Welcome to the National Ataxia Foundation

 

CONFERENCE REGISTRATION IS OPEN

The National Ataxia Foundation (NAF) Board of Directors and the National Ataxia Foundation Southcentral Region United States Ataxia Leadership would like to welcome you to the 60th Annual Ataxia Conference (AAC). Please join us at the Grand Hyatt San Antonio to learn, share, network, have fun, and enjoy the sites. Hotel Reservations for all room types and Conference Registration begin on November 2. Please see the 2017 AAC Information Page for further details. See you in San Antonio!



 

Live Webcast

Join the live webcast of the

2017 NAF Annual Ataxia Conference (AAC) General Sessions!

Friday, March 10,
9 a.m. - 12:30 p.m. and 1 p.m. - 2 p.m. Central Time

Slower internet connections may cause lag.
Turn on your sound for audio.

http://www.ustream.tv/channel/sXJXK4asHL2

 

 

The NEW monthly NAF e-Newsletter is here!

The e-Newsletter will provide you with the latest information from the NAF. It is not intended to be long in detail, but give you a “taste” of what’s going on here at the NAF office in Minneapolis. We will provide links for you to “click on” for more information on topics we hope you will find interesting. To receive the E-newsletter sign up for NAF E-blasts at http://www.ataxia.org/contact/contact-form.aspx#OCF.

If you have previously opted out of receiving emails from the NAF through Constant Contact you can opt back into receiving emails from NAF through Constant Contact, but you will need to complete this form http://tinyurl.com/j2tsqon.

 

Research Funding Has Been Approved!

After a successful research drive and the generous $200,000 matching gift, the National Ataxia Foundation with the support of the Ataxia community will fund nearly 1.1 million dollars worth of research that will find answers in 2017. Researchers from institutions in the United States, Australia, Portugal, Germany, The Netherlands, and Canada were awarded funding for their Ataxia research studies. The 27 research projects include the launch of a US-Europe neuroimaging partnership, an intensive home based speech rehabilitation study, understanding of newly discovered genes, the National Ataxia Database and many other studies focus on finding answers to the very challenging disease - Ataxia. The lay summaries of these projects will be posted on the National Ataxia Foundation website soon and printed in the Spring issue of Generations. "...money buys research and research finds ANSWERS."

 

Ataxia Research Prepares for Clinical Trials


The NAF Board of Directors approved funding of a Clinical Research Consortium for Ataxia. This program will provide financial support for one year to academic medical centers across the United States. These sites will develop the tools necessary to perform clinical Ataxia research. Initial funding was provided by a generous donation from the Gordon and Marilyn Macklin Foundation. This is a significant time in Ataxia research and the National Ataxia Foundation will continue to support these important endeavors that will find treatments and a cure. For more information visit http://www.ataxia.org/research/clinical-research-consortium.aspx.


 


Member Stories

NAF would like to invite members to share their story to let others know that they are not alone and increase Ataxia awareness. NAF would like to extend a huge thank you to our members that have so generously shared their story. Share your member story by email to naf@ataxia.org. Member Stories can be read on the Member Stories Page.