Calendar of Events
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0 events,
1 event,
International Congress of Ataxia Research (ICAR) 2022
The National Ataxia Foundation (NAF), the Friedreich’s Ataxia Research Alliance (FARA), and Ataxia UK are pleased to announce the rescheduled date for the inaugural International Congress for Ataxia Research (ICAR) to be held at Renaissance Dallas Addison Hotel in Dallas, Texas, USA. ICAR Website
2 events,
3 events,
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
1 event,
VIRTUAL Treasure Coast Ataxia Support Group Meeting
VIRTUAL Treasure Coast Ataxia Support Group Meeting
For more information contact Lisa Cole at 772-370-3041 | lisacoleataxia@gmail.com Join our Facebook Group!
0 events,
1 event,
VIRTUAL Boston Ataxia Support Group Evening Chat
VIRTUAL Boston Ataxia Support Group Evening Chat
We welcome anyone to these meetings, regardless of location. Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343
1 event,
VIRTUAL JHU Ataxia Support Group Meeting
VIRTUAL JHU Ataxia Support Group Meeting
Zoom link: https://jhjhm.zoom.us/j/99384459312 For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
1 event,
0 events,
2 events,
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
4 events,
IN-PERSON North Texas Ataxia Support Group Meeting
IN-PERSON North Texas Ataxia Support Group Meeting
Meeting Location: Cozby Library and Community Commons at 177 N Heartz Rd., Coppell, TX 75019 (Meeting Room B) Building is handicap accessible. For meeting access information contact: David Henry Jr 817-739-2886 (contact by email preferred) cheve11e@sbcglobal.net Join our Facebook Group!
HYBRID St. Louis Ataxia Support Group Meeting
HYBRID St. Louis Ataxia Support Group Meeting
We meet at 10:30-12:30 Central Time on the 2nd Saturday of every month. If you would like to join us in person: 4921 Parkview Pl, Center for Advanced Medicine (CAM) building - Farrell Conf Rm 1 on the 3rd floor Zoom link: https://us02web.zoom.us/j/9247613557 For meeting access information or to be added to the mailing list for
VIRTUAL Kansas City Ataxia Support Group Meeting
VIRTUAL Kansas City Ataxia Support Group Meeting
Join Zoom Meeting https://us02web.zoom.us/j/6185650820?pwd=RXlPMmpCc0tXTmxydC9RcUF3RUxOZz09 Meeting ID: 618 565 0820 Passcode: 8nsFHF For more information join our mailing list by contacting Stephanie Wilkins at Phone #: 816-623-3318 | Email: sfwilkins@yahoo.com Join our Facebook Group: https://www.facebook.com/groups/208618772974351/
HYBRID Greater Atlanta Ataxia Support Group Meeting
HYBRID Greater Atlanta Ataxia Support Group Meeting
Location: ROSWELL LIBRARY 115 Norcross Street Roswell, GA 30075 Please use this link if you would like to sign up for the group's mailing list: https://mailchi.mp/5325ed76faee/atlanta-ataxia For more information or zoom access contact Greg Rooks at 404-822-7451 |rooksgj@yahoo.com Join Our Facebook Group!
4 events,
JHU Ataxia Center – Caring for the Care Partner
JHU Ataxia Center – Caring for the Care Partner
Please join other care partners who are helping care or provide support for a person living with ataxia for an afternoon of support, discussion, music, yoga & meditation • Music Therapy Session by Amanda Rosado, MMT, LPMT, Mt-BC • Yoga and Breathwork by Melissa Wohlberg, PT, DPT, RYT200 • Compassion Fatigue by Liora Brunn, M.A.,
VIRTUAL Southeastern Nevada Ataxia Support Group Meeting
VIRTUAL Southeastern Nevada Ataxia Support Group Meeting
Guest Speaker: Yoga instructor Natalia Marnica on the benefits of chair yoga for people with ataxia. For access information contact Howard Silverman at Phone #: 702-290-6724 | Email: Silverman3@cox.net Join our Facebook Group: https://www.facebook.com/groups/2090650814550409/?hc_location=group
VIRTUAL Cincinnati Ataxia Community Support Group Meeting
VIRTUAL Cincinnati Ataxia Community Support Group Meeting
Join Zoom Meetinghttps://us02web.zoom.us/j/81955190420?pwd=dGpGM1FkaXNpSzNXTG4weHA3SXVNUT09Meeting ID: 819 5519 0420Passcode: 520754 For more information or to be added to the mailing list for this group please contact: William Vetter at (513) 310-7530 or wjuniorvet@gmail.com Join our Facebook Group: https://www.facebook.com/CincinnatiAtaxiaSupportGroup/
VIRTUAL Delaware Ataxia Support Group Meeting
VIRTUAL Delaware Ataxia Support Group Meeting
Join Zoom Meeting https://us06web.zoom.us/j/89374178831?pwd=SHVXckkvRElDcW80MEc2V1V6dkJOZz09 Meeting ID: 893 7417 8831 Passcode: 540557 For more information contact Dawn Lentz at Email: silvercat2800@hotmail.com
0 events,
1 event,
Ask the Ataxia Expert with Dr. Susan Perlman
Ask the Ataxia Expert with Dr. Susan Perlman
Dr. Perlman will join us bimonthly in 2022 to answer your questions about Ataxia. This is an informal discussion-style webinar without a set topic. You will have the opportunity to ask any questions you have related to Ataxia. Don’t have a question? Join us to listen in! Tuesday, November 15th - 1:00 PM CDT REGISTER
