF. FREE, FAMILY, FUN! Entertainment and Raffle following Walk n' Roll No Registration Fee - Donations Only. All proceeds benefit the National Ataxia Foundation (NAF). John Mauro at 508-736-6084 john@ataxia.org or Jill Porter at 603-626-0129 jilleporter@comcast.net.
http://www.ataxia.org/walk/newhampshire

Saturday, October 7, 2017

Oklahoma Walk n' Roll to Cure Ataxia

9am Registration / 10am Walk at Coalgate City Park, Coalgate, OK 74538. Come and learn about ataxia while having fun raising funds for NAF. The event is a Walk or Roll around the City Park Track. Walk n' Roll as many laps as you want - 1 Lap = 1 Mile. All proceeds benefit the National Ataxia Foundation (NAF). To volunteer or for more information please contact Tori Wood(580) 927-6566 or torifaye289@gmail.com.
http://www.ataxia.org/walk/oklahoma

Saturday, October 7, 2017

Rhode Island Ataxia Support Group Meeting

11am - 2pm at the Bristol Community Center, 101 Asylum Road, Bristol, RI. For more information contact Anabela Azevedo at azevedo70anabela@gmail.com or 401-297-8627.

Saturday, October 7, 2017

Tea Time to Cure Ataxia

At the Aubrey Rose Tea Room, La Mesa, CA. Due to the overwhelming popularity of this tea, this year you will again have a choice of sitting at 11:00 am - 1:00 PM or 1:30 P.M. - 3:30 P.M. Please help us fill the tea room at both sittings. Ask your friends to join you, and plan now to attend. Cost is $35.00 per person. All proceeds benefit the National Ataxia Foundation. For more information contact Jane Jaffe at 619-286-9745 or sicilianmother@cox.net.

Saturday, October 7, 2017

Treasure Coast Ataxia Support Group Meeting

1-4pm at PSL Community Center, 2195 SE Airoso Blvd, Port St Lucie, FL 34984. For more information contact Lisa Cole at 772-370-3041 or lisacoleataxia@gmail.com.

Wednesday, October 11, 2017

Willamette Valley Ataxia Support Group Meeting - Albany Location

11:30am-1pm at Albany Hospital – 4th Floor Conference Room, 1046 6th Ave SW, Albany, OR 97321. For more information contact Jason Wolfer at wolfer.jason@gmail.com or 503-502-2633.

Saturday, October 14, 2017

Central Minnesota Ataxia Support Group Meeting

10am - 12pm at 1038 Sunset Ridge Rd, St. Cloud, MN 56303. For more information contact Marsha Binnebose at 320-248-9851 or mbinnebose@hotmail.com.

Saturday, October 14, 2017

Kansas City Ataxia Support Group Meeting

12-2 pm at the Northeast Library, 6000 Wilson Rd, Kansas City, MO 64123. For more information contact Stephanie Wilkins at 816-623-3318 or sfwilkins@yahoo.com.

Saturday, October 14, 2017

North Texas Area Ataxia Support Group Meeting

10am - Noon at the Ben Washington Baptist Church - Rev Jr Sheppard Educational Center, 615 Davis St, Irving, TX 75061. There is lots of parking and it is handicap accessible. The meeting room is in a separate bldg from the church. For more information contact David Henry at cheve11e@sbcglobal.net.

Saturday, October 14, 2017

Northern California Ataxia Support Group Meeting

11am - 3pm at Our Savior's Lutheran Church, 1035 Carol Ln, Lafayette, CA 94549. You can RSVP to the meeting directly from the group website below and then clicking on the meetings and entering your name and the number in your party.
http://www.norcalataxia.org

Saturday, October 21, 2017

Denver Area Ataxia Support Group Meeting

1-4pm at the Swedish Medical Center, 501 E Hampden Ave, Englewood, CO 80113 - 2nd floor Conference Rooms. For more information or to be added to this group's mailing list contact Charlotte DePew at 720-379-6887 or cldepew77@comcast.net.

Saturday, October 21, 2017

NCASG - Sacramento Area Ataxia Support Group Meeting

1-4pm at Sutter Roseville Medical Center - Meeting Room 8, 1 Medical Plaza Dr, Roseville, CA 95661. We meet on the third Saturday of each month. For more information or to be added to this group's mailing list contact Teresa Bredberg at 916-215-2686 or tbredberg@sbcglobal.net.

Saturday, October 21, 2017

Nebraska Ataxia Support Group Meeting

11am - 1pm at Hide A-way Grill, 744 W Park St, West Point, NE. For more information contact Linda Snider at 402-212-3060 or lindasnider@cox.net.

