Calendar of Events
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1 event,
VIRTUAL Boston Ataxia Support Group Evening Chat
VIRTUAL Boston Ataxia Support Group Evening Chat
We welcome anyone to these meetings, regardless of location. Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343
0 events,
1 event,
Chair Yoga & Mobility for People Affected by Ataxia
Chair Yoga & Mobility for People Affected by Ataxia
Featuring Natalie Marnica of Sacred Mountain Yoga About the Session: Do you or someone you care about struggle to find ways to stay active and mobile? For people affected by Ataxia it can be hard to stay mobile when challenged with balance and other neurological issues. That’s why we’re offering this special Chair Yoga and
0 events,
2 events,
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
2 events,
VIRTUAL Central Indiana Support Group Meeting
VIRTUAL Central Indiana Support Group Meeting
For more information contact: Teresa Coccaro at (317) 439-2512 or tcoccaro12@gmail.com
VIRTUAL Arizona Ataxia Support Group Meeting
VIRTUAL Arizona Ataxia Support Group Meeting
Zoom Link https://us02web.zoom.us/j/82443851682?pwd=WnQ3Tnkyb2w5YTJBeVNxVFZrNlBiUT09 Meeting ID: 824 4385 1682 Passcode: 453530 Our speaker will be Steve Norton, from Ability 360. He will speak to us about "healthy eating". Plant forward eating, ”It’s not just for vegetarians” For information and meeting access, contact: Mary Fuchs at Phone #: 480-212-6425 | maryrio101@gmail.com Join Our Facebook Group!
1 event,
VIRTUAL Southeastern Nevada Ataxia Support Group Meeting
VIRTUAL Southeastern Nevada Ataxia Support Group Meeting
We will have a guest speaker focusing on Assistive Technology for Ataxia For access information contact Howard Silverman at Phone #: 702-290-6724 | Email: Silverman3@cox.net Join our Facebook Group: https://www.facebook.com/groups/2090650814550409/?hc_location=group
0 events,
1 event,
VIRTUAL JHU Ataxia Support Group Meeting
VIRTUAL JHU Ataxia Support Group Meeting
JHU Ataxia Support Group Meeting August 9 | 1-2 pm (EST) Zoom link: https://jhjhm.zoom.us/j/99384459312 For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
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0 events,
2 events,
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
4 events,
IN-PERSON North Texas Ataxia Support Group Meeting
IN-PERSON North Texas Ataxia Support Group Meeting
Center Point Church in N.R.H (7804 Mid-Cites Blvd. North Richland Hills, TX 76180) For meeting access information contact: David Henry Jr 817-739-2886 (contact by email preferred) cheve11e@sbcglobal.net Join our Facebook Group!
VIRTUAL St. Louis Ataxia Support Group Meeting
VIRTUAL St. Louis Ataxia Support Group Meeting
We meet at 10:30-12:30 Central Time on the 2nd Saturday of every month. Zoom link: https://us02web.zoom.us/j/9247613557 For meeting access information or to be added to the mailing list for this group please contact: Shannon Dunphy Lazo at 202-306-2738 or shan_d@hotmail.com For more information, see our Facebook Group!
VIRTUAL Treasure Coast Ataxia Support Group Meeting
VIRTUAL Treasure Coast Ataxia Support Group Meeting
Join Zoom Meeting https://us02web.zoom.us/j/84407340457?pwd=o9ePwcDKO4laItJWw8cdxuGC-Klok1.1 For more information contact Lisa Cole at 772-370-3041 | lisacoleataxia@gmail.com Join our Facebook Group!
VIRTUAL Kansas City Ataxia Support Group Meeting
VIRTUAL Kansas City Ataxia Support Group Meeting
Join Zoom Meeting https://us02web.zoom.us/j/6185650820?pwd=RXlPMmpCc0tXTmxydC9RcUF3RUxOZz09 Meeting ID: 618 565 0820 Passcode: 8nsFHF For more information join our mailing list by contacting Stephanie Wilkins at Phone #: 816-623-3318 | Email: sfwilkins@yahoo.com Join our Facebook Group: https://www.facebook.com/groups/208618772974351/
1 event,
VIRTUAL Delaware Ataxia Support Group Meeting
VIRTUAL Delaware Ataxia Support Group Meeting
Join Zoom Meeting https://us06web.zoom.us/j/89374178831?pwd=SHVXckkvRElDcW80MEc2V1V6dkJOZz09 Meeting ID: 893 7417 8831 Passcode: 540557 For more information contact Dawn Lentz at Email: silvercat2800@hotmail.com
1 event,
VIRTUAL Ottawa Ataxia Support Group Meeting
VIRTUAL Ottawa Ataxia Support Group Meeting
We meet at 7pm Eastern every third Monday of the month. For meeting access information Join our Facebook Group: www.facebook.com/groups/1468963499991380/ For more information contact Susan Harding at susangmharding@gmail.com
0 events,
2 events,
IN-PERSON Richmond and Hampton Roads Ataxia Support Group Luncheon
IN-PERSON Richmond and Hampton Roads Ataxia Support Group Luncheon
Location: Mario's Italian Restaurant 9551 Kings Charter Dr, Ashland, VA 23005-7939, United States For more information or to join this group’s mailing list contact Karen Russell at Phone #: 804-543-8707 | Email: klruss@comcast.net or Susan Harris at Phone #: (757) 435-0290 and email: susanharrisvt@icloud.com Join our Facebook Group: https://www.facebook.com/groups/247294295919967/
PrepRARE Webinar: STRIDES Study for SCA 3 – A Clinical Research Study of an Investigational New Drug to Treat Spinocerebellar Ataxia
PrepRARE Webinar: STRIDES Study for SCA 3 – A Clinical Research Study of an Investigational New Drug to Treat Spinocerebellar Ataxia
PrepRARE Webinar: STRIDES Study for SCA 3 – A Clinical Research Study of an Investigational New Drug to Treat Spinocerebellar Ataxia By Dr. David Biondi Description: Dr. David Biondi, a Seelos Therapeutics physician, will provide an overview of the STRIDES study which is currently open to patient recruitment in the United States. The overview will
1 event,
VIRTUAL Richmond Ataxia Support Group Meeting
VIRTUAL Richmond Ataxia Support Group Meeting
For more information or to join this group’s mailing list contact Karen Russell at Phone #: 804-543-8707 | Email: klruss@comcast.net
3 events,
VIRTUAL Connecticut Ataxia Support Group Meeting
VIRTUAL Connecticut Ataxia Support Group Meeting
We meet on the third Friday of the month at 11:30am Eastern Time. For meeting access information contact Susan Masse at: 860-528-1875 or Smasse1875@gmail.com
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
5 events,
IN-PERSON Nebraska Ataxia Support Group Meeting
IN-PERSON Nebraska Ataxia Support Group Meeting
Date and Time: Saturday, August 20, 2022 11:00am to 1:00pm - Lunch provided Meeting Location: Creighton Prep High School Hall of Fame Room 7400 Western Ave., Omaha, NE 68114 Guest Speaker: TBA, OT – Innovate Therapy “The Balancing Game Part Two - External Factors” This session will focus on external factors,
VIRTUAL African Americans with Ataxia Support Group Meeting
VIRTUAL African Americans with Ataxia Support Group Meeting
For meeting access information join our Facebook Group: https://www.facebook.com/groups/501238100417901/ For more information about our group contact Letitia Diggs at Letitia.diggs@iCloud.com | 202-386-8289 or Veronica Denis at aaataxia@gmail.com
VIRTUAL Wisconsin Ataxia Warriors Support Group Meeting
VIRTUAL Wisconsin Ataxia Warriors Support Group Meeting
Join Zoom Meeting https://us02web.zoom.us/j/82103571450?pwd=Z3o3bWRjSlNpNHYreEVpTFZEWUhRdz09 Meeting ID: 821 0357 1450 Passcode: 210716
IN-PERSON Sioux Empire Ataxia Support Group Meeting
IN-PERSON Sioux Empire Ataxia Support Group Meeting
Location: Siouxland Library on 200 North Dakota Ave. Sioux Falls South Dakota, in the library’s conference room For meeting access information contact Mary Beth Farley at Phone #: (605) 941-2913 | Email: englishteacher1116@gmail.com Join Our Facebook Group!
HYBRID Central Ohio Ataxia Support Group Meeting
HYBRID Central Ohio Ataxia Support Group Meeting
Zoom information: https://us02web.zoom.us/j/84205536552?pwd=ejZ1cEpmTExQaXZ6Zlc5T1FxNXV4Zz09 Meeting ID: 842 0553 6552 Passcode: 364527 Physical Location: Old Worthington Library, 820 High St., in the Owl Meeting Room. The following parking information is helpful: The North parking lot off of Stafford Ave is entirely handicap spots – and there is also street side parking just past the lot – and
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4 events,
VIRTUAL Western North Carolina Ataxia Support Group Meeting
VIRTUAL Western North Carolina Ataxia Support Group Meeting
We hope to see you there! For access information contact: Jodie Kawa at Phone #: 828-384-8414 or Email: jodiekawa@comporium.net\ Maggie Dentremont at Phone #: 828-777-7411 Email: magdalenedentremont@gmail.com Join our Facebook Group: https://www.facebook.com/groups/919905244740316/
CANCELLED Chicago Ataxia Support Group Meeting
CANCELLED Chicago Ataxia Support Group Meeting
Join us for our virtual meeting at 2pm Central Time! For the Zoom meeting access information contact Julia Pantoga at Phone #: 414-899-5195 | E-mail: sharpturninstitute@gmail.com
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.
2 events,
Tri-State Walk N’ Roll to Cure Ataxia
Tri-State Walk N’ Roll to Cure Ataxia
In memory of Erin Peterson 9 am - Registration --- 10 am - Walk n' Roll For more information visit: https://app.mobilecause.com/vf/AtaxiaWalkTRI
Western Washington Walk N’ Roll to Cure Ataxia
Western Washington Walk N’ Roll to Cure Ataxia
Western Washington Walk n Roll! Saturday, August 27, 2022 9 am to 2 pm Marymoor Park Redmond, WA Velodrome-covered picnic area. Bring your own picnic. Hot dogs will be provided. Message Sherry McLaughlin ccherilynmc@yahoo.com with questions.
0 events,
1 event,
IN-PERSON San Diego Ataxia Support Group Meeting
IN-PERSON San Diego Ataxia Support Group Meeting
Meeting location: Mission Valley Library Branch Community Room, 2123 Fenton Pkwy, San Diego, CA 92108 For meeting information or questions, email sdataxia@gmail.com Or reach out to Group Leaders: Sharon Ritter (443-752-3411), Michelle Pinard (858-829-5878), or Pamela Kahn (760-855-0487)