Calendar of Events
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Webinar: Everyday Items for Accessible Living
Webinar: Everyday Items for Accessible Living
Day Undefined is an online marketplace that takes a fresh approach to adaptive products. They assess everyday household products and home technologies that might be helpful for individuals with physical disabilities based on real insights and experiences from the disability community. Join co-founders Liam Dougherty and Kate Leader to learn about some products that might
VIRTUAL Rhode Island Ataxia Support Group Meeting
VIRTUAL Rhode Island Ataxia Support Group Meeting
We will discuss a new location for our in-person meetings and a new location for our Walk n' Roll in September! Bring some ideas you may have. Zoom info: https://us02web.zoom.us/j/83356792794?pwd=U0tYdC9aS3BEQ0RaZjk3bm0rL2kyUT09 Meeting ID: 833 5679 2794 Passcode: 335496 For more information or to be added to this group's mailing list contact John Mauro at Email: johnmauro62@gmail.com
4 events,
VIRTUAL Western North Carolina Ataxia Support Group Meeting
VIRTUAL Western North Carolina Ataxia Support Group Meeting
We hope to see you there! We are honored to have Chelsea McPherson, a phD student at Columbia University in New York City speaking about fall recovery and possible Ataxia trial opportunities. Bring your questions! Join Zoom Meeting https://us02web.zoom.us/j/84359194866?pwd=T2pvbTRvaUo5MVl4UDVLUWd4TFRlUT09 Meeting ID: 843 5919 4866 Passcode: 102942 For access information contact: Jodie Kawa at Phone #:
VIRTUAL Chicago Ataxia Support Group Meeting
VIRTUAL Chicago Ataxia Support Group Meeting
Join us for our virtual meeting at 2pm Central Time! This is a support-only meeting. It will not be recorded. Have your Show N' Tell presentation ready. Join Zoom Meeting https://us02web.zoom.us/j/81551194100 Meeting ID: 815 5119 4100 For the Zoom meeting access information contact Julia Pantoga at Phone #: 414-899-5195 | E-mail: sharpturninstitute@gmail.com
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
1 event,
IN-PERSON Central Pennsylvania Ataxia Support Group Meeting
IN-PERSON Central Pennsylvania Ataxia Support Group Meeting
Location: Penn State Hershey Medical Center's 30 Hope Drive location, Room 1710 Tentative guest speaker will be an occupational therapist. For meeting access information contact Michael Cammer at Phone #: 610-873-1852 | Email: michael.cammer62@hotmail.com Join Our Facebook Group: https://www.facebook.com/groups/1475283086068548/
1 event,
VIRTUAL Southeastern Nevada Ataxia Support Group Meeting
VIRTUAL Southeastern Nevada Ataxia Support Group Meeting
For access information contact Howard Silverman at Phone #: 702-290-6724 | Email: Silverman3@cox.net Join our Facebook Group: https://www.facebook.com/groups/2090650814550409/?hc_location=group
1 event,
VIRTUAL Boston Ataxia Support Group Evening Chat
VIRTUAL Boston Ataxia Support Group Evening Chat
We welcome anyone to these meetings, regardless of location. Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343
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VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
1 event,
VIRTUAL Central Indiana Ataxia Support Group Meeting
VIRTUAL Central Indiana Ataxia Support Group Meeting
For more information contact: Teresa Coccaro at (317) 439-2512 or tcoccaro12@gmail.com Amy Draves at (765) 610-2866 or amy4kids@msn.com
1 event,
VIRTUAL Delaware Ataxia Support Group Meeting
VIRTUAL Delaware Ataxia Support Group Meeting
Join Zoom Meeting https://us06web.zoom.us/j/89374178831?pwd=SHVXckkvRElDcW80MEc2V1V6dkJOZz09 Meeting ID: 893 7417 8831 Passcode: 540557 For more information contact Dawn Lentz at Email: silvercat2800@hotmail.com
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VIRTUAL JHU Ataxia Support Group Meeting
VIRTUAL JHU Ataxia Support Group Meeting
JHU Ataxia Support Group Meeting May 10 | 1-2 pm (EST) Zoom link: https://jhjhm.zoom.us/j/93578611748 For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
2 events,
VIRTUAL JHU Presentation
VIRTUAL JHU Presentation
Mindfulness for Stress Reduction Presentation May 11 | 1-2:30 pm (EST) Zoom registration link: https://jhjhm.zoom.us/meeting/register/tJckceuvqzIsEtxwRXPSG8hjN2oD4IdgboLw Presentation from psychologist, Dr. Neda Gould, on how mindfulness can help with stress, anxiety and depression and how to bring mindfulness to daily life. A guided mindfulness practice will be included at the end of the session. For more information,
VIRTUAL Greater Atlanta Ataxia Support Group Meeting
VIRTUAL Greater Atlanta Ataxia Support Group Meeting
Jon Wegman, Development Manager at NAF is scheduled to be our guest speaker and present on NAF’s Accelerate Fund. We will also discuss plans for our spring picnic on June 18th. Zoom link: https://us02web.zoom.us/j/82131204896?pwd=azVyZTJzRWwwRkdTNktrSndkVThlQT09 Please use this link if you would like to sign up for the group's mailing list: https://mailchi.mp/5325ed76faee/atlanta-ataxia For more information contact
1 event,
CANCELLED Tri-State Ataxia Support Group Meeting
CANCELLED Tri-State Ataxia Support Group Meeting
6:30pm Eastern Time Join Zoom Meeting https://us02web.zoom.us/j/85447277446?pwd=cE5qM3ZadmlrVCtTVjFKSVlBTG1Wdz09 For meeting access information, please contact Kathleen Gingerelli at kgingerelli@msn.com | 201-681-7639
2 events,
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
6 events,
IN-PERSON North Texas Ataxia Support Group Meeting
IN-PERSON North Texas Ataxia Support Group Meeting
Meeting Location: Cozby Library and Community Commons at 177 N Heartz Rd., Coppell, TX 75019 (Meeting Room B) Building is handicap accessible. For meeting access information contact: David Henry Jr 817-739-2886 (contact by email preferred) cheve11e@sbcglobal.net Join our Facebook Group!
