Calendar of Events
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1 event,
VIRTUAL Ataxia Resources and Discussion Group Meeting
VIRTUAL Ataxia Resources and Discussion Group Meeting
EASTERN TIME Topic: Publishing experience/tips Speaker: Jay Armstrong Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09 For more information, contact Susan Stiles at sstiles12@gmail.com
0 events,
1 event,
VIRTUAL JHU Music Therapy Session
VIRTUAL JHU Music Therapy Session
EASTERN TIME Presented by: Emily Mahoney, MMT, LGPC, LPMT, MT-BC Register to attend here For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
0 events,
2 events,
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
1 event,
IN-PERSON North Carolina Triangle Ataxia Support Group Meeting
IN-PERSON North Carolina Triangle Ataxia Support Group Meeting
EASTERN TIME Date and Time: Saturday September 2nd @ 11-1 Location: Lake Wheeler Park - Magnolia shelter 6404 Lake Wheeler Road Raleigh, NC 27603 The Magnolia shelter is the covered picnic area right off of the main parking lot. It is a covered shelter with a few tables. There is no electricity. It is located
0 events,
2 events,
VIRTUAL Ataxia Resources and Discussion Group Meeting
VIRTUAL Ataxia Resources and Discussion Group Meeting
EASTERN TIME Topic: Publishing experience/tips; celebrating September birthdays Speaker: Tammy Schulman Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09 For more information, contact Susan Stiles at sstiles12@gmail.com
VIRTUAL Boston Ataxia Support Group Evening Chat
VIRTUAL Boston Ataxia Support Group Evening Chat
We welcome anyone to these meetings, regardless of location. Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343
1 event,
All About SCA7
All About SCA7
Do you or a loved one have SCA7? Join our webinar to learn about the mechanisms of the disease, the diagnostic journey, and what to expect for clinical care with this diagnosis. Register Here!
0 events,
0 events,
2 events,
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
5 events,
VIRTUAL North Texas Ataxia Support Group Meeting
VIRTUAL North Texas Ataxia Support Group Meeting
For meeting access information contact: David Henry Jr 817-739-2886 (contact by email preferred) spinnerjr884@gmail.com Join our Facebook Group!
VIRTUAL St. Louis Ataxia Support Group Meeting
VIRTUAL St. Louis Ataxia Support Group Meeting
We meet at 10:30-12:30 Central Time on the 2nd Saturday of every month. Zoom link: https://us02web.zoom.us/j/9247613557 For meeting access information or to be added to the mailing list for this group please contact: Shannon Dunphy Lazo at 202-306-2738 or shan_d@hotmail.com For more information, see our Facebook Group!
VIRTUAL Kansas City Ataxia Support Group Meeting
VIRTUAL Kansas City Ataxia Support Group Meeting
Join Zoom Meeting https://us02web.zoom.us/j/6185650820?pwd=RXlPMmpCc0tXTmxydC9RcUF3RUxOZz09 Meeting ID: 618 565 0820 Passcode: 8nsFHF For more information join our mailing list by contacting Stephanie Wilkins at Phone #: 816-623-3318 | Email: sfwilkins@yahoo.com Join our Facebook Group: https://www.facebook.com/groups/208618772974351/
3 events,
VIRTUAL Cincinnati Ataxia Support Group Meeting
VIRTUAL Cincinnati Ataxia Support Group Meeting
EASTERN TIME Join Zoom Meetinghttps://us02web.zoom.us/j/81955190420?pwd=dGpGM1FkaXNpSzNXTG4weHA3SXVNUT09 For more information or to be added to the mailing list for this group please contact: William Vetter at (513) 310-7530 or wjuniorvet@gmail.com Join our Facebook Group: https://www.facebook.com/CincinnatiAtaxiaSupportGroup/
VIRTUAL Delaware Ataxia Support Group Meeting
VIRTUAL Delaware Ataxia Support Group Meeting
EASTERN TIME Join Zoom Meeting https://us06web.zoom.us/j/85360518033?pwd=M3dyMnFwdVMrMFpBSythRWRXTTFyUT09 Meeting ID: 853 6051 8033 Passcode: 281636 For more information contact Dawn Lentz at Email: silvercat2800@hotmail.com
1 event,
VIRTUAL Ataxia Resources and Discussion Group Meeting
VIRTUAL Ataxia Resources and Discussion Group Meeting
EASTERN TIME Topic: Genealogy/ancestry.com Speaker: N/A Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09 For more information, contact Susan Stiles at sstiles12@gmail.com
1 event,
VIRTUAL JHU Ataxia Support Group Meeting
VIRTUAL JHU Ataxia Support Group Meeting
EASTERN TIME Zoom link: https://jhjhm.zoom.us/j/98422128138 For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
1 event,
VIRTUAL Northwestern Wisconsin Ataxia Support Group Meeting
VIRTUAL Northwestern Wisconsin Ataxia Support Group Meeting
CENTRAL TIME Join Zoom Meeting https://us04web.zoom.us/j/9381046547?pwd=RFXdz5YFLD869Y1o7s0r7WzKLYssXE.1 Meeting ID: 938 104 6547 Passcode: W28LHv For more information or to be added to the group’s mailing list please contact Richard Jones at (715) 639-2324 or jones1957@hotmail.com. We look forward to seeing you!
