It’s not magic, it’s
Greetings! Bill Nye here. Thanks for coming to check out the National Ataxia Foundation. The word “ataxia” comes from Greek; it means “lack of order.” I think of it as “no-taxi,” no getting around easily. There are many forms of Ataxia. They are degenerative conditions of the nervous system that lead to loss of coordination and muscle control. In my family, our form of Ataxia causes difficulty walking and trouble with fine-motor movements. I am hopeful that by spreading awareness, we can come together to help further research efforts to better understand it. Please take some time to click around and learn more. Thank you for your support!
Check out my videos about Ataxia! Sign up to be a Bill Nye Ataxia Advocate and stay up-to-date on my activities. By spreading awareness, we can accelerate research efforts. The search for a cure begins with but a single step.
Ataxia is a rare brain disease that affects a person’s ability to walk, talk, and use fine motor skills.
For people with Ataxia, degeneration in the cerebellum causes trouble coordinating movement. Many symptoms of Ataxia mimic those of being drunk, such as slurred speech, stumbling, falling, and incoordination. Symptoms worsen over time and may eventually result in the need for mobility devices, such as walkers or wheelchairs.
Hereditary Ataxias are passed on from parents to their children, oftentimes affecting many generations of the same family. Bill Nye’s family tree has some instances where Ataxia affects many siblings, and others where it skips a generation entirely.
The National Ataxia Foundation (NAF) was established in 1957 to help persons with Ataxia and their families. Our mission is to accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia. NAF’s vision of a world without Ataxia will be accomplished through our primary programs of funding Ataxia research, providing vital programs and services for Ataxia families, and partnering with pharmaceutical companies in the search for treatments and a cure. We work closely with the world’s leading Ataxia researchers and clinicians, promoting exchanges of ideas and innovation in Ataxia discovery.
Join a community of individuals and families, including Bill Nye, who are united in the fight against Ataxia. Membership is free.
SCA27b Ataxia Foundation is a 501(c)(3) nonprofit organization devoted to the advocacy of patients with Spinocerebellar Ataxia type-27B (SCA27B). Our mission is to improve the lives of individuals and families affected by SCA27B while promoting research and treatments for Ataxia.
Sign up to stay up-to-date on Bill’s activities in the fight against Ataxia. Let’s beat this thing!
