Calendar of Events
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0 events,
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1 event,
VIRTUAL JHU Music Therapy Session
VIRTUAL JHU Music Therapy Session
EASTERN TIME Presented by: Emily Mahoney, MMT, LGPC, LPMT, MT-BC The same zoom link will be used for each session, (registration is required). https://jhjhm.zoom.us/meeting/register/tJAtfumurj0qGdTX2xHaOHGp6WqCWsjdvahn For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
1 event,
2023 Annual Ataxia Conference
Join us for AAC at Planet Hollywood in Las Vegas, NV! For more info visit our website. https://www.ataxia.org/annual-ataxia-conference/
5 events,
VIRTUAL Western North Carolina Ataxia Support Group Meeting
VIRTUAL Western North Carolina Ataxia Support Group Meeting
We hope to see you there! For access information contact: Jodie Kawa at Phone #: 828-384-8414 or Email: jodiekawa@comporium.net\ Maggie Dentremont at Phone #: 828-777-7411 Email: magdalenedentremont@gmail.com Join our Facebook Group: https://www.facebook.com/groups/919905244740316/
VIRTUAL Chicago Ataxia Support Group Meeting
VIRTUAL Chicago Ataxia Support Group Meeting
Join us for our virtual meeting at 2pm Central Time! We'll be joined by Craniosacral therapist, Candace Pantoga, who will talk to us about what craniosacral therapy is and how it is beneficial for ataxians. For the Zoom meeting access information contact Julia Pantoga at Phone #: 414-899-5195 | E-mail: sharpturninstitute@gmail.com
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
2 events,
VIRTUAL Self Compassion Through Mindfulness and Drawing Session
VIRTUAL Self Compassion Through Mindfulness and Drawing Session
Mindfulness is identified as a tool for so many with chronic pain, but sitting still and meditating doesn't work for most. I would like to demonstrate and guide participants through more active ways to achieve mindfulness with drawing, and at the same time having an emphasis on being self compassionate through the process. This class
0 events,
1 event,
VIRTUAL Boston Ataxia Support Group Evening Chat
VIRTUAL Boston Ataxia Support Group Evening Chat
We welcome anyone to these meetings, regardless of location. Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343
0 events,
1 event,
VIRTUAL JHU Music Therapy Session
VIRTUAL JHU Music Therapy Session
EASTERN TIME Presented by: Emily Mahoney, MMT, LGPC, LPMT, MT-BC The same zoom link will be used for each session, (registration is required). https://jhjhm.zoom.us/meeting/register/tJAtfumurj0qGdTX2xHaOHGp6WqCWsjdvahn For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
0 events,
3 events,
VIRTUAL North Carolina Triangle Ataxia Support Group Meeting
VIRTUAL North Carolina Triangle Ataxia Support Group Meeting
EASTERN TIME Zoom Link: https://us06web.zoom.us/j/86359579262?pwd=eWhMWWpTZjNwMmlONVh4WnFQd1orZz09 Meeting ID: 863 5957 9262 Passcode: zfsW5T During the meeting we will be talking about TRAVEL. We will be sharing travel tips and stories, so please feel free to bring your talkies of woe or success. Contact Kaitlyn Briggs at kebriggs@comcast.net for more information
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
5 events,
VIRTUAL North Texas Ataxia Support Group Meeting
VIRTUAL North Texas Ataxia Support Group Meeting
For meeting access information contact: David Henry Jr 817-739-2886 (contact by email preferred) spinnerjr884@gmail.com Join our Facebook Group!
HYBRID St. Louis Ataxia Support Group Meeting
HYBRID St. Louis Ataxia Support Group Meeting
We meet at 10:30-12:30 Central Time on the 2nd Saturday of every month. Location: Center for Advanced Medicine at the WashU/BJD medical complex Zoom link: https://us02web.zoom.us/j/9247613557 For meeting access information or to be added to the mailing list for this group please contact: Shannon Dunphy Lazo at 202-306-2738 or shan_d@hotmail.com For more information, see our
VIRTUAL Treasure Coast Ataxia Support Group Meeting
VIRTUAL Treasure Coast Ataxia Support Group Meeting
EASTERN TIME Join Zoom Meeting https://us02web.zoom.us/j/84984977383?pwd=clliaE0yTER3ZVA3L2Z5RXN0SWdtUT09 Meeting ID: 849 8497 7383 Passcode: 990545 For more information contact Lisa Cole at 772-370-3041 | lisacoleataxia@gmail.com Join our Facebook Group!
