Calendar of Events
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VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
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2 events,
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
5 events,
VIRTUAL North Texas Ataxia Support Group Meeting
VIRTUAL North Texas Ataxia Support Group Meeting
Join Zoom Meeting https://us02web.zoom.us/j/2613613442?pwd=c3U3czRnaXkxa0pTSEUxZzJNMGdPZz09 Meeting ID: 261 361 3442 Passcode: 2msM4L Find your local number: https://us02web.zoom.us/u/kfTReAKhw For meeting access information contact: David Henry Jr 817-739-2886 (contact by email preferred) cheve11e@sbcglobal.net Join our Facebook Group!
VIRTUAL St. Louis Ataxia Support Group Meeting
VIRTUAL St. Louis Ataxia Support Group Meeting
We meet at 10:30-12:30 Central Time on the 2nd Saturday of every month. Zoom link: https://us02web.zoom.us/j/9247613557 For meeting access information or to be added to the mailing list for this group please contact: Shannon Dunphy Lazo at 202-306-2738 or shan_d@hotmail.com For more information, see our Facebook Group!
IN-PERSON Denver Ataxia Support Group Summer Gathering
IN-PERSON Denver Ataxia Support Group Summer Gathering
You and your family are invited to our Summer Ataxia Group gathering on July 9, 2022 from 12 noon to 4:00 pm at the Saddle Rock South Clubhouse, 6800 S Liverpool St, Suite A, Aurora, CO 80016. This will be our first in-person gathering since January, 2020 and will be for socializing, sharing, and enjoying
VIRTUAL Treasure Coast Ataxia Support Group Meeting
VIRTUAL Treasure Coast Ataxia Support Group Meeting
For more information contact Lisa Cole at 772-370-3041 | lisacoleataxia@gmail.com Join our Facebook Group!
VIRTUAL Kansas City Ataxia Support Group Meeting
VIRTUAL Kansas City Ataxia Support Group Meeting
Join Zoom Meeting https://us02web.zoom.us/j/6185650820?pwd=RXlPMmpCc0tXTmxydC9RcUF3RUxOZz09 Meeting ID: 618 565 0820 Passcode: 8nsFHF For more information join our mailing list by contacting Stephanie Wilkins at Phone #: 816-623-3318 | Email: sfwilkins@yahoo.com Join our Facebook Group: https://www.facebook.com/groups/208618772974351/
5 events,
VIRTUAL Central and Southern Texas Support Group Meeting
VIRTUAL Central and Southern Texas Support Group Meeting
NAF will be hosting a virtual support group meeting representing Central and Southern Texas. Since there is not currently an active support group in these areas, this is meant to be an introductory meeting that will allow NAF to connect with members in the areas, gauge interest for a support group, and identify individuals that
VIRTUAL Alaska and Hawaii Support Group Meeting
VIRTUAL Alaska and Hawaii Support Group Meeting
NAF will be hosting a virtual support group meeting representing Alaska and Hawaii. Since there is not currently an active support group in these areas, this is meant to be an introductory meeting that will allow NAF to connect with members in the areas, gauge interest for a support group, and identify individuals that may
VIRTUAL Louisiana Support Group Meeting
VIRTUAL Louisiana Support Group Meeting
NAF will be hosting a virtual support group meeting representing Louisiana. Since there is not currently an active support group in this area, this is meant to be an introductory meeting that will allow NAF to connect with members in the area, gauge interest for a support group, and identify individuals that may be interested
VIRTUAL Delaware Ataxia Support Group
VIRTUAL Delaware Ataxia Support Group
Join Zoom Meeting https://us06web.zoom.us/j/89374178831?pwd=SHVXckkvRElDcW80MEc2V1V6dkJOZz09 Meeting ID: 893 7417 8831 Passcode: 540557 For more information contact Dawn Lentz at Email: silvercat2800@hotmail.com
VIRTUAL Southeastern Nevada Ataxia Support Group Meeting
VIRTUAL Southeastern Nevada Ataxia Support Group Meeting
For access information contact Howard Silverman at Phone #: 702-290-6724 | Email: Silverman3@cox.net Join our Facebook Group: https://www.facebook.com/groups/2090650814550409/?hc_location=group
1 event,
VIRTUAL Boston Ataxia Support Group Evening Chat
VIRTUAL Boston Ataxia Support Group Evening Chat
We welcome anyone to these meetings, regardless of location. Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343
1 event,
VIRTUAL JHU Ataxia Support Group Meeting
VIRTUAL JHU Ataxia Support Group Meeting
JHU Ataxia Support Group Meeting July 12 | 1-2 pm (EST) Zoom link: https://jhjhm.zoom.us/j/99384459312 For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
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1 event,
VIRTUAL Tri-State Ataxia Support Group Meeting
VIRTUAL Tri-State Ataxia Support Group Meeting
6:30pm Eastern Time Join Zoom Meeting https://us02web.zoom.us/j/85447277446?pwd=cE5qM3ZadmlrVCtTVjFKSVlBTG1Wdz09 For meeting access information, please contact Kathleen Gingerelli at kgingerelli@msn.com | 201-681-7639
3 events,
VIRTUAL Connecticut Ataxia Support Group Meeting
VIRTUAL Connecticut Ataxia Support Group Meeting
We meet on the third Friday of the month at 11:30am Eastern Time. For meeting access information contact Susan Masse at: 860-528-1875 or Smasse1875@gmail.com
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
4 events,
IN-PERSON Central Pennsylvania Ataxia Support Group Meeting
IN-PERSON Central Pennsylvania Ataxia Support Group Meeting
Location: Penn State Hershey Medical Center's 30 Hope Drive location Guest Speaker - Dan Coma, yoga instructor A family picnic at the Leader Farm will follow. For meeting access information contact Michael Cammer at Phone #: 610-873-1852 | Email: michael.cammer62@hotmail.com Join Our Facebook Group: https://www.facebook.com/groups/1475283086068548/
VIRTUAL African Americans with Ataxia Support Group Meeting
VIRTUAL African Americans with Ataxia Support Group Meeting
For meeting access information join our Facebook Group: https://www.facebook.com/groups/501238100417901/ For more information about our group contact Letitia Diggs at Letitia.diggs@iCloud.com | 202-386-8289 or Veronica Denis at aaataxia@gmail.com
IN-PERSON Sioux Empire Ataxia Support Group Meeting
IN-PERSON Sioux Empire Ataxia Support Group Meeting
Location: Siouxland Library on 200 North Dakota Ave. Sioux Falls South Dakota, in the library’s conference room For meeting access information contact Mary Beth Farley at Phone #: (605) 941-2913 | Email: englishteacher1116@gmail.com Join Our Facebook Group!
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1 event,
VIRTUAL Ottawa Ataxia Support Group Meeting
VIRTUAL Ottawa Ataxia Support Group Meeting
We meet at 7pm Eastern every third Monday of the month. For meeting access information Join our Facebook Group: www.facebook.com/groups/1468963499991380/ For more information contact Susan Harding at susangmharding@gmail.com
1 event,
Ask the Ataxia Expert with Dr. Susan Perlman
Ask the Ataxia Expert with Dr. Susan Perlman
Every other month, NAF invites an expert to answer your questions about Ataxia. Each session in 2022 will feature Dr. Susan Perlman of UCLA Medical Center in Los Angeles. This is an informal discussion-style webinar without a set topic. You will have the opportunity to ask any questions you have related to Ataxia. Don’t have
1 event,
IN-PERSON Northeast Ohio Ataxia Support Group Event
IN-PERSON Northeast Ohio Ataxia Support Group Event
ADA Cleveland - Americans with Disabilities Act Cleveland - day at Wade Oval Wednesdays ADA Cleveland will once again celebrate together at Wade Oval Wednesday on July 20, 2022!Please join ADA Cleveland as we enjoy a great concert by Tricky Dick and the Cover-Ups. We will provide accommodations, including close proximity to accessible restrooms
1 event,
VIRTUAL Spouses and Partners of Loved Ones with Ataxia Support Group Meeting
VIRTUAL Spouses and Partners of Loved Ones with Ataxia Support Group Meeting
This group is for spouses and partners without Ataxia who have a spouse or partner with Ataxia. This is our spot to learn from one another, vent, have fun, and discuss topics important to us! For meeting access information join our Facebook Group https://www.facebook.com/groups/AtaxiaSpousesAndPartners/. For additional information about the group contact Dana Mauro at ataxiafacts@gmail.com
3 events,
