Welcome to the National Ataxia Foundation


“Your Team, One Dream, A Cure”

As a member you help provide those with ataxia a better life and hope for a brighter tomorrow. NAF is a membership based nonprofit organization dedicated to serving ataxia families. We are grateful for the support of our members and welcome others to also join.

As a thank you for being a valued member, you will receive discounts in attending the annual membership meeting as well as a subscription to the NAF’s in-depth quarterly ataxia news publication, Generations.

Be Part of Team NAF…become a member today! Please ask your friends, family, co-workers, and neighbors to also become a member.  Thank you!

Become A Member
Letter From The President
Recurring Gift Membership


New: Ataxia Research Studies
Awarded Funding for FY 2015

The National Ataxia Foundation (NAF) is pleased to announce that 23 promising ataxia research studies from the United States, Belgium, Mexico, United Kingdom, Portugal, and Germany were awarded funding at the December 2014 NAF Board of Directors meeting for fiscal year 2015. With the funding of these 23 research studies and the previous research studies funded earlier in 2014, nearly one million dollars were committed for ataxia research. Click here for more information.



 William "Bill" Sweeney  The National Ataxia Foundation welcomes William “Bill” Sweeney as the newly elected President of the National Ataxia Foundation. Bill joined the NAF Board of Directors in 2007, became a member of the Executive Committee in 2009, served as Treasurer from 2012-2015 and was elected as President in March 2015. Bill has also been active in the Twin Cities Support Group and helped start the Twin Cities Walk, Stroll ‘n Roll in 2010.


2015 NAF Award Recipients

At the 2015 Annual Membership Meeting (AMM) the National Ataxia Foundation recognized the numerous fundraising events that were conducted in 2014. “I Am The Strength Behind Ataxia” awards were presented to Dr. Brent Fogel, The DeMint Family, and Chadapangu Chandu Prasad George. Dr. Susan Perlman received an Outstanding Achievement award for her exceptional care to ataxia patients over the last 35 years and Dr. Lawrence Schut received a Lifetime Achievement award for his exceptional care to ataxia patients for more than 50 years.





The National Ataxia Foundation published a booklet of stories for a 2011 medical conference that provided "Faces of Childhood Ataxia" to doctors and researchers. The booklet became very popular for other venues and audiences and was reprinted once. Now we would like to update the booklet and add new stories of children with ataxia.

To do this, we need the help of those who have a young child or children with ataxia. The stories of the challenges that you and your child struggle with daily will provide the personal stories of children with ataxia. We will also include stories in memory of children who have lost their battle with ataxia. For more information, please contact Sue Hagen at susan@ataxia.org