Legislative Issues
Legislative issues can have an impact on both a local and national level. It is important to know the issues and to know who to contact on these issues. The following links will provide you with information regarding government officials, federal budget process, and how each and every one of us can make a difference.
- NORD’s advocacy initiatives for the Rare Disease Community
- Encourage your member of Congress to join the Rare Disease Congressional Caucus
- Genetic Alliance – Call to action on current policy issues related to the genetics community.
- American Brain Coalition's Advocacy goal: to alleviate the burden of brain disease.
Americans with Disabilities Act
Although the Americans with Disabilities Act (ADA) became federal law in 1992, many of us have little or no understanding of what it is. Click here to learn more about the details of the ADA.

