Calendar of Events
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1 event,
VIRTUAL Boston Ataxia Support Group Evening Chat
VIRTUAL Boston Ataxia Support Group Evening Chat
We welcome anyone to these meetings, regardless of location. Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343
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2 events,
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
1 event,
VIRTUAL Self Compassion Through Mindfulness and Drawing Session
VIRTUAL Self Compassion Through Mindfulness and Drawing Session
Mindfulness is identified as a tool for so many with chronic pain, but sitting still and meditating doesn't work for most. I would like to demonstrate and guide participants through more active ways to achieve mindfulness with drawing, and at the same time having an emphasis on being self compassionate through the process. This class
1 event,
VIRTUAL North Texas Ataxia Support Group Meeting
VIRTUAL North Texas Ataxia Support Group Meeting
For meeting access information contact: David Henry Jr 817-739-2886 (contact by email preferred) spinnerjr884@gmail.com Join our Facebook Group!
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2 events,
PrepRARE Webinar: All About Genetic Testing
PrepRARE Webinar: All About Genetic Testing
Tuesday, January 10th 12pm CST | 1pm EST Register: https://us02web.zoom.us/webinar/register/WN_Smu1KV01RFyrpbk5fN6bFA Genetic testing to confirm a diagnosis of Ataxia can be an incredibly useful tool. Genetic testing can help inform decisions around family planning, healthcare/lifestyle choices, and professional/financial planning. A confirmed genetic diagnosis is also often a requirement for participation in clinical trials. Genome Medical, a
VIRTUAL JHU Ataxia Support Group Meeting
VIRTUAL JHU Ataxia Support Group Meeting
Zoom link: https://jhjhm.zoom.us/j/98422128138 For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
1 event,
WEBINAR: All About Unknown Ataxia Without a Family History
WEBINAR: All About Unknown Ataxia Without a Family History
Do you have an unknown Ataxia type and no family history? Join our webinar to learn about the causes and symptoms of the disease, the typical diagnostic journey for those affected, and what to expect for clinical care. Wednesday, January 11, 2023 11am CST | 12pm EST Register - https://us02web.zoom.us/webinar/register/WN_JNrPrWynSVaVv2jNq0Wc2g
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2 events,
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
3 events,
HYBRID St. Louis Ataxia Support Group Meeting
HYBRID St. Louis Ataxia Support Group Meeting
We’ll meet this Saturday at 10:30 CT -- we’re having HYBRID meetings now! In person: We’ll meet in the same room as before*, Farrell Conf Rm 1 in the Center for Advanced Medicine, 3rd floor Zoom: https://us02web.zoom.us/j/9247613557 For meeting access information or to be added to the mailing list for this group please contact: Shannon
VIRTUAL Treasure Coast Ataxia Support Group Meeting
VIRTUAL Treasure Coast Ataxia Support Group Meeting
For more information contact Lisa Cole at 772-370-3041 | lisacoleataxia@gmail.com Join our Facebook Group!
VIRTUAL Kansas City Ataxia Support Group Meeting
VIRTUAL Kansas City Ataxia Support Group Meeting
Join Zoom Meeting https://us02web.zoom.us/j/6185650820?pwd=RXlPMmpCc0tXTmxydC9RcUF3RUxOZz09 Meeting ID: 618 565 0820 Passcode: 8nsFHF For more information join our mailing list by contacting Stephanie Wilkins at Phone #: 816-623-3318 | Email: sfwilkins@yahoo.com Join our Facebook Group: https://www.facebook.com/groups/208618772974351/
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1 event,
Ask the Ataxia Expert with Dr. Susan Perlman
Ask the Ataxia Expert with Dr. Susan Perlman
Dr. Susan Perlman of UCLA Medical Center in Los Angeles joins NAF to offer a Q&A session for the Ataxia community. This is an informal discussion-style webinar without a set topic. You will have the opportunity to ask any questions you have related to Ataxia. Monday, January 16, 2023 1pm CST | 2pm EST Register:
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1 event,
VIRTUAL Ontario Ataxia Support Group Meeting
VIRTUAL Ontario Ataxia Support Group Meeting
We meet at 7pm Eastern every third Wednesday of the month. For meeting access information Join our Facebook Group: www.facebook.com/groups/1468963499991380/ For more information contact Susan Harding at susangmharding@gmail.com
3 events,
VIRTUAL Richmond Ataxia Support Group Meeting
VIRTUAL Richmond Ataxia Support Group Meeting
For more information or to join this group’s mailing list contact Karen Russell at Phone #: 804-543-8707 | Email: klruss@comcast.net
