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Audience: Healthcare Provider Educator

New stem cell model for SCA1

Posted on September 24, 2026

Written by Jamie Hyde   Edited by Marija Cvetanovic, PhD “A new matched stem cell model gives SCA1 researchers a clearer way to study disease mechanisms and test potential treatments.” Using Read More…


SPG4

Posted on June 3, 2026

Spastic Paraplegia Type 4 (SPG4) A collection of resources for individuals and families affected by Spastic paraplegia type 4 (SPG4). WEBINARS RESEARCH INFORMATION RESEARCH NEWS BECOME A MEMBER >> Spastic paraplegia type 4 (SPG4) is caused by Read More…


SCA17

Posted on May 29, 2026

SCA17 A collection of resources for individuals and families affected by SCA17. WEBINARS RESEARCH INFORMATION RESEARCH NEWS BECOME A MEMBER >> Spinocerebellar Ataxia type 17 (SCA17) is caused by a genetic mutation Read More…


SCA35

Posted on February 8, 2026

SCA35 A collection of resources for individuals and families affected by Spinocerebellar Ataxia Type 35 (SCA35). WEBINARS RESEARCH INFORMATION RESEARCH NEWS BECOME A MEMBER >> Spinocerebellar Ataxia type 35 (SCA35) is caused Read More…


Unknown Ataxia with Family History

Posted on February 8, 2026

Unknown Ataxia with Family History A collection of resources for individuals and families affected by Unknown Ataxia with Family History. WEBINARS RESEARCH INFORMATION RESEARCH NEWS BECOME A MEMBER >> People affected by Read More…


SCAR20

Posted on February 8, 2026

SCAR20 A collection of resources for individuals and families affected by Autosomal Recessive Spinocerebellar Ataxia 20 (SCAR20). WEBINARS RESEARCH INFORMATION RESEARCH NEWS BECOME A MEMBER >> Autosomal Recessive Spinocerebellar Ataxia 20 (SCAR20) is Read More…


SCA28

Posted on August 29, 2025

SCA28 A collection of resources for individuals and families affected by Spinocerebellar Ataxia type 28. WEBINARS RESEARCH INFORMATION RESEARCH NEWS BECOME A MEMBER >> Spinocerebellar Ataxia type 28 (SCA28) and Read More…


SPAX5

Posted on August 29, 2025

SPAX5 A collection of resources for individuals and families affected by Autosomal Recessive Spastic Ataxia type 5 (SPAX5). WEBINARS RESEARCH INFORMATION RESEARCH NEWS BECOME A MEMBER >> Autosomal Recessive Spastic Read More…


Let’s Find a Way

Posted on August 13, 2025

It has been more than 30 years since the discovery of the first gene for Spinocerebellar Ataxia (SCA), a group of rare, progressively debilitating neurodegenerative diseases. It has been even Read More…


NAF

Posted on July 3, 2025

NAF Initiatives Advocacy efforts that we are currently leading or participating in. ADVOCACY ADVOCACY TOOLS LEGISLATIVE ISSUES UPCOMING EVENTS JOIN US >> Click on the title of any initiative to Read More…


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