Welcome to the National Ataxia Foundation

 


“Helping Today for a Cure Tomorrow”
The 2016 NAF Annual Membership Drive

Membership plays a crucial role in sustaining NAF’s ability to continue to provide meaningful programs and services for Ataxia families. As a member, you provide those with Ataxia a better life today and hope for a brighter tomorrow. NAF is a membership supported nonprofit organization dedicated to serving Ataxia families. We are grateful for the support of our members and welcome others to also join.

As a thank you for being a valued member, you will receive discounts in attending the next Annual Ataxia Conference as well as a subscription to the NAF’s in-depth quarterly Ataxia news publication, Generations.

Be part of the future…become a member today! Please ask your friends, family, co-workers, and neighbors to also become members. Thank you!

Become A Member
Letter From the President
Recurring Gift Membership


 


Charity Navigator Awards NAF Four-Star Rating

Charity Navigator, America’s premier charity evaluator, has announced that the National Ataxia Foundation received a four out of four star rating. This is the fourth consecutive year NAF has received this exceptional four-star rating. Charity Navigator awards this four-star rating to only 1 in 4 organizations of the thousands of organizations they review annually and only 1 in 10 charities receive the four-star rating for four or more consecutive years.

“NAF’s coveted 4-star rating puts it in a very select group of high-performing charities,” according to Michael Thatcher, President & CEO of Charity Navigator. “Out of the thousands of nonprofits Charity Navigator evaluates, only one out of four earns 4 stars -- a rating that demands rigor, responsibility and commitment to openness. NAF’s supporters should feel much more confident that their hard-earned dollars are being used efficiently and responsibly when it acquires such a high rating.”


 


Member Stories

NAF would like to invite members to share their story to let others know that they are not alone and increase Ataxia awareness. NAF would like to extend a huge thank you to our members that have so generously shared their story. Share your member story by email to naf@ataxia.org

“I think the first time I realized something was different about my dad was when he was forced to quit his job. I was 6 years old. Over the next few years, it became clear that some sort of illness was impacting my father’s life, later I found it to be called spinocerebellar ataxia. He started using a walker and eventually my brothers and I had to push him around in a wheelchair. Despite the disease that was changing my father’s life, he continued to be an inspiration and role model to me. My dad passed away when I was 15 years old. He didn’t give up without a fight and never lost sight of what made life great, despite the many reasons why it wasn’t.

Two years after my father’s death, I was tasked with volunteering in a local fundraiser as part of the requirements for my health class. Thinking back to my dad’s legacy, and with the help of a friend, I seized the opportunity to start a new fundraiser, Walk for Dave, in memory of my father. To date, we have raised over $18,000 for research to find a cure and have a 4th Walk planned for this August. I am passionate about supporting the National Ataxia Foundation because I know it’s a way to continue my dad’s legacy.

With the recent diagnosis of the same disease of my younger brother, I am more determined than ever to stay positive and find a cure to spinocerebellar ataxia. I will never let the reasons to be negative in my life outweigh the reasons to stay positive. It’s what my dad taught me, and I will never let him down because he never let me down.” (Full Story)


 


2016 NAF Award Recipients

Congratulations to you all!

 Michael Cammer</a>  Jane Jaffe
 Michael Cammer
(Video)
 Jane Jaffe
(Video)
 Charlotte DePew  Harry Orr PhD
 Charlotte DePew
(Video)
 Harry Orr PhD
(Video)


 

Ataxia Research Studies Awarded
Funding for FY 2016


The National Ataxia Foundation (NAF) is pleased to announce that 20 promising ataxia research studies from the United States, Italy, Canada, United Kingdom, France and Portugal  were awarded funding at the December 2015 NAF Board of Directors meeting for fiscal year 2016.

A listing and summaries of these studies are now available on the Foundation’s web site: Here...