VIRTUAL JHU Presentation
VIRTUAL JHU Presentation
Zoom link: https://jhjhm.zoom.us/meeting/register/tJMoce6trz0uE9zA91dskUtrY4JLcWgs9waY Speech-Language Pathologist, Lindsey Kelly, M.A., CCC-SLP, will review motor speech disorders and what an individual's plan of care may look like if they seek out speech therapy to maintain or improve current levels of intelligibility. There will be an opportunity to learn, review and practice compensatory strategies and home exercises. For
VIRTUAL Spouses and Partners of Loved Ones with Ataxia Support Group Meeting
VIRTUAL Spouses and Partners of Loved Ones with Ataxia Support Group Meeting
EASTERN TIME This group is for spouses and partners without Ataxia who have a spouse or partner with Ataxia. This is our spot to learn from one another, vent, have fun, and discuss topics important to us! For meeting access information join our Facebook Group https://www.facebook.com/groups/AtaxiaSpousesAndPartners/. For additional information about the group contact Dana Mauro
3 events,
VIRTUAL Connecticut Ataxia Support Group Meeting
VIRTUAL Connecticut Ataxia Support Group Meeting
We meet on the third Friday of the month at 11:30am Eastern Time. For meeting access information contact Susan Masse at: 860-528-1875 or Smasse1875@gmail.com
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
4 events,
VIRTUAL Northwestern Washington Yetis Ataxia Support Group Meeting
VIRTUAL Northwestern Washington Yetis Ataxia Support Group Meeting
Google Meets Link: https://meet.google.com/wms-koqx-evb Contact Instructor Christina Newell at christinanwwasg@gmail.com with questions.
VIRTUAL Twin Cities Ataxia Support Group Meeting
VIRTUAL Twin Cities Ataxia Support Group Meeting
For access information join our Facebook Group https://www.facebook.com/groups/103233603504142/ For other questions contact Lenore Healey Schultz at Phone #: 612-724-3784 | E-mail: schultz.lenore@yahoo.com
IN-PERSON Boston Ataxia Support Group Luncheon
IN-PERSON Boston Ataxia Support Group Luncheon
Location: Kowloon Restaurant in Saugus For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343
HYBRID Central Ohio Ataxia Support Group Meeting
HYBRID Central Ohio Ataxia Support Group Meeting
EASTERN TIME Zoom information: https://deloitte.zoom.us/j/9775962785?pwd=azhmd2c3UDVRV3JPUURBOHdtQlN6UT09 Physical Location: Old Worthington Library, 820 High St., in the Owl Meeting Room. The following parking information is helpful: For more information, contact Sue Moore: susanlmoore1@gmail.com 614-395-9933
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1 event,
IN-PERSON San Diego Ataxia Support Group Meeting
IN-PERSON San Diego Ataxia Support Group Meeting
Meeting location: 12095 World Trade Drive, San Diego, CA 92128 For meeting information or questions, reach out to Group Leader: Pamela Kahn at familykahn@cox.net (or call 760-855-0487)
2 events,
VIRTUAL JHU Presentation
VIRTUAL JHU Presentation
Zoom link: https://jhjhm.zoom.us/meeting/register/tJUtfu2orTgtGdHdPJLAootC6RkdaXgpQwW_ Occupational therapist, Elizabeth Foss, OTR/L, will discuss the research and evidence that supports both the prevention and treatment of ataxia. Various adapted equipment devices and activity adaptations will be reviewed to improve functional independence and reduce risk for falls for individuals with ataxia. For more information, contact Melissa Egerton, JHU Health
VIRTUAL JHU Presentation
VIRTUAL JHU Presentation
Zoom link; https://jhjhm.zoom.us/meeting/register/tJEufu-qrT4pH9zaT1GbydpD_q86uaQidG9h Speech-Language Pathologist, Rachel Glendenning, M.A., CCC-SLP, will discuss strategies to prevent choking and how to manage chronic aspiration and minimize risk. For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
1 event,
WEBINAR: Research Into the Genetics of Unknown Ataxia Without a Family History
WEBINAR: Research Into the Genetics of Unknown Ataxia Without a Family History
Do you have an unknown Ataxia type and no family history? Join our webinar to learn about the causes and symptoms of the disease, the typical diagnostic journey for those affected, and what to expect for clinical care. Wednesday, January 25, 2023 12pm CST | 1pm EST Register - https://us02web.zoom.us/webinar/register/WN_JoJaqMw3RWOHdaOLhYXdOA
0 events,
3 events,
VIRTUAL Chicago Ataxia Support Group Meeting
VIRTUAL Chicago Ataxia Support Group Meeting
Join us for our virtual meeting at 2pm Central Time! For the Zoom meeting access information contact Julia Pantoga at Phone #: 414-899-5195 | E-mail: sharpturninstitute@gmail.com
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.