1 event,
VIRTUAL Tri-State Ataxia Support Group Meeting
VIRTUAL Tri-State Ataxia Support Group Meeting
EASTERN TIME For meeting access information, please contact Kathleen Gingerelli at kgingerelli@msn.com | 201-681-7639
3 events,
VIRTUAL Connecticut Ataxia Support Group Meeting
VIRTUAL Connecticut Ataxia Support Group Meeting
We meet on the third Friday of the month at 11:30am Eastern Time. For meeting access information contact Susan Masse at: 860-528-1875 or Smasse1875@gmail.com
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
8 events,
VIRTUAL Northwestern Washington Yetis Ataxia Support Group Meeting
VIRTUAL Northwestern Washington Yetis Ataxia Support Group Meeting
Google Meets Link: https://meet.google.com/wms-koqx-evb Contact Instructor Christina Newell at christinanwwasg@gmail.com with questions.
VIRTUAL Boston Ataxia Support Group Meeting
VIRTUAL Boston Ataxia Support Group Meeting
We welcome anyone to these meetings, regardless of location. Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343
IN-PERSON Twin Cities Support Group Meeting
IN-PERSON Twin Cities Support Group Meeting
CENTRAL TIME Location: Harmony Gardens in Maplewood. https://www.harmonygardenssenior.org/ For access information join our Facebook Group https://www.facebook.com/groups/103233603504142/ For other questions contact Lenore Healey Schultz at Phone #: 612-724-3784 | E-mail: schultz.lenore@yahoo.com
Chicago Walk N’ Roll to Cure Ataxia
Chicago Walk N’ Roll to Cure Ataxia
Join us at Hidden Lake Forest Preserve Downers Grove, IL 60515 More information
IN-PERSON Nebraska Ataxia Support Group Social Event
IN-PERSON Nebraska Ataxia Support Group Social Event
CENTRAL TIME Adventures at the Homestead Homestead National Monument, 8523 W State Highway 4, Beatrice, NE 68310 RSVP required by Monday, Sep 11, 2023 RSVP email – info@nebraskaataxia.org or phone number 402-979-6331 For information, visit our website: https://nebraskaataxia.org/events/ For more information contact: Theresa Nelson, 402-979-6331, theresa.nelson@nebraskaataxia.org
VIRTUA African Americans With Ataxia Support Group Meeting
VIRTUA African Americans With Ataxia Support Group Meeting
EASTERN TIME For meeting access information, contact the support group leaders or join our Facebook Group: https://www.facebook.com/groups/501238100417901/ For more information about our group contact Letitia Diggs at Letitia.diggs@iCloud.com | 202-386-8289 or Veronica Denis at aaataxia@gmail.com
VIRTUAL Wisconsin Ataxia Warriors Support Group Meeting
VIRTUAL Wisconsin Ataxia Warriors Support Group Meeting
CENTRAL TIME For information and virtual access, contact Greg Forster at ForGreg77@protonmail.com
VIRTUAL Treasure Coast Ataxia Support Group Meeting
VIRTUAL Treasure Coast Ataxia Support Group Meeting
EASTERN TIME Join Zoom Meeting https://us02web.zoom.us/j/84872580415?pwd=R09hRnNpVVNPeHhUa0tPYXZXVnJYQT09 Meeting ID: 848 7258 0415 Passcode: 429848 For more information contact Lisa Cole at 772-370-3041 | lisacoleataxia@gmail.com Join our Facebook Group!
