Calendar of Events
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1 event,
VIRTUAL Ataxia Resources and Discussion Group Meeting
VIRTUAL Ataxia Resources and Discussion Group Meeting
EASTERN TIME Topic: Living with Ataxia Speaker: Dr. Jason Wolfer and Nan Vail Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09 For more information, contact Susan Stiles at sstiles12@gmail.com
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1 event,
VIRTUAL Spouses and Partners of Loved Ones with Ataxia Support Group Meeting
VIRTUAL Spouses and Partners of Loved Ones with Ataxia Support Group Meeting
EASTERN TIME This group is for spouses and partners without Ataxia who have a spouse or partner with Ataxia. This is our spot to learn from one another, vent, have fun, and discuss topics important to us! For meeting access information join our Facebook Group https://www.facebook.com/groups/AtaxiaSpousesAndPartners/. For additional information about the group contact Dana Mauro
2 events,
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
2 events,
IN-PERSON Los Angeles Ataxia Support Group Meeting
IN-PERSON Los Angeles Ataxia Support Group Meeting
PACIFIC TIME Location: community room at Los Nietos County Library - 8511 Duchess, Whittier 90606 We will have light refreshments - Please RSVP to Pete Selak so that we provide the right about of drinks and treats. For more information, contact Peter Selak at Email: peter.selak47@gmail.com or Phone: (626) 833-0700
VIRTUAL Arizona Ataxia Support Group Meeting
VIRTUAL Arizona Ataxia Support Group Meeting
MOUNTAIN TIME Join Zoom Meeting https://us02web.zoom.us/j/7131682666?pwd=L1dtVzY5M3RHeGkybEVkZHdwWXp5QT09 For information and meeting access, contact: Mary Fuchs at Phone #: 480-212-6425 | maryrio101@gmail.com Join Our Facebook Group!
1 event,
IN-PERSON Richmond Ataxia Support Group Lunch
IN-PERSON Richmond Ataxia Support Group Lunch
EASTERN TIME Location: K'Bola Restaurant - 5201 Center St., Williamsburg, VA (Parking is easiest on the side streets of the restaurant) Please RSVP to Karen Russell so that a large enough table can be reserved. For more information or to join this group’s mailing list contact Karen Russell at Phone #: 804-543-8707 | Email:
2 events,
VIRTUAL Ataxia Resources and Discussion Group Meeting
VIRTUAL Ataxia Resources and Discussion Group Meeting
EASTERN TIME Topic: A new approach to adaptive products Speaker: Liam Dougherty, Day Undefined Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09 For more information, contact Susan Stiles at sstiles12@gmail.com
VIRTUAL Boston Ataxia Support Group Evening Chat
VIRTUAL Boston Ataxia Support Group Evening Chat
We welcome anyone to these meetings, regardless of location. Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343
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2 events,
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
7 events,
VIRTUAL Self Compassion Through Mindfulness and Drawing Session
VIRTUAL Self Compassion Through Mindfulness and Drawing Session
Mindfulness is identified as a tool for so many with chronic pain, but sitting still and meditating doesn't work for most. I would like to demonstrate and guide participants through more active ways to achieve mindfulness with drawing, and at the same time having an emphasis on being self compassionate through the process. This class
IN-PERSON JHU Annual Ataxia Sailing Day
IN-PERSON JHU Annual Ataxia Sailing Day
EASTERN TIME The Johns Hopkins Ataxia Center is excited to announce our annual Ataxia Adaptive Sailing Day, which is scheduled for Saturday, June 10, 2023 from 10 am to 12 p.m. (weather permitting). We hope to have a lunch social gathering at Little Havana afterwards for anyone who would like to attend. Family and friends
VIRTUAL North Texas Ataxia Support Group Meeting
VIRTUAL North Texas Ataxia Support Group Meeting
For meeting access information contact: David Henry Jr 817-739-2886 (contact by email preferred) spinnerjr884@gmail.com Join our Facebook Group!
VIRTUAL St. Louis Ataxia Support Group Meeting
VIRTUAL St. Louis Ataxia Support Group Meeting
We meet at 10:30-12:30 Central Time on the 2nd Saturday of every month. Zoom link: https://us02web.zoom.us/j/9247613557 For meeting access information or to be added to the mailing list for this group please contact: Shannon Dunphy Lazo at 202-306-2738 or shan_d@hotmail.com For more information, see our Facebook Group!