VIRTUAL Arizona Ataxia Support Group Meeting
VIRTUAL Arizona Ataxia Support Group Meeting
MOUNTAIN TIME For information and meeting access, contact: Mary Fuchs at Phone #: 480-212-6425 | maryrio101@gmail.com Join Our Facebook Group!
VIRTUAL Kansas City Ataxia Support Group Meeting
VIRTUAL Kansas City Ataxia Support Group Meeting
Join Zoom Meeting https://us02web.zoom.us/j/6185650820?pwd=RXlPMmpCc0tXTmxydC9RcUF3RUxOZz09 Meeting ID: 618 565 0820 Passcode: 8nsFHF For more information join our mailing list by contacting Stephanie Wilkins at Phone #: 816-623-3318 | Email: sfwilkins@yahoo.com Join our Facebook Group: https://www.facebook.com/groups/208618772974351/
1 event,
VIRTUAL Delaware Ataxia Support Group Meeting
VIRTUAL Delaware Ataxia Support Group Meeting
EASTERN TIME Join Zoom Meeting https://us06web.zoom.us/j/85360518033?pwd=M3dyMnFwdVMrMFpBSythRWRXTTFyUT09 Meeting ID: 853 6051 8033 Passcode: 281636 For more information contact Dawn Lentz at Email: silvercat2800@hotmail.com
1 event,
WEBINAR: All About SCA6
WEBINAR: All About SCA6
Join our webinar to learn about the causes and symptoms of SCA6/EA2, the typical diagnostic journey for those affected, and what to expect for clinical care. The speaker will be Anoopum Gupta, MD, PhD Register HERE!
2 events,
Ask the Expert with Dr. Susan Perlman
Ask the Expert with Dr. Susan Perlman
Dr. Susan Perlman of UCLA Medical Center in Los Angeles joins NAF to offer a Q&A session for the Ataxia community. This is an informal discussion-style webinar without a set topic. You will have the opportunity to ask any questions you have related to Ataxia. Please do not submit questions in advance. Post your questions
VIRTUAL JHU Ataxia Support Group Meeting
VIRTUAL JHU Ataxia Support Group Meeting
Zoom link: https://jhjhm.zoom.us/j/98422128138 For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
1 event,
VIRTUAL JHU Music Therapy Session
VIRTUAL JHU Music Therapy Session
EASTERN TIME Presented by: Emily Mahoney, MMT, LGPC, LPMT, MT-BC The same zoom link will be used for each session, (registration is required). https://jhjhm.zoom.us/meeting/register/tJAtfumurj0qGdTX2xHaOHGp6WqCWsjdvahn For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
0 events,
2 events,
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
7 events,
VIRTUAL Northwestern Washington Yetis Ataxia Support Group Meeting
VIRTUAL Northwestern Washington Yetis Ataxia Support Group Meeting
Google Meets Link: https://meet.google.com/wms-koqx-evb Contact Instructor Christina Newell at christinanwwasg@gmail.com with questions.
