Calendar of Events
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VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
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1 event,
VIRTUAL Southeastern Nevada Ataxia Support Group Meeting
VIRTUAL Southeastern Nevada Ataxia Support Group Meeting
For access information contact Howard Silverman at Phone #: 702-290-6724 | Email: Silverman3@cox.net Join our Facebook Group: https://www.facebook.com/groups/2090650814550409/?hc_location=group
1 event,
VIRTUAL Boston Ataxia Support Group Evening Chat
VIRTUAL Boston Ataxia Support Group Evening Chat
We welcome anyone to these meetings, regardless of location. Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343
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1 event,
Chair Yoga & Mobility for People Affected by Ataxia
Chair Yoga & Mobility for People Affected by Ataxia
Featuring Natalie Marnica of Sacred Mountain Yoga About the Session: Do you or someone you care about struggle to find ways to stay active and mobile? For people affected by Ataxia it can be hard to stay mobile when challenged with balance and other neurological issues. That’s why we’re offering this special Chair Yoga and
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2 events,
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
5 events,
IN-PERSON JHU Ataxia Sailing Day Event
IN-PERSON JHU Ataxia Sailing Day Event
After 2 years of cancellations due to Covid 19, the Johns Hopkins Ataxia Center is excited to resume our annual Ataxia Adapted Sailing Day, which is scheduled for Saturday, June 11, 2022 from 10 am to 12 p.m. (weather permitting). We are in the process of determining if there will be a social gathering after
IN-PERSON North Texas Ataxia Support Group Meeting
IN-PERSON North Texas Ataxia Support Group Meeting
Meeting Location: Cozby Library and Community Commons at 177 N Heartz Rd., Coppell, TX 75019 (Meeting Room B) Building is handicap accessible. For meeting access information contact: David Henry Jr 817-739-2886 (contact by email preferred) cheve11e@sbcglobal.net Join our Facebook Group!
VIRTUAL St. Louis Ataxia Support Group Meeting
VIRTUAL St. Louis Ataxia Support Group Meeting
We meet at 10:30-12:30 Central Time on the 2nd Saturday of every month. Zoom link: https://us02web.zoom.us/j/9247613557 For meeting access information or to be added to the mailing list for this group please contact: Shannon Dunphy Lazo at 202-306-2738 or shan_d@hotmail.com For more information, see our Facebook Group!
VIRTUAL Treasure Coast Ataxia Support Group Meeting
VIRTUAL Treasure Coast Ataxia Support Group Meeting
Zoom link: https://us02web.zoom.us/w/86585832950?tk=oPF_kl5atzCzTinYPoZIzG8Kh1yB7QrkRKkFs8tMytE.DQMAAAAUKOr19hZ4U1kxMXB0a1JwMlc1bTZXQi02ODVnAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA&pwd=Z3VzUEhMcWN3VmF4U08vajVLY3Rtdz09 For more information contact Lisa Cole at 772-370-3041 | lisacoleataxia@gmail.com Join our Facebook Group!
VIRTUAL Kansas City Ataxia Support Group Meeting
VIRTUAL Kansas City Ataxia Support Group Meeting
Join Zoom Meeting https://us02web.zoom.us/j/6185650820?pwd=RXlPMmpCc0tXTmxydC9RcUF3RUxOZz09 Meeting ID: 618 565 0820 Passcode: 8nsFHF For more information join our mailing list by contacting Stephanie Wilkins at Phone #: 816-623-3318 | Email: sfwilkins@yahoo.com Join our Facebook Group: https://www.facebook.com/groups/208618772974351/
1 event,
VIRTUAL Delaware Ataxia Support Group Meeting
VIRTUAL Delaware Ataxia Support Group Meeting
Join Zoom Meeting https://us06web.zoom.us/j/89374178831?pwd=SHVXckkvRElDcW80MEc2V1V6dkJOZz09 Meeting ID: 893 7417 8831 Passcode: 540557 For more information contact Dawn Lentz at Email: silvercat2800@hotmail.com
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1 event,
VIRTUAL Richmond Ataxia Support Group Meeting
VIRTUAL Richmond Ataxia Support Group Meeting
Join Zoom Meeting https://us02web.zoom.us/j/86279540431?pwd=bUFPTGNEVGhINE9hZllQaUVDSTRPUT09 For more information or to join this group’s mailing list contact Karen Russell at Phone #: 804-543-8707 | Email: klruss@comcast.net
3 events,
VIRTUAL Connecticut Ataxia Support Group Meeting
VIRTUAL Connecticut Ataxia Support Group Meeting
We meet on the third Friday of the month at 11:30am Eastern Time. For meeting access information contact Susan Masse at: 860-528-1875 or Smasse1875@gmail.com
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
7 events,
VIRTUAL Boston Ataxia Support Group Meeting
VIRTUAL Boston Ataxia Support Group Meeting
We welcome anyone to these meetings, regardless of location. Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343
VIRTUAL Twin Cities Ataxia Support Group Meeting
VIRTUAL Twin Cities Ataxia Support Group Meeting
The TC Ataxia Support Group will have our June meeting Saturday, June 18 at 10 a.m. All are welcome! A guest speaker will be talking on nutrition and Ataxia. https://us02web.zoom.us/j/81466181372?pwd=SlNGQmM5bExXanhIR3p4ZE5YZFZDQT09 For access information join our Facebook Group https://www.facebook.com/groups/103233603504142/ For other questions contact Lenore Healey Schultz at Phone #: 612-724-3784 | E-mail: schultz.lenore@yahoo.com
IN-PERSON Nebraska Ataxia Support Group Meeting
IN-PERSON Nebraska Ataxia Support Group Meeting
Date and Time: Saturday, June 18, 2022 11:00am to 1:00pm - Lunch provided Meeting Location: Creighton Prep High School Hall of Fame Room 7400 Western Ave., Omaha, NE 68114 Guest Speaker: Grace Knott, PT – Innovate Therapy “The Balancing Game Part One - Internal Factors” This session will focus on fall
VIRTUAL African Americans with Ataxia Support Group Meeting
VIRTUAL African Americans with Ataxia Support Group Meeting
For meeting access information join our Facebook Group: https://www.facebook.com/groups/501238100417901/ For more information about our group contact Letitia Diggs at Letitia.diggs@iCloud.com | 202-386-8289 or Veronica Denis at aaataxia@gmail.com
IN-PERSON Sioux Empire Ataxia Support Group Meeting
IN-PERSON Sioux Empire Ataxia Support Group Meeting
Location: Siouxland Library on 200 North Dakota Ave. Sioux Falls South Dakota, in the library’s conference room For meeting access information contact Mary Beth Farley at Phone #: (605) 941-2913 | Email: englishteacher1116@gmail.com Join Our Facebook Group!