VIRTUAL Treasure Coast Ataxia Support Group Meeting
VIRTUAL Treasure Coast Ataxia Support Group Meeting
EASTERN TIME Join Zoom Meeting https://us02web.zoom.us/j/84984977383?pwd=clliaE0yTER3ZVA3L2Z5RXN0SWdtUT09 Meeting ID: 849 8497 7383 Passcode: 990545 For more information contact Lisa Cole at 772-370-3041 | lisacoleataxia@gmail.com Join our Facebook Group!
VIRTUAL Kansas City Ataxia Support Group Meeting
VIRTUAL Kansas City Ataxia Support Group Meeting
Join Zoom Meeting https://us02web.zoom.us/j/6185650820?pwd=RXlPMmpCc0tXTmxydC9RcUF3RUxOZz09 Meeting ID: 618 565 0820 Passcode: 8nsFHF For more information join our mailing list by contacting Stephanie Wilkins at Phone #: 816-623-3318 | Email: sfwilkins@yahoo.com Join our Facebook Group: https://www.facebook.com/groups/208618772974351/
IN-PERSON Greater Atlanta Support Group Picnic
IN-PERSON Greater Atlanta Support Group Picnic
EASTERN TIME Location: Lanier Park 1360 Buford Dam Rd. Buford, GA 30518 Please use this link if you would like to sign up for the group's mailing list: https://mailchi.mp/5325ed76faee/atlanta-ataxia For more information or zoom access contact Greg Rooks at 404-822-7451 |rooksgj@yahoo.com Join Our Facebook Group!
2 events,
VIRTUAL Cincinnati Ataxia Support Group Meeting
VIRTUAL Cincinnati Ataxia Support Group Meeting
EASTERN TIME Join Zoom Meetinghttps://us02web.zoom.us/j/81955190420?pwd=dGpGM1FkaXNpSzNXTG4weHA3SXVNUT09 For more information or to be added to the mailing list for this group please contact: William Vetter at (513) 310-7530 or wjuniorvet@gmail.com Join our Facebook Group: https://www.facebook.com/CincinnatiAtaxiaSupportGroup/
VIRTUAL Delaware Ataxia Support Group Meeting
VIRTUAL Delaware Ataxia Support Group Meeting
EASTERN TIME Join Zoom Meeting https://us06web.zoom.us/j/85360518033?pwd=M3dyMnFwdVMrMFpBSythRWRXTTFyUT09 Meeting ID: 853 6051 8033 Passcode: 281636 For more information contact Dawn Lentz at Email: silvercat2800@hotmail.com
1 event,
VIRTUAL Ataxia Resources and Discussion Group Meeting
VIRTUAL Ataxia Resources and Discussion Group Meeting
EASTERN TIME Topic: Byacre rollator, exercises and demo Speaker: Paula Childs Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09 For more information, contact Susan Stiles at sstiles12@gmail.com
1 event,
VIRTUAL JHU Ataxia Support Group Meeting
VIRTUAL JHU Ataxia Support Group Meeting
Zoom link: https://jhjhm.zoom.us/j/98422128138 For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
1 event,
WEBINAR: Chair Yoga & Mobility
WEBINAR: Chair Yoga & Mobility
Sacred Mountain Yoga's philosophy is simple, if you can breathe you can do yoga. They teach a nondogmatic, no-fluff approach to yoga. It's accessible for people in chairs and wheelchairs, and no previous experience is necessary to attend. Join Natalie as she guides you through a simple sit and stand Chair Yoga class to help
2 events,
VIRTUAL Richmond Virginia Ataxia Support Group Meeting
VIRTUAL Richmond Virginia Ataxia Support Group Meeting
EASTERN TIME For more information or to join this group’s mailing list contact Karen Russell at Phone #: 804-543-8707 | Email: klrataxia@gmail.com
IN-PERSON Hampton Roads Ataxia Support Group Meeting
IN-PERSON Hampton Roads Ataxia Support Group Meeting
EASTERN TIME Location: Sentara BelleHarbour third floor conference room. 3920A Bridge Road in Suffolk, Virginia, 23435 We will be having several occupational and speech therapists attending, and we will have lunch provided by Chick-fil-A Please RSVP to Susan Harris For more information contact Susan Harris at Phone #: (757) 435-0290 and email: susanharrisvt@icloud.com
3 events,
VIRTUAL Connecticut Ataxia Support Group Meeting
VIRTUAL Connecticut Ataxia Support Group Meeting
We meet on the third Friday of the month at 11:30am Eastern Time. For meeting access information contact Susan Masse at: 860-528-1875 or Smasse1875@gmail.com
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
7 events,
VIRTUAL Northwestern Washington Yetis Ataxia Support Group Meeting
VIRTUAL Northwestern Washington Yetis Ataxia Support Group Meeting
Google Meets Link: https://meet.google.com/wms-koqx-evb Contact Instructor Christina Newell at christinanwwasg@gmail.com with questions.