1 event,
IN-PERSON Cincinnati Ataxia Support Group Meeting
IN-PERSON Cincinnati Ataxia Support Group Meeting
EASTERN TIME Meeting Location: Reading Branch Library conference room, 8740 Reading rd., Cincinnati, Ohio. For more information or to be added to the mailing list for this group please contact: William Vetter at (513) 310-7530 or wjuniorvet@gmail.com Join our Facebook Group: https://www.facebook.com/CincinnatiAtaxiaSupportGroup/
3 events,
Research and Treatment Development for SCA7
Research and Treatment Development for SCA7
Do you or a loved one have a SCA7? Our expert will teach us how SCA7 is studied and give an overview of the current state of research and drug development for the disease. Register Here!
VIRTUAL Ataxia Resources and Discussion Group Meeting
VIRTUAL Ataxia Resources and Discussion Group Meeting
EASTERN TIME Topic: accessiblego.com (accessible hotel booking site) and travel tips Speaker: Patch Epstein Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09 For more information, contact Susan Stiles at sstiles12@gmail.com
VIRTUAL San Diego Ataxia Support Group Meeting
VIRTUAL San Diego Ataxia Support Group Meeting
PACIFIC TIME Join Zoom Meeting https://us02web.zoom.us/j/88047336202?pwd=VUZ3cEt5TjcyYlpmY3M2cHhTYXM4UT09 Meeting ID: 880 4733 6202 Passcode: 815007 For meeting information or questions, reach out to Group Leader: Pamela Kahn at familykahn@cox.net (or call 760-855-0487)
0 events,
1 event,
VIRTUAL Canada Ataxia Support Group Meeting
VIRTUAL Canada Ataxia Support Group Meeting
We meet at 7pm Eastern every third Wednesday of the month. For meeting access information Join our Facebook Group: www.facebook.com/groups/1468963499991380/ For more information contact Susan Harding at susangmharding@gmail.com
3 events,
VIRTUAL Richmond Virginia Ataxia Support Group Meeting
VIRTUAL Richmond Virginia Ataxia Support Group Meeting
EASTERN TIME For more information or to join this group’s mailing list contact Karen Russell at Phone #: 804-543-8707 | Email: klrataxia@gmail.com
VIRTUAL JHU Thrive Together on Thursdays Wellness Series Session 1
VIRTUAL JHU Thrive Together on Thursdays Wellness Series Session 1
EASTERN TIME Thrive Together on Thursdays Wellness Series Goal: Provide ataxia patients with education, information, and resources that will help individuals positively manage their condition and improve their overall quality of life 1:00 pm -1:10 pm Welcome and Program overview by Melissa Egerton, MS. Johns Hopkins Ataxia Center Health Educator https://jhjhm.zoom.us/meeting/register/tJIqduGgrz0tGNKOq28KckzltVzCCw4jd-1D 1:10 pm
VIRTUAL Spouses and Partners of Loved Ones with Ataxia Support Group Meeting
VIRTUAL Spouses and Partners of Loved Ones with Ataxia Support Group Meeting
EASTERN TIME This group is for spouses and partners without Ataxia who have a spouse or partner with Ataxia. This is our spot to learn from one another, vent, have fun, and discuss topics important to us! For meeting access information join our Facebook Group https://www.facebook.com/groups/AtaxiaSpousesAndPartners/. For additional information about the group contact Dana Mauro
2 events,
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
4 events,
San Diego Walk N’ Roll to Cure Ataxia
San Diego Walk N’ Roll to Cure Ataxia
Join us for the First San Diego Walk N' Roll to Cure Ataxia. We hope you can join us. For more information visit; www.ataxia.org/WalkSanDiego
Minnesota Walk N’ Roll to Cure Ataxia
Minnesota Walk N’ Roll to Cure Ataxia
Join us for the MN Walk N' Roll to Cure Ataxia Questions? Contact: Jon Wegman at jon@ataxia.org or 763-231-2747
0 events,
3 events,
International Ataxia Awareness Day (IAAD)
International Ataxia Awareness Day (IAAD) is on September 25th of each year. It is a coordinated effort from individuals and Ataxia organizations worldwide to help shed light on this rare disease. NAF is committed to leading the way in this outreach effort – but we need your help! We encourage individuals and disease organizations to
