Join our “Ask the Ataxia Expert” session with Dr. Susan Perlman on May 12th at 11:30 AM CDT.  ADD TO CALENDAR


2020 NAF Funded Research

We’re excited to announce that NAF will award $940,000 in Ataxia research grants this year! NAF’s Board of Directors approved funding for 25 Ataxia research grants in 2020. Nearly 60 applications were reviewed by a team of the world’s top Ataxia researchers. They selected the highest quality Ataxia research grant applications for Read More…

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NAF Office is Working Remote

NAF staff will be working remotely until further notice, doing our small part in slowing the spread of the COVID-19 virus. What this means is business as usual, just remote: In-person meetings for our staff (external and internal) will be rescheduled as phone/video calls. NAF staff will work from their Read More…

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Reflections On a Challenging Week

Author: Andrew Rosen, Executive Director Hello Ataxia Community: As I sit at my desk on this Friday afternoon, I am amazed that it was less than one week ago that NAF, on the strong and wise counsel of our Medical and Research Advisory Board (MRAB), made the difficult decision to Read More…

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2020 AAC Cancelled Due to Coronavirus Concerns

We regrettably announce that the 2020 Annual Ataxia Conference has been cancelled due to evolving concerns over the fast moving situation with coronavirus COVID-19. We want everyone to know that this decision was not made lightly. The health and safety of our Ataxia community is our main priority. We did Read More…

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2020 JMB is Bigger Than Ever

Last year, Mike De Rosa Sr. and Ed Brand started the Joint Mission Bataan to Cure Ataxia (JMB). They marched more than 26 miles through the desert to support NAF’s mission and raise awareness about Ataxia. Together, they raised more than $35,000. This year, we had 31 representatives step up across the country Read More…

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How to Qualify for Social Security Disability Benefits with Ataxia

Guest Author: Rachel Gaffney, Outreach Specialist at Disability Benefits Help If you have Ataxia, you may experience a variety of challenges. Ataxia can be disabling, and if you are unable to work and earn a living because of the severity of the condition, you may qualify for disability benefits from the Social Read More…

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