1 event,
3 events,
VIRTUAL Richmond Ataxia Support Group Meeting
VIRTUAL Richmond Ataxia Support Group Meeting
For more information or to join this group’s mailing list contact Karen Russell at Phone #: 804-543-8707 | Email: klruss@comcast.net
VIRTUAL Tri-State Ataxia Support Group Meeting
VIRTUAL Tri-State Ataxia Support Group Meeting
6:30pm Eastern Time Join Zoom Meeting https://us02web.zoom.us/j/85447277446?pwd=cE5qM3ZadmlrVCtTVjFKSVlBTG1Wdz09 For meeting access information, please contact Kathleen Gingerelli at kgingerelli@msn.com | 201-681-7639
VIRTUAL Spouses and Partners of Loved Ones with Ataxia Support Group Meeting
VIRTUAL Spouses and Partners of Loved Ones with Ataxia Support Group Meeting
This group is for spouses and partners without Ataxia who have a spouse or partner with Ataxia. This is our spot to learn from one another, vent, have fun, and discuss topics important to us! For meeting access information join our Facebook Group https://www.facebook.com/groups/AtaxiaSpousesAndPartners/. For additional information about the group contact Dana Mauro at ataxiafacts@gmail.com
4 events,
VIRTUAL Connecticut Ataxia Support Group Meeting
VIRTUAL Connecticut Ataxia Support Group Meeting
We meet on the third Friday of the month at 11:30am Eastern Time. For meeting access information contact Susan Masse at: 860-528-1875 or Smasse1875@gmail.com
VIRTUAL Chicago Ataxia Support Group Meeting
VIRTUAL Chicago Ataxia Support Group Meeting
Join us for our virtual meeting at 2pm Central Time! For the Zoom meeting access information contact Julia Pantoga at Phone #: 414-899-5195 | E-mail: sharpturninstitute@gmail.com
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
6 events,
VIRTUAL Boston Ataxia Support Group Meeting
VIRTUAL Boston Ataxia Support Group Meeting
We welcome anyone to these meetings, regardless of location. Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343
IN-PERSON Nebraska Ataxia Support Group Meeting
IN-PERSON Nebraska Ataxia Support Group Meeting
Date and Time: Saturday, November 19, 2022 11:00am to 1:00pm - Lunch provided Location: TBD Event: “Friendsgiving - Winner, Winner - Turkey Dinner” This is a gathering to celebrate the holidays, each other and enjoy “eats”! For information, visit our website: https://nebraskaataxia.org/events/ For more information contact: Theresa Nelson, 402-979-6331,
IN-PERSON Treasure Coast Ataxia Support Group Meeting
IN-PERSON Treasure Coast Ataxia Support Group Meeting
We will have our In-person ataxia support group meeting on Saturday, November 19 at 11:30 am at Buffalo Chophouse restaurant in Port St Lucie is located at 918 SW Gatlin Blvd, Port St. Lucie, FL 34953 Port St. Lucie is about 2 hours South of Orlando and one hour North of West Palm Beach on the
VIRTUAL African Americans with Ataxia Support Group Meeting
VIRTUAL African Americans with Ataxia Support Group Meeting
For meeting access information join our Facebook Group: https://www.facebook.com/groups/501238100417901/ For more information about our group contact Letitia Diggs at Letitia.diggs@iCloud.com | 202-386-8289 or Veronica Denis at aaataxia@gmail.com
VIRTUAL Central Indiana Support Group Meeting
VIRTUAL Central Indiana Support Group Meeting
For more information contact: Teresa Coccaro at (317) 439-2512 or tcoccaro12@gmail.com
VIRTUAL Wisconsin Ataxia Warriors Support Group Meeting
VIRTUAL Wisconsin Ataxia Warriors Support Group Meeting
Join Zoom Meeting https://us06web.zoom.us/j/82004266881?pwd=VVJNcE41aHB4cFg1bHE2QWgyY05DZz09 Meeting ID: 820 0426 6881 Passcode: 004689 One tap mobile +19292056099,,82004266881#,,,,*004689# US (New York) +13017158592,,82004266881#,,,,*004689# US (Washington DC)
1 event,
IN-PERSON Cincinnati Ataxia Community Support Group Meeting
IN-PERSON Cincinnati Ataxia Community Support Group Meeting
Meeting Location: Reading Branch Library conference room, 8740 Reading rd., Cincinnati, Ohio. For more information or to be added to the mailing list for this group please contact: William Vetter at (513) 310-7530 or wjuniorvet@gmail.com Join our Facebook Group: https://www.facebook.com/CincinnatiAtaxiaSupportGroup/
1 event,
VIRTUAL Ontario Ataxia Support Group Meeting
VIRTUAL Ontario Ataxia Support Group Meeting
We meet at 7pm Eastern every third Monday of the month. For meeting access information Join our Facebook Group: www.facebook.com/groups/1468963499991380/ For more information contact Susan Harding at susangmharding@gmail.com
0 events,
0 events,
0 events,
3 events,
VIRTUAL Western North Carolina Ataxia Support Group Meeting
VIRTUAL Western North Carolina Ataxia Support Group Meeting
We hope to see you there! For access information contact: Jodie Kawa at Phone #: 828-384-8414 or Email: jodiekawa@comporium.net\ Maggie Dentremont at Phone #: 828-777-7411 Email: magdalenedentremont@gmail.com Join our Facebook Group: https://www.facebook.com/groups/919905244740316/
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.