RNE’s mission is to bring together New England patients, families and providers touched by rare and complex disorders. We offer educational opportunities, create awareness of available resources, and build foundations for support to improve patient quality of life.

There will be a wide range of speakers covering topics such as a review of diagnostic tools for rare diseases and what to expect from them; the unique aspects of rare disease trials, various sources of information about trials and the importance of clinical trials; navigating the school system with a rare disease; advocating for your child in the health care setting managing a complex disease in a complex health system, and much more!

Conference fees cover cost of Breakfast, Lunch and two snacks.

For more information on the event, to review agenda, or for an event flyer please visit the 2019 conference webpage