Calendar of Events
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1 event,
VIRTUAL JHU Music Therapy Session
VIRTUAL JHU Music Therapy Session
EASTERN TIME Presented by: Emily Mahoney, MMT, LGPC, LPMT, MT-BC The same zoom link will be used for each session, (registration is required). https://jhjhm.zoom.us/meeting/register/tJAtfumurj0qGdTX2xHaOHGp6WqCWsjdvahn For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
0 events,
2 events,
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
2 events,
2023 South Florida-Treasure Coast Walk N’ Roll to Cure Ataxia
2023 South Florida-Treasure Coast Walk N’ Roll to Cure Ataxia
Join us on March 4, 2o23 for the South Florida - Treasure Coast Walk N' Roll! Okeeheelee Park - Micanopy Pavilion 9:00AM - Registration 10:00AM - Walk Begins The First 50 walkers/participants with a donation of $50 or more will get a free t-shirt. For more information visit the South Florida - Treasure Coast Walk
VIRTUAL Self Compassion Through Mindfulness and Drawing Session
VIRTUAL Self Compassion Through Mindfulness and Drawing Session
Mindfulness is identified as a tool for so many with chronic pain, but sitting still and meditating doesn't work for most. I would like to demonstrate and guide participants through more active ways to achieve mindfulness with drawing, and at the same time having an emphasis on being self compassionate through the process. This class
1 event,
VIRTUAL Southeastern Nevada Ataxia Support Group Meeting
VIRTUAL Southeastern Nevada Ataxia Support Group Meeting
PACIFIC TIME Our guest speaker was Cindy De Mint, NAF Board Member and California Support Group Leader. Zoom link: https://us02web.zoom.us/j/81070998520?pwd=RnNDckZBaFhQTGppNEVoRDgwSEM2QT09&fbclid=IwAR3wu5o-LI6kobyBtvhzIPK1aT4bM-6qnEc3vl0wICOB_auEU6OJ0gr9_sY#success For access information contact Howard Silverman at Phone #: 702-290-6724 | Email: Silverman3@cox.net or Kristy Anderson at Email: lasvegasataxia@gmail.com Join our Facebook Group: https://www.facebook.com/groups/2090650814550409/?hc_location=group
2 events,
Webinar: All About Friedreich’s Ataxia
Webinar: All About Friedreich’s Ataxia
Do you or a loved one have Friedreich's Ataxia? Join our webinar to learn about the mechanisms of the disease, the diagnostic journey, and what to expect for clinical care with this diagnosis. Register Here!
VIRTUAL Boston Ataxia Support Group Evening Chat
VIRTUAL Boston Ataxia Support Group Evening Chat
We welcome anyone to these meetings, regardless of location. Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343
0 events,
1 event,
VIRTUAL JHU Music Therapy Session
VIRTUAL JHU Music Therapy Session
EASTERN TIME Presented by: Emily Mahoney, MMT, LGPC, LPMT, MT-BC The same zoom link will be used for each session, (registration is required). https://jhjhm.zoom.us/meeting/register/tJAtfumurj0qGdTX2xHaOHGp6WqCWsjdvahn For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
1 event,
VIRTUAL Tri-State Ataxia Support Group Meeting
VIRTUAL Tri-State Ataxia Support Group Meeting
EASTERN TIME Join Zoom Meeting https://us02web.zoom.us/j/86560836031?pwd=U1JHRDFMaWlSRnpuN1Z2YUNzZTNVUT09 Meeting ID: 865 6083 6031 Passcode: 806346 For meeting access information, please contact Kathleen Gingerelli at kgingerelli@msn.com | 201-681-7639
2 events,
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
5 events,
VIRTUAL North Texas Ataxia Support Group Meeting
VIRTUAL North Texas Ataxia Support Group Meeting
CENTRAL TIME Join Zoom Meeting https://us05web.zoom.us/j/84651399113?pwd=MjRSQXIwRTRWZi83bjErVnRlVVdydz09 Meeting ID: 846 5139 9113 Passcode: vv03hi For meeting more information contact: David Henry Jr 817-739-2886 (contact by email preferred) spinnerjr884@gmail.com Join our Facebook Group!
HYBRID St. Louis Ataxia Support Group Meeting
HYBRID St. Louis Ataxia Support Group Meeting
We meet at 10:30-12:30 Central Time on the 2nd Saturday of every month. Location: Center for Advanced Medicine at the WashU/BJD medical complex Zoom link: https://us02web.zoom.us/j/9247613557 For meeting access information or to be added to the mailing list for this group please contact: Shannon Dunphy Lazo at 202-306-2738 or shan_d@hotmail.com For more information, see our
IN-PERSON Nebraska Ataxia Support Group Social Event
IN-PERSON Nebraska Ataxia Support Group Social Event
CENTRAL TIME The Engagement Party Contact Theresa Nelson, Executive Director, no later than Feb 28, 2023 if you would like to attend the event For complimentary virtual registration, contact theresa.nelson@nebraskaataxia.org and engage virtually RSVP email – info@nebraskaataxia.org or phone number 402-979-6331 For information, visit our website: https://nebraskaataxia.org/events/ For more information contact: Theresa Nelson,
VIRTUAL Treasure Coast Ataxia Support Group Meeting
VIRTUAL Treasure Coast Ataxia Support Group Meeting
EASTERN TIME Join Zoom Meeting https://us02web.zoom.us/j/84984977383?pwd=clliaE0yTER3ZVA3L2Z5RXN0SWdtUT09 Meeting ID: 849 8497 7383 Passcode: 990545 For more information contact Lisa Cole at 772-370-3041 | lisacoleataxia@gmail.com Join our Facebook Group!
VIRTUAL Kansas City Ataxia Support Group Meeting
VIRTUAL Kansas City Ataxia Support Group Meeting
Join Zoom Meeting https://us02web.zoom.us/j/6185650820?pwd=RXlPMmpCc0tXTmxydC9RcUF3RUxOZz09 Meeting ID: 618 565 0820 Passcode: 8nsFHF For more information join our mailing list by contacting Stephanie Wilkins at Phone #: 816-623-3318 | Email: sfwilkins@yahoo.com Join our Facebook Group: https://www.facebook.com/groups/208618772974351/
1 event,
VIRTUAL Delaware Ataxia Support Group Meeting
VIRTUAL Delaware Ataxia Support Group Meeting
EASTERN TIME Join Zoom Meeting https://us06web.zoom.us/j/85360518033?pwd=M3dyMnFwdVMrMFpBSythRWRXTTFyUT09 Meeting ID: 853 6051 8033 Passcode: 281636 For more information contact Dawn Lentz at Email: silvercat2800@hotmail.com
0 events,
3 events,
VIRTUAL Lower Michigan Ataxia Support Group Meeting
VIRTUAL Lower Michigan Ataxia Support Group Meeting
EASTERN TIME Join us for our first meeting! We hope to get some feedback about what members would like to see in this group. We will also briefly discuss the upcoming NAF Ataxia Conference! Join Zoom Meeting https://us02web.zoom.us/j/87140256850?pwd=bzFQRUhyc1g2cmluNXVOWmpGRkZZdz09 Meeting ID: 871 4025 6850 Passcode: 133809 For more information, email Brenda Cavanaugh at bkjgcavanaugh@gmail.com Don't forget
VIRTUAL JHU Ataxia Support Group Meeting
VIRTUAL JHU Ataxia Support Group Meeting
Zoom link: https://jhjhm.zoom.us/j/98422128138 For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
IN-PERSON San Diego Ataxia Support Group Meeting
IN-PERSON San Diego Ataxia Support Group Meeting
Meeting location: Carmel Mountain Ranch Library, 12095 World Trade Drive, San Diego, CA 92128 For meeting information or questions, reach out to Group Leader: Pamela Kahn at familykahn@cox.net (or call 760-855-0487)
2 events,
VIRTUAL JHU Music Therapy Session
VIRTUAL JHU Music Therapy Session
EASTERN TIME Presented by: Emily Mahoney, MMT, LGPC, LPMT, MT-BC The same zoom link will be used for each session, (registration is required). https://jhjhm.zoom.us/meeting/register/tJAtfumurj0qGdTX2xHaOHGp6WqCWsjdvahn For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
VIRTUAL Ontario Ataxia Support Group Meeting
VIRTUAL Ontario Ataxia Support Group Meeting
We meet at 7pm Eastern every third Wednesday of the month. For meeting access information Join our Facebook Group: www.facebook.com/groups/1468963499991380/ For more information contact Susan Harding at susangmharding@gmail.com
1 event,
VIRTUAL Richmond Ataxia Support Group Meeting
VIRTUAL Richmond Ataxia Support Group Meeting
EASTERN TIME For more information or to join this group’s mailing list contact Karen Russell at Phone #: 804-543-8707 | Email: klruss@comcast.net
4 events,
VIRTUAL Connecticut Ataxia Support Group Meeting
VIRTUAL Connecticut Ataxia Support Group Meeting
We meet on the third Friday of the month at 11:30am Eastern Time. For meeting access information contact Susan Masse at: 860-528-1875 or Smasse1875@gmail.com
WEBINAR: Research and Treatment Development for Friedreich’s Ataxia
WEBINAR: Research and Treatment Development for Friedreich’s Ataxia
Do you or a loved one have a Friedreich's Ataxia? Our expert will teach us how FA is studied and give an overview of the current state of research and drug development for the disease. Register HERE!
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
5 events,
VIRTUAL Los Angeles Ataxia Support Group Meeting
VIRTUAL Los Angeles Ataxia Support Group Meeting
PACIFIC TIME Discussion will include medical research updates, upcoming National conference & open round table discussion. For more information, contact Peter Selak at Email: peter.selak47@gmail.com or Phone: (626) 833-0700
VIRTUAL Northwestern Washington Yetis Ataxia Support Group Meeting
VIRTUAL Northwestern Washington Yetis Ataxia Support Group Meeting
Google Meets Link: https://meet.google.com/wms-koqx-evb Contact Instructor Christina Newell at christinanwwasg@gmail.com with questions.
VIRTUAL Boston Ataxia Support Group Meeting
VIRTUAL Boston Ataxia Support Group Meeting
We welcome anyone to these meetings, regardless of location. Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343
VIRTUAL Twin Cities Ataxia Support Group Meeting
VIRTUAL Twin Cities Ataxia Support Group Meeting
For access information join our Facebook Group https://www.facebook.com/groups/103233603504142/ For other questions contact Lenore Healey Schultz at Phone #: 612-724-3784 | E-mail: schultz.lenore@yahoo.com
VIRTUAL Wisconsin Ataxia Warriors Support Group Meeting
VIRTUAL Wisconsin Ataxia Warriors Support Group Meeting
CENTRAL TIME Join Zoom Meeting https://us06web.zoom.us/j/84919580494?pwd=NFZJRUViQ3RENHlwYjZhT2dWaVpEZz09 Meeting ID: 849 1958 0494 Passcode: 009055 For information and virtual access, contact Greg Forster at ForGreg77@protonmail.com
1 event,
VIRTUAL Central Ohio Ataxia Support Group Meeting
VIRTUAL Central Ohio Ataxia Support Group Meeting
EASTERN TIME For more information, contact Sue Moore: susanlmoore1@gmail.com 614-395-9933
0 events,
0 events,
1 event,
VIRTUAL JHU Music Therapy Session
VIRTUAL JHU Music Therapy Session
EASTERN TIME Presented by: Emily Mahoney, MMT, LGPC, LPMT, MT-BC The same zoom link will be used for each session, (registration is required). https://jhjhm.zoom.us/meeting/register/tJAtfumurj0qGdTX2xHaOHGp6WqCWsjdvahn For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
1 event,
VIRTUAL Spouses and Partners of Loved Ones with Ataxia Support Group Meeting
VIRTUAL Spouses and Partners of Loved Ones with Ataxia Support Group Meeting
EASTERN TIME This group is for spouses and partners without Ataxia who have a spouse or partner with Ataxia. This is our spot to learn from one another, vent, have fun, and discuss topics important to us! For meeting access information join our Facebook Group https://www.facebook.com/groups/AtaxiaSpousesAndPartners/. For additional information about the group contact Dana Mauro
2 events,
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
0 events,
0 events,
0 events,
0 events,
1 event,
VIRTUAL JHU Music Therapy Session
VIRTUAL JHU Music Therapy Session
EASTERN TIME Presented by: Emily Mahoney, MMT, LGPC, LPMT, MT-BC The same zoom link will be used for each session, (registration is required). https://jhjhm.zoom.us/meeting/register/tJAtfumurj0qGdTX2xHaOHGp6WqCWsjdvahn For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
1 event,
2023 Annual Ataxia Conference
Join us for AAC at Planet Hollywood in Las Vegas, NV! For more info visit our website. https://www.ataxia.org/annual-ataxia-conference/
5 events,
VIRTUAL Western North Carolina Ataxia Support Group Meeting
VIRTUAL Western North Carolina Ataxia Support Group Meeting
We hope to see you there! For access information contact: Jodie Kawa at Phone #: 828-384-8414 or Email: jodiekawa@comporium.net\ Maggie Dentremont at Phone #: 828-777-7411 Email: magdalenedentremont@gmail.com Join our Facebook Group: https://www.facebook.com/groups/919905244740316/
VIRTUAL Chicago Ataxia Support Group Meeting
VIRTUAL Chicago Ataxia Support Group Meeting
Join us for our virtual meeting at 2pm Central Time! We'll be joined by Craniosacral therapist, Candace Pantoga, who will talk to us about what craniosacral therapy is and how it is beneficial for ataxians. For the Zoom meeting access information contact Julia Pantoga at Phone #: 414-899-5195 | E-mail: sharpturninstitute@gmail.com
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.