VIRTUAL St. Louis Ataxia Support Group Meeting
VIRTUAL St. Louis Ataxia Support Group Meeting
We meet at 10:30-12:30 Central Time on the 2nd Saturday of every month. Zoom link: https://us02web.zoom.us/j/9247613557 For meeting access information or to be added to the mailing list for this group please contact: Shannon Dunphy Lazo at 202-306-2738 or shan_d@hotmail.com For more information, see our Facebook Group!
IN-PERSON Central Ohio Ataxia Support Group Meeting
IN-PERSON Central Ohio Ataxia Support Group Meeting
Meeting time: 11:30am EST Karen Takashima will demonstrate and share her experience using her new equipment intended to relieve ataxia symptoms. Meeting Location: Karen’s office address - 3805 N. High St. (ReMax Building) Suite 200 (left off elevators) For more information, contact Sue Moore: susanlmoore1@gmail.com 614-395-9933
CANCELLED Hampton Roads Support Group Picnic
CANCELLED Hampton Roads Support Group Picnic
Meeting Location: Freedom Park - near the shelter close to the playground For more information contact Susan Harris at Phone #: (757) 435-0290 and email: susanharrisvt@icloud.com Join our Facebook Group: https://www.facebook.com/groups/247294295919967/
VIRTUAL Treasure Coast Ataxia Support Group Meeting
VIRTUAL Treasure Coast Ataxia Support Group Meeting
Zoom link: https://us02web.zoom.us/w/86585832950?tk=oPF_kl5atzCzTinYPoZIzG8Kh1yB7QrkRKkFs8tMytE.DQMAAAAUKOr19hZ4U1kxMXB0a1JwMlc1bTZXQi02ODVnAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA&pwd=Z3VzUEhMcWN3VmF4U08vajVLY3Rtdz09 For more information contact Lisa Cole at 772-370-3041 | lisacoleataxia@gmail.com Join our Facebook Group!
VIRTUAL Kansas City Ataxia Support Group Meeting
VIRTUAL Kansas City Ataxia Support Group Meeting
Join Zoom Meeting https://us02web.zoom.us/j/6185650820?pwd=RXlPMmpCc0tXTmxydC9RcUF3RUxOZz09 Meeting ID: 618 565 0820 Passcode: 8nsFHF For more information join our mailing list by contacting Stephanie Wilkins at Phone #: 816-623-3318 | Email: sfwilkins@yahoo.com Join our Facebook Group: https://www.facebook.com/groups/208618772974351/
1 event,
IN-PERSON Cincinnati Ataxia Support Group Meeting
IN-PERSON Cincinnati Ataxia Support Group Meeting
We hope you can join us! Meeting Location: Reading Branch Library - 8740 Reading Rd. Cincinnati, OH, 45215 For more information or to be added to the mailing list for this group please contact: William Vetter at (513) 310-7530 or wjuniorvet@gmail.com Join our Facebook Group: https://www.facebook.com/CincinnatiAtaxiaSupportGroup/
1 event,
VIRTUAL Ottawa Ataxia Support Group Meeting
VIRTUAL Ottawa Ataxia Support Group Meeting
We meet at 7pm Eastern every third Monday of the month. For meeting access information Join our Facebook Group: www.facebook.com/groups/1468963499991380/ For more information contact Susan Harding at susangmharding@gmail.com
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Ask the Expert with Dr. Perlman
Ask the Expert with Dr. Perlman
Dr. Perlman will join us bimonthly in 2022 to answer your questions about Ataxia. This is an informal discussion-style webinar without a set topic. You will have the opportunity to ask any questions you have related to Ataxia. Don’t have a question? Join us to listen in! Tuesday, May 17, 2022 | 1:00 PM Central
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VIRTUAL Spouses and Partners of Loved Ones with Ataxia Support Group Meeting
VIRTUAL Spouses and Partners of Loved Ones with Ataxia Support Group Meeting
This group is for spouses and partners without Ataxia who have a spouse or partner with Ataxia. This is our spot to learn from one another, vent, have fun, and discuss topics important to us! For meeting access information join our Facebook Group https://www.facebook.com/groups/AtaxiaSpousesAndPartners/. For additional information about the group contact Dana Mauro at ataxiafacts@gmail.com
3 events,
VIRTUAL Connecticut Ataxia Support Group Meeting
VIRTUAL Connecticut Ataxia Support Group Meeting
We meet on the third Friday of the month at 11:30am Eastern Time. For meeting access information contact Susan Masse at: 860-528-1875 or Smasse1875@gmail.com
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
