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Current Replies for how do you see yourself?
 
  how do you see yourself? (katie rose)
Posted: 1:28:31 am on 1/31/2010 Modified: Never
 
hi, i have an interesting question/discussion with all you ataxia patients, i feel depressed and felt like a victim,like why me? but today i have sort of a new revelation, we got this because we are special and can handle such big challenge, it is so hard not just daily but hourly and minutely.the biggest activity is going to bathroom, that is not easy, sometimes, i wet my pant because i am not fast enough, what do you think? i want to change my perception of me. tell me how do you see you? may be i can learn to see myself differently. i am tired of feeling sad all the time, i want to live and to laugh despite of this challenge.
 
  Re: how do you see yourself? (Spinner)
Posted: 10:08:05 pm on 1/31/2010 Modified: Never
 
Hum ... for me it's my 'Focus' - Jesus is my 'Rock' (it sounds so simple) So as for your question, I don't see me - I see ... others!
  Re: how do you see yourself? (brotherman)
Posted: 10:03:06 am on 2/1/2010 Modified: Never
 
Anyone who frequents this page knows the embarassment and humiliation of having SCA. You feel alone, isolated, misunderstood and victimized. Everyday and every minute you want to sit down and cry. But when you're done crying you are still gonna have SCA. The only way to deal with this is to develop some rules that I started on an Aussie SCA blog called Living with SCA. For you, one rule would be to know when to start for the bathroom to avoid accidents. Knowing to stop before turning to look down store aisles or into store windows. Standing and loosening up your stiff legs before you walk off. Turning on the bathroom light before you go in so you don't fall over the toilet in the dark. There are things you can and can't eat due to aspiration and coughing. Make a list and stick to it. Good luck with your own list.

Brotherman
 


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