VIRTUAL JHU Presentation
VIRTUAL JHU Presentation
Low Vision Presentation July 22 | 1-2 pm (EST) Zoom registration link: https://jhjhm.zoom.us/j/97314148351 Presentation from Suzanne Kim, O.D and Kristen Shifflett, OTR/L, CLVT, SCLV A multi-disciplinary approach for management and rehabilitation of visually symptomatic ataxic patients at the Lions Vision Rehabilitation Clinic. A case series of ataxic patients presenting with mild, moderate, and severe
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
1 event,
IN-PERSON Nebraska Ataxia Support Group Meeting
IN-PERSON Nebraska Ataxia Support Group Meeting
Date and Time: Saturday, July 23, 2022 7:00pm Event Location: Werner Park 12356 Ballpark Way Papillion, NE 68046 Event: “Take Me Out to the Ballgame” Join your friends for an evening of fun at the Storm Chasers Baseball game. For event information, visit our website: https://nebraskaataxia.org/events/ For more information
2 events,
VIRTUAL Idaho, Montana, Wyoming, and New Mexico Support Group Meeting
VIRTUAL Idaho, Montana, Wyoming, and New Mexico Support Group Meeting
NAF will be hosting a virtual support group meeting representing Idaho, Montana, Wyoming, and New Mexico. Since there is not currently an active support group in these areas, this is meant to be an introductory meeting that will allow NAF to connect with members in the areas, gauge interest for a support group, and identify
VIRTUAL Arkansas, Kansas, and Oklahoma Support Group Meeting
VIRTUAL Arkansas, Kansas, and Oklahoma Support Group Meeting
NAF will be hosting a virtual support group meeting representing Arkansas, Kansas, and Oklahoma. Since there is not currently an active support group in these areas, this is meant to be an introductory meeting that will allow NAF to connect with members in the areas, gauge interest for a support group, and identify individuals that
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4 events,
VIRTUAL Western North Carolina Ataxia Support Group Meeting
VIRTUAL Western North Carolina Ataxia Support Group Meeting
We hope to see you there! For access information contact: Jodie Kawa at Phone #: 828-384-8414 or Email: jodiekawa@comporium.net\ Maggie Dentremont at Phone #: 828-777-7411 Email: magdalenedentremont@gmail.com Join our Facebook Group: https://www.facebook.com/groups/919905244740316/
VIRTUAL Chicago Ataxia Support Group Meeting
VIRTUAL Chicago Ataxia Support Group Meeting
Join us for our virtual meeting at 2pm Central Time! For the Zoom meeting access information contact Julia Pantoga at Phone #: 414-899-5195 | E-mail: sharpturninstitute@gmail.com
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
1 event,
HYBRID Tampa Bay and Treasure Coast Joint Support Group Meeting
HYBRID Tampa Bay and Treasure Coast Joint Support Group Meeting
We welcome you from 1:30pm - 4pm. Friends and Family welcome! The space is limited, please R.S.V.P. to lisacoleataxia@gmil.com We must know how many people are coming to set up the right amount of tables and chairs. Thank you! In-person location: Southwest Library-Community Room, 7255 Della Dr, Orlando, FL 32819 Zoom information: https://us02web.zoom.us/j/81418084824?pwd=cElzaUpSdEFwZUVSZmFaMHY4cmx1UT09 Meeting
2 events,
VIRTUAL Maine, New Hampshire, and Vermont Support Group Meeting
VIRTUAL Maine, New Hampshire, and Vermont Support Group Meeting
NAF will be hosting a virtual support group meeting representing Maine, New Hampshire, and Vermont. Since there is not currently an active support group in these areas, this is meant to be an introductory meeting that will allow NAF to connect with members in the areas, gauge interest for a support group, and identify individuals
VIRTUAL Iowa, North Dakota, and Michigan Support Group Meeting
VIRTUAL Iowa, North Dakota, and Michigan Support Group Meeting
NAF will be hosting a virtual support group meeting representing Iowa, North Dakota, and Michigan. Since there is not currently an active support group in these areas, this is meant to be an introductory meeting that will allow NAF to connect with members in the areas, gauge interest for a support group, and identify individuals