VIRTUAL Boston Ataxia Support Group Meeting
VIRTUAL Boston Ataxia Support Group Meeting
We welcome anyone to these meetings, regardless of location. Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343
IN-PERSON Twin Cities Ataxia Support Group Meeting
IN-PERSON Twin Cities Ataxia Support Group Meeting
CENTRAL TIME Location: Harmony Gardens in Maplewood. https://www.harmonygardenssenior.org/ For access information join our Facebook Group https://www.facebook.com/groups/103233603504142/ For other questions contact Lenore Healey Schultz at Phone #: 612-724-3784 | E-mail: schultz.lenore@yahoo.com
HYBRID Nebraska Ataxia Support Group Meeting
HYBRID Nebraska Ataxia Support Group Meeting
CENTRAL TIME Navigating the Legal Concerns Discuss what you need to know about power of attorney, living will, Disability, Social Security Insurance and other legal issues Speaker – Emily Tosoni, Baird Holm Location- Grief’s Journey, 7811 Farnam St., Omaha, NE 68114 from 11:00am to 1:00pm - Lunch provided Join virtually via Zoom if you
VIRTUAL Western Washington Book Club Meeting
VIRTUAL Western Washington Book Club Meeting
PACIFIC TIME If you are interested in participating in book club, please contact Sherry McLaughlin (contact info below) to sign up. For more information join our Facebook Group: https://www.facebook.com/groups/1033349420106652/ or contact Sherry McLaughlin Phone #: 360-443-6206 | Email: cherilyn546@gmail.com
VIRTUAL African Americans With Ataxia Support Group Meeting
VIRTUAL African Americans With Ataxia Support Group Meeting
EASTERN TIME For meeting access information, contact the support group leaders or join our Facebook Group: https://www.facebook.com/groups/501238100417901/ For more information about our group contact Letitia Diggs at Letitia.diggs@iCloud.com | 202-386-8289 or Veronica Denis at aaataxia@gmail.com
VIRTUAL Wisconsin Ataxia Warriors Support Group Meeting
VIRTUAL Wisconsin Ataxia Warriors Support Group Meeting
CENTRAL TIME For information and virtual access, contact Greg Forster at ForGreg77@protonmail.com
1 event,
CANCELLED Cincinnati Ataxia Support Group Meeting
CANCELLED Cincinnati Ataxia Support Group Meeting
EASTERN TIME Meeting Location: Reading Branch Library conference room, 8740 Reading rd., Cincinnati, Ohio. For more information or to be added to the mailing list for this group please contact: William Vetter at (513) 310-7530 or wjuniorvet@gmail.com Join our Facebook Group: https://www.facebook.com/CincinnatiAtaxiaSupportGroup/
1 event,
VIRTUAL Ataxia Resources and Discussion Group Meeting
VIRTUAL Ataxia Resources and Discussion Group Meeting
EASTERN TIME Topic: Broadway for Ataxia Speaker: Lexi Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09 For more information, contact Susan Stiles at sstiles12@gmail.com
1 event,
WEBINAR – Social Security: The Basics About Disability Benefits
WEBINAR – Social Security: The Basics About Disability Benefits
Title: Social Security: The Basics About Disability Benefits Webinar Description: Social Security benefits provide economic security to millions of Americans, including workers and their dependents when a debilitating illness or injury strikes. Our Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI) programs provide critical financial assistance and access to healthcare through Medicaid and
1 event,
VIRTUAL Ontario Ataxia Support Group Meeting
VIRTUAL Ontario Ataxia Support Group Meeting
We meet at 7pm Eastern every third Wednesday of the month. For meeting access information Join our Facebook Group: www.facebook.com/groups/1468963499991380/ For more information contact Susan Harding at susangmharding@gmail.com
0 events,
2 events,
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
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2 events,
Immune-Mediated Ataxia from a Research Perspective
Immune-Mediated Ataxia from a Research Perspective
Do you or a loