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Virtual United Against Ataxia Hill Day

September 29 @ 8:00 am - 5:00 pm

We invite you to join NAF and FARA in raising awareness about Ataxia and supporting legislation that directly impacts our communities.

The third United Against Ataxia Hill Day will be held on Wednesday, September 29, 2021. It will be a virtual event. Every US resident can participate. There is no cost or need to travel. You can speak to your Congressional Members right from the comfort of your home!

What Happens at Hill Day?

A group of advocates will meet with Congressional Members to discuss issues important to the Ataxia community. This year’s topics will include:

  1. A Senate Resolution to declare September 25th as National Ataxia Awareness Day (S.Res. 339)
  2. The addition of “Hereditary Ataxia” into the Congressionally Directed Medical Research Program (CDMRP)
  3. Accelerating Access to Critical Therapies (ACT) for ALS (H.R. 3537/S. 1813)
United Against Ataxia 2021

Your voice is needed to pass these important initiatives! No experience needed! NAF and FARA will be running a Hill Day Advocacy training webinar prior to the event. Access information will be sent to registrants at a later date.

Registration for this event will close on September 20, 2021. Join us! Register today!

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Details

Date:
September 29
Time:
8:00 am - 5:00 pm