VIRTUAL Boston Ataxia Support Group Meeting
VIRTUAL Boston Ataxia Support Group Meeting
We welcome anyone to these meetings, regardless of location. Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343
VIRTUAL Twin Cities Ataxia Support Group Meeting
VIRTUAL Twin Cities Ataxia Support Group Meeting
For access information join our Facebook Group https://www.facebook.com/groups/103233603504142/ For other questions contact Lenore Healey Schultz at Phone #: 612-724-3784 | E-mail: schultz.lenore@yahoo.com
HYBRID Nebraska Ataxia Support Group Meeting
HYBRID Nebraska Ataxia Support Group Meeting
CENTRAL TIME Fur-ever Fun Pet Therapy Discuss benefits of pet therapy/service animals for certain neurological conditions Speaker – Jo Stutheit with Domesti-PUPS Location- Grief’s Journey, 7811 Farnam St., Omaha, NE 68114 from 11:00am to 1:00pm - Lunch provided Join virtually via Zoom if you cannot attend in person, email info@nebraskaataxia.org for the Zoom link
IN-PERSON Central Pennsylvania Ataxia Support Group Meeting
IN-PERSON Central Pennsylvania Ataxia Support Group Meeting
EASTERN TIME For meeting access information contact Michael Cammer at Phone #: 610-996-5814 | Email: michael.cammer62@hotmail.com Join Our Facebook Group: https://www.facebook.com/groups/1475283086068548/
VIRTUAL Wisconsin Ataxia Warriors Support Group Meeting
VIRTUAL Wisconsin Ataxia Warriors Support Group Meeting
CENTRAL TIME For information and virtual access, contact Greg Forster at ForGreg77@protonmail.com
HYBRID Greater Atlanta Ataxia Support Group Meeting
HYBRID Greater Atlanta Ataxia Support Group Meeting
EASTERN TIME Location: EMORY BRAIN HEALTH CENTER - First Floor Training Room 12 Executive Park Drive Atlanta, GA 30329 Zoom info to come Please use this link if you would like to sign up for the group's mailing list: https://mailchi.mp/5325ed76faee/atlanta-ataxia For more information or zoom access contact Greg Rooks at 404-822-7451 |rooksgj@yahoo.com Join Our
0 events,
0 events,
0 events,
2 events,
VIRTUAL JHU Music Therapy Session
VIRTUAL JHU Music Therapy Session
EASTERN TIME Presented by: Emily Mahoney, MMT, LGPC, LPMT, MT-BC The same zoom link will be used for each session, (registration is required). https://jhjhm.zoom.us/meeting/register/tJAtfumurj0qGdTX2xHaOHGp6WqCWsjdvahn For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
VIRTUAL Ontario Ataxia Support Group Meeting
VIRTUAL Ontario Ataxia Support Group Meeting
We meet at 7pm Eastern every third Wednesday of the month. For meeting access information Join our Facebook Group: www.facebook.com/groups/1468963499991380/ For more information contact Susan Harding at susangmharding@gmail.com
1 event,
VIRTUAL Richmond Ataxia Support Group Meeting
VIRTUAL Richmond Ataxia Support Group Meeting
For more information or to join this group’s mailing list contact Karen Russell at Phone #: 804-543-8707 | Email: klruss@comcast.net
3 events,
VIRTUAL Connecticut Ataxia Support Group Meeting
VIRTUAL Connecticut Ataxia Support Group Meeting
We meet on the third Friday of the month at 11:30am Eastern Time. For meeting access information contact Susan Masse at: 860-528-1875 or Smasse1875@gmail.com
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
0 events,
0 events,
0 events,
0 events,
1 event,
VIRTUAL JHU Music Therapy Session
VIRTUAL JHU Music Therapy Session
EASTERN TIME Presented by: Emily Mahoney, MMT, LGPC, LPMT, MT-BC The same zoom link will be used for each session, (registration is required). https://jhjhm.zoom.us/meeting/register/tJAtfumurj0qGdTX2xHaOHGp6WqCWsjdvahn For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
0 events,
5 events,
VIRTUAL Western North Carolina Ataxia Support Group Meeting
VIRTUAL Western North Carolina Ataxia Support Group Meeting
We hope to see you there! For access information contact: Jodie Kawa at Phone #: 828-384-8414 or Email: jodiekawa@comporium.net\ Maggie Dentremont at Phone #: 828-777-7411 Email: magdalenedentremont@gmail.com Join our Facebook Group: https://www.facebook.com/groups/919905244740316/
VIRTUAL Chicago Ataxia Support Group Meeting
VIRTUAL Chicago Ataxia Support Group Meeting
Join us for our virtual meeting at 2pm Central Time! Our speaker for May is Gary Karp who will talk to us about Disability History. For the Zoom meeting access information contact Julia Pantoga at Phone #: 414-899-5195 | E-mail: sharpturninstitute@gmail.com
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
IN-PERSON Boston Ataxia Support Group Bike Outing
IN-PERSON Boston Ataxia Support Group Bike Outing
EASTERN TIME Participants will be given the opportunity to try out different recumbent trikes on the Bruce Freeman rail trail in Acton. Please fill out the following forms before the event: https://accessportamerica.charityproud.org/WebForm/Index/1333?formCode=4a882277-d043-4ba1-940a-06fc1b3f284a Note this registration is only for participant information and you can disregard the costs. https://www.waiverfile.com/b/AccesSportAmerica/Waiver.aspx?formid=4edbb891-7953-413e-8ec1-f3522bd69740 Note that the waiver form refers to helmets but know that they will be provided if you do
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.