IN-PERSON Greater Atlanta Ataxia Support Group Picnic
IN-PERSON Greater Atlanta Ataxia Support Group Picnic
When Saturday, June 18th at 1pm. Where Lanier Park on Lake Lanier Lanier Park Shelter SL9407 1360 Buford Dam Rd., Buford, GA 30518 From Georgia Highway 400, take exit 14 to Highway 20 east, turn left onto Sanders Road, at first stop sign turn right on Buford Dam Road. After crossing the dam, turn left
1 event,
VIRTUAL Northeast Ohio Ataxia Support Group Meeting
VIRTUAL Northeast Ohio Ataxia Support Group Meeting
we have an upcoming zoom meeting sunday jun 19 at 5pm to catch up an talk about a possible outdoor get together in july hope to see everyone there Join Zoom Meeting https://us02web.zoom.us/j/86031304962... For meeting information contact Mike Hammer at mikey.hammer@gmail.com Join Our Facebook Group: https://www.facebook.com/groups/157330301877408/
1 event,
VIRTUAL Ottawa Ataxia Support Group Meeting
VIRTUAL Ottawa Ataxia Support Group Meeting
We meet at 7pm Eastern every third Monday of the month. For meeting access information Join our Facebook Group: www.facebook.com/groups/1468963499991380/ For more information contact Susan Harding at susangmharding@gmail.com
1 event,
PrepRARE Webinar: An Intro to Drug Development for Ataxias
PrepRARE Webinar: An Intro to Drug Development for Ataxias
The process for developing new treatments for any disease is long and complicated. This webinar will break down the process that every potential new therapy must go through from early lab testing through clinical trials and finally FDA approval before it is available to all affected individuals. Updates on progress towards effective therapies for multiple
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1 event,
VIRTUAL Tri-State Ataxia Support Group
VIRTUAL Tri-State Ataxia Support Group
Join Zoom Meeting https://us02web.zoom.us/j/89968418455 For meeting access information, please contact Kathleen Gingerelli at kgingerelli@msn.com | 201-681-7639
4 events,
IN-PERSON Western North Carolina Ataxia Support Group Meeting
IN-PERSON Western North Carolina Ataxia Support Group Meeting
Location: Carrier Park in Asheville We hope to see you there! For access information contact: Jodie Kawa at Phone #: 828-384-8414 or Email: jodiekawa@comporium.net\ Maggie Dentremont at Phone #: 828-777-7411 Email: magdalenedentremont@gmail.com Join our Facebook Group: https://www.facebook.com/groups/919905244740316/
VIRTUAL Chicago Ataxia Support Group Meeting
VIRTUAL Chicago Ataxia Support Group Meeting
Join us for our virtual meeting at 2pm Central Time! For the Zoom meeting access information contact Julia Pantoga at Phone #: 414-899-5195 | E-mail: sharpturninstitute@gmail.com
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
1 event,
IN-PERSON Hampton Roads Ataxia Support Group Meeting
IN-PERSON Hampton Roads Ataxia Support Group Meeting
Location: K'bola Cuba restaurant. The address is 5201 Center Street, Willamsburg, VA We are spending part of this meeting as a planning meeting for our Walk 'N Roll. The other part will be a time to enjoy each others company, meet new people, share ideas and just have a good time as we eat good
2 events,
VIRTUAL South Carolina Support Group Meeting
VIRTUAL South Carolina Support Group Meeting
NAF will be hosting a virtual support group meeting representing South Carolina . Since there is not currently an active support group in this area, this is meant to be an introductory meeting that will allow NAF to connect with members in the area, gauge interest for a support group, and identify individuals that may
VIRTUAL Kentucky and West Virginia Support Group Meeting
VIRTUAL Kentucky and West Virginia Support Group Meeting
NAF will be hosting a virtual support group meeting representing Kentucky and West Virginia. Since there is not currently an active support group in these areas, this is meant to be an introductory meeting that will allow NAF to connect with members in the areas, gauge interest for a support group, and identify individuals that