- This event has passed.
Rare On the Road: Rare Disease Leadership Tour – Boston, MA
March 30, 2019 @ 8:00 am - 5:00 pm
The EveryLife Foundation and Global Genes are excited to partner for RARE on the Road, a Rare Disease Leadership Tour to bring critical education and insights to rare disease patients, caregivers and other advocates. We are uniting to build and activate the rare disease community at the local level. Whether you’re new to the rare disease community or a “seasoned veteran” this workshop will benefit you!