VIRTUAL Ataxia Resources and Discussion Group Meeting
VIRTUAL Ataxia Resources and Discussion Group Meeting
EASTERN TIME Topic: Celebrating International Ataxia Awareness Day Speaker: Lori Shogren, NAF Programs Director Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09 For more information, contact Susan Stiles at sstiles12@gmail.com
PrepRARE Webinar: All about Imaging: CT, MRI, and PET
PrepRARE Webinar: All about Imaging: CT, MRI, and PET
In this session, we will learn about different imaging techniques used in ataxia research and clinical care. Dr. Ian Harding from Monash University will discuss three different kinds of imaging methods: MRI, CT, and PET. We will learn about how each technique works and what information can be learned from these techniques. We’ll also discuss
1 event,
VIRTUAL Lower Michigan Ataxia Support Group Meeting
VIRTUAL Lower Michigan Ataxia Support Group Meeting
EASTERN TIME Zoom link: https://us06web.zoom.us/j/85747241562?pwd=M0JJV2tHM1g3cGs3TjJ3YlpnRWJMQT09 For more information, email Brenda Cavanaugh at bkjgcavanaugh@gmail.com Don't forget to join our facebook group! https://www.facebook.com/groups/900105314524248
1 event,
Science Showcase Feature Matt Scaglione, PhD
Science Showcase Feature Matt Scaglione, PhD
NAF Science Showcase brings together esteemed researchers, clinicians, and industry partners in an intellectual exchange of Ataxia insights. The Ataxia community is invited to observe these captivating discussions for unique insights into the advancements, methodologies, and findings that are shaping the landscape of Ataxia research. There will be no Q&A from the general public. Our
1 event,
VIRTUAL JHU Thrive Together on Thursdays Wellness Series Session 2
VIRTUAL JHU Thrive Together on Thursdays Wellness Series Session 2
EASTERN TIME Thrive Together on Thursdays Wellness Series Goal: Provide ataxia patients with education, information, and resources that will help individuals positively manage their condition and improve their overall quality of life 1:00 pm-2:00 pm “Learn how to adopt healthy exercise habits developing SMART goals” presented by Melissa Egerton, MS, and Jennifer Millar, PT,
5 events,
IN-PERSON Hampton Roads and Richmond Ataxia Support Groups Outing
IN-PERSON Hampton Roads and Richmond Ataxia Support Groups Outing
EASTERN TIME Governor's Mansion Tour - We will meet at the ticket booth For more information contact Karen Russell at Phone #: 804-543-8707 | Email: klruss@comcast.net or Susan Harris at Phone #: (757) 435-0290 and email: susanharrisvt@icloud.com
VIRTUAL Western North Carolina Ataxia Support Group Meeting
VIRTUAL Western North Carolina Ataxia Support Group Meeting
We hope to see you there! For access information contact: Jodie Kawa at Phone #: 828-384-8414 or Email: jodiekawa@comporium.net\ Maggie Dentremont at Phone #: 828-777-7411 Email: magdalenedentremont@gmail.com Join our Facebook Group: https://www.facebook.com/groups/919905244740316/
VIRTUAL Chicago Ataxia Support Group Meeting
VIRTUAL Chicago Ataxia Support Group Meeting
Join us for our virtual meeting at 2pm Central Time! For the Zoom meeting access information contact Julia Pantoga at Phone #: 414-899-5195 | E-mail: sharpturninstitute@gmail.com
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
1 event,
Atlanta Walk N’ Roll to Cure Ataxia
Atlanta Walk N’ Roll to Cure Ataxia
hank you for your interest in the Atlanta Walk n’ Roll to Cure Ataxia. Participation in the event is FREE. To participate click on the “Become a fundraiser” to set up your personal fundraising page and a personal fundraising goal. Participants/fundraisers are encouraged to personalize their fundraising pages. Then share the link to your personal