Saturday, October 21, 2017

Orange County Ataxia Support Group Meeting

2-4pm at Orange Coast Memorial Medical Center Hospital, Breast Cancer Center-Pacific Coast Room, 9900 Talbert Ave, Fountain Valley, CA 92708. For more information contact Cindy DeMint at cindyocataxia@gmail.com.
http://orangecountyataxia.org/

Saturday, October 21, 2017

Twin Cities Ataxia Social Group

The Twin Cities Ataxia Support Group meets once a month. Family and friends of an afflicted individual are always welcome! We meet on the third Saturday of every month at 10:00am for 2 hours in a meeting room at Langton Place which is located on the south side of the road on County Road D roughly four tenths of a mile east of I35W in Roseville at 1910 W. CTY. RD. D., ROSEVILLE, MN 55112. We wanted to provide a central location that it easy to access which is why we picked this place. Please join us, and make new connections! For more information contact Lenore Healey Schultz at 612- 724-3784 or schultz.lenore@yahoo.com.

Friday, October 27, 2017

Bay Area Abilities Expo

October 27-29, 2017
http://www.abilities.com

Saturday, October 28, 2017

Alabama Ataxia Support Group Meeting

10am - 2pm at Covenant Presbyterian Church, Homewood, AL. For more information contact Beck Donnelly at donnelly6132b@aol.com or 205-987-2883.

Saturday, October 28, 2017

Central Pennsylvania Ataxia Support Group Meeting

11am - 1pm at Muhlenberg Community Library, Laureldale, PA. For more information contact Mike Cammer at 610-996-5814 or michael.cammer62@hotmail.com.

Wednesday, November 1, 2017

Western PA Ataxia Support Group Meeting

7pm at the Bethel Park Community Center, 5151 Park Avenue, Pittsburgh, PA. For more information contact Ed Schwartz at eds@ataxia.org or 724-941-2210.

Saturday, November 4, 2017

Greater Atlanta Ataxia Support Group Meeting

1-3pm at Emory Rehabilitation Hospital, 1441 Clifton Road, NE Room 101, Atlanta, GA 30322. For more information contact atlantaataxia@gmail.com or 404-822-7451.

Saturday, November 4, 2017

Los Angeles Ataxia Support Group Meeting

2-4pm at the Veterans Memorial Complex, 4117 Overland Ave, Culver City, CA 90230. For more information contact Lora Morn at loramorn@gmail.com or Harvey Kahn at 562-686-9720.

Wednesday, November 8, 2017

Willamette Valley Ataxia Support Group Meeting - Albany Location

11:30am-1pm at Albany Hospital – 4th Floor Conference Room, 1046 6th Ave SW, Albany, OR 97321. For more information contact Jason Wolfer at wolfer.jason@gmail.com or 503-502-2633.

Thursday, November 9, 2017

Tri State Ataxia Support Group Meeting

6:30pm - 8:30pm at Mount Sinai Beth Israel Medical Center - Phillips Ambulatory Care Center - 2nd Floor, Conference Room, 10 Union Square East, New York, NY. Please join us! We look forward to seeing you! For more information, please contact Kathleen Gingerelli at kgingerelli@msn.com.

Saturday, November 11, 2017

Central Minnesota Ataxia Support Group Meeting

10am - 12pm at 1038 Sunset Ridge Rd, St. Cloud, MN 56303. For more information contact Marsha Binnebose at 320-248-9851 or mbinnebose@hotmail.com.

Saturday, November 11, 2017

North Texas Area Ataxia Support Group Meeting

10am - Noon at the Ben Washington Baptist Church - Rev Jr Sheppard Educational Center, 615 Davis St, Irving, TX 75061. There is lots of parking and it is handicap accessible. The meeting room is in a separate bldg from the church. For more information contact David Henry at cheve11e@sbcglobal.net.

Saturday, November 18, 2017

Arizona Ataxia Support Group Meeting

1pm at Ability 360, 5025 E Washington Street, Phoenix, AZ 85034. For more information contact Mary Fuchs at 480-212-6425 or mary11115@msn.com.

Saturday, November 18, 2017

Boston Ataxia Support Group Meeting

12-3pm at Mass General Hospital in the Yawkey Building - Yawkey 4 room 820, 55 Fruit Street, Boston, MA 02114. There is a garage underneath that building but I find that parking in that garage a bit difficult, it may be easier for people to use the garages in front of the hospital. Parking stickers will be available that can be used to comp the parking price. Stickers are good for max of 4 hours. There will be a light lunch and drinks provided donations are welcome to our Sunshine Fund. Please feel free if you like to bring a sweat. For more information contact John Mauro at john@ataxia.org or 508-736-6084.

Saturday, November 18, 2017

NCASG - Sacramento Area Ataxia Support Group Meeting

1-4pm at Sutter Roseville Medical Center - Meeting Room 8, 1 Medical Plaza Dr, Roseville, CA 95661. We meet on the third Saturday of each month. For more information or to be added to this group's mailing list contact Teresa Bredberg at 916-215-2686 or tbredberg@sbcglobal.net.

Saturday, November 18, 2017

Nebraska Ataxia Support Group Social Outing

Climbing Gym tentatively scheduled. For more information contact Linda Snider at 402-212-3060 or lindasnider@cox.net.

Saturday, November 18, 2017

Tampa Bay Ataxia Support Group Meeting

12:30-3pm at the University of South Florida - Morsani Center, 13330 Laurel Dr #1013, Tampa, FL 33612. For more information contact Darlene Harris msdee004@yahoo.com 813-431-2859 or Linda Farrow at lndfrrw2@gmail.com.

Saturday, November 18, 2017

Twin Cities Ataxia Social Group

The Twin Cities Ataxia Support Group meets once a month. Family and friends of an afflicted individual are always welcome! We meet on the third Saturday of every month at 10:00am for 2 hours in a meeting room at Langton Place which is located on the south side of the road on County Road D roughly four tenths of a mile east of I35W in Roseville at 1910 W. CTY. RD. D., ROSEVILLE, MN 55112. We wanted to provide a central location that it easy to access which is why we picked this place. Please join us, and make new connections! For more information contact Lenore Healey Schultz at 612- 724-3784 or schultz.lenore@yahoo.com.

Friday, December 1, 2017

DC Metro Abilities Expo

December 1-3, 2017
http://www.abilities.com/

Saturday, December 2, 2017

Orange County Ataxia Support Group Holiday Party

Location To Be Announced. For more information contact Cindy DeMint at cindyocataxia@gmail.com.
http://orangecountyataxia.org/

Wednesday, December 6, 2017

Western PA Ataxia Support Group Meeting

7pm at the Bethel Park Community Center, 5151 Park Avenue, Pittsburgh, PA. For more information contact Ed Schwartz at eds@ataxia.org or 724-941-2210.

Friday, December 8, 2017

Alabama Ataxia Support Group Social

Social event at B&A Warehouse in Birmingham, AL. For more information contact Becky Donnelly6132b@aol.com or 205-987-2883.

Saturday, December 9, 2017

Central Minnesota Ataxia Support Group Meeting

10am - 12pm at 1038 Sunset Ridge Rd, St. Cloud, MN 56303. For more information contact Marsha Binnebose at 320-248-9851 or mbinnebose@hotmail.com.

Saturday, December 9, 2017

Greater Atlanta Ataxia Support Group Christmas Potluck

1pm at 328 Mell Ave, Suite B, Atlanta, GA 30307. For more information contact atlantaataxia@gmail.com or 404-822-7451.

Saturday, December 9, 2017

Kansas City Ataxia Support Group Meeting

12-3 pm at the Northeast Library, 6000 Wilson Rd, Kansas City, MO 64123. For more information contact Stephanie Wilkins at 816-623-3318 or sfwilkins@yahoo.com.

Saturday, December 9, 2017

North Texas Area Ataxia Support Group Meeting

10am - Noon at the Ben Washington Baptist Church - Rev Jr Sheppard Educational Center, 615 Davis St, Irving, TX 75061. There is lots of parking and it is handicap accessible. The meeting room is in a separate bldg from the church. For more information contact David Henry at cheve11e@sbcglobal.net.

Wednesday, December 13, 2017

Willamette Valley Ataxia Support Group Meeting - Albany Location

11:30am-1pm at Albany Hospital – 4th Floor Conference Room, 1046 6th Ave SW, Albany, OR 97321. For more information contact Jason Wolfer at wolfer.jason@gmail.com or 503-502-2633.

Saturday, December 16, 2017

NCASG - Sacramento Area Ataxia Support Group Meeting

1-4pm at Sutter Roseville Medical Center - Meeting Room 8, 1 Medical Plaza Dr, Roseville, CA 95661. We meet on the third Saturday of each month. For more information or to be added to this group's mailing list contact Teresa Bredberg at 916-215-2686 or tbredberg@sbcglobal.net.

Saturday, December 16, 2017

Nebraska Ataxia Support Group Social Outing

11am-1pm at Creighton Prep High School, 7400 Western Ave, Omaha, NE. Guest speaker TBA. For more information contact Linda Snider at 402-212-3060 or lindasnider@cox.net.

Saturday, December 16, 2017

Twin Cities Ataxia Social Group

The Twin Cities Ataxia Support Group meets once a month. Family and friends of an afflicted individual are always welcome! We meet on the third Saturday of every month at 10:00am for 2 hours in a meeting room at Langton Place which is located on the south side of the road on County Road D roughly four tenths of a mile east of I35W in Roseville at 1910 W. CTY. RD. D., ROSEVILLE, MN 55112. We wanted to provide a central location that it easy to access which is why we picked this place. Please join us, and make new connections! For more information contact Lenore Healey Schultz at 612- 724-3784 or schultz.lenore@yahoo.com.

Saturday, January 20, 2018

Denver Area Ataxia Support Group Meeting

1-4pm at the Swedish Medical Center, 501 E Hampden Ave, Englewood, CO 80113 - 2nd floor Conference Rooms. For more information or to be added to this group's mailing list contact Charlotte DePew at 720-379-6887 or cldepew77@comcast.net.

Monday, April 2, 2018

7th Ataxia Investigators Meeting (AIM)

April 2-5, 2018 Philadelphia, PA

Thursday, April 5, 2018

61st NAF Annual Ataxia Conference (AAC)

April 5-6, 2018 Philadelphia, PA

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