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2022 United Against Ataxia Hill Day

September 21, 2022

We invite you to join NAF and FARA in raising awareness about Ataxia and supporting legislation that directly impacts our communities.

The fourth United Against Ataxia Hill Day will be held on Wednesday, September 21, 2022. It will be a virtual event. Every US resident can participate. There is no cost or need to travel. You can speak to your Congressional Members right from the comfort of your home!

Information about how to get involved will be announced at a later date.

What Happens at Hill Day?

A group of advocates will meet with Congressional Members to discuss issues important to the Ataxia community. This year’s topics will include:

  1. A Senate Resolution to declare September 25th as National Ataxia Awareness Day
  2. The addition of “Hereditary Ataxia” into the Congressionally Directed Medical Research Program (CDMRP)

 

 

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Date:
September 21, 2022