6 events,
CANCELLED Boston Ataxia Support Group Meeting
CANCELLED Boston Ataxia Support Group Meeting
We welcome anyone to these meetings, regardless of location. Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343
IN-PERSON Nebraska Ataxia Support Group Meeting
IN-PERSON Nebraska Ataxia Support Group Meeting
Date and Time: Saturday, May 21, 2022 11:00am to 1:00pm - Lunch to follow Meeting Location: University of Nebraska State Museum Morrill Hall 645 North 14th St Lincoln NE 68588 Event: “Exploring History and Culture” This outing will be at the museum where we will visit and tour. Lunch will follow
VIRTUAL African Americans with Ataxia Support Group Meeting
VIRTUAL African Americans with Ataxia Support Group Meeting
For meeting access information join our Facebook Group: https://www.facebook.com/groups/501238100417901/ For more information about our group contact Letitia Diggs at Letitia.diggs@iCloud.com | 202-386-8289 or Veronica Denis at aaataxia@gmail.com
VIRTUAL Wisconsin Ataxia Warriors Support Group Meeting
VIRTUAL Wisconsin Ataxia Warriors Support Group Meeting
At April's meeting, another "Lap the Lake" event for Saturday, September 25, 2022 was proposed. We need everyone's input! Everyone, BE THERE May 21st on Zoom. Besides talking about the fundraiser, we have a guest speaker. Debra Haggerty is an OT with the UW. She will be discussing some exercises we can do and what
IN-PERSON Sioux Empire Ataxia Support Group Meeting
IN-PERSON Sioux Empire Ataxia Support Group Meeting
Location: Siouxland Library on 200 North Dakota Ave. Sioux Falls South Dakota, in the library’s conference room For meeting access information contact Mary Beth Farley at Phone #: (605) 941-2913 | Email: englishteacher1116@gmail.com Join Our Facebook Group!
VIRTUAL Western Washington Ataxia Support Group Meeting
VIRTUAL Western Washington Ataxia Support Group Meeting
Speakers: Dr. Pravin Kehmani and Sue Hagen Topic: Clinical Trial Opportunities in Seattle For access information join our Facebook Group: https://www.facebook.com/groups/1033349420106652/ or contact Sherry McLaughlin Phone #: 360-443-6206 | Email: cherilyn546@gmail.com
2 events,
VIRTUAL Cincinnati Ataxia Support Group Meeting
VIRTUAL Cincinnati Ataxia Support Group Meeting
We hope you can join us! Join Zoom Meeting https://us02web.zoom.us/j/81955190420?pwd=dGpGM1FkaXNpSzNXTG4weHA3SXVNUT09 Meeting ID: 819 5519 0420 Passcode: 520754 For more information or to be added to the mailing list for this group please contact: William Vetter at (513) 310-7530 or wjuniorvet@gmail.com Join our Facebook Group: https://www.facebook.com/CincinnatiAtaxiaSupportGroup/
IN-PERSON Portland Ataxia Support Group Meeting
IN-PERSON Portland Ataxia Support Group Meeting
Location: 10723 SW Capitol Hwy, Portland, OR 97219 For more information contact Tyler Kalina at Phone #: 541-892-3519 | Email: tyler.kalina@gmail.com Join Our Facebook Group: https://www.facebook.com/groups/388993597939205/
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VIRTUAL Western North Carolina Ataxia Support Group Meeting
VIRTUAL Western North Carolina Ataxia Support Group Meeting
We hope to see you there! For access information contact: Jodie Kawa at Phone #: 828-384-8414 or Email: jodiekawa@comporium.net\ Maggie Dentremont at Phone #: 828-777-7411 Email: magdalenedentremont@gmail.com Join our Facebook Group: https://www.facebook.com/groups/919905244740316/
VIRTUAL Chicago Ataxia Support Group Meeting
VIRTUAL Chicago Ataxia Support Group Meeting
Join us for our virtual meeting at 2pm Central Time! For the Zoom meeting access information contact Julia Pantoga at Phone #: 414-899-5195 | E-mail: sharpturninstitute@gmail.com
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
1 event,
IN-PERSON Northern California Ataxia Support Group Meeting
IN-PERSON Northern California Ataxia Support Group Meeting
We have missed in- person meetings in Lafayette during the last few years due to the pandemic. In order to provide a safe environment for members, we thought a park setting would be a good place for NCASG members to enjoy reconnecting. To make it easier for members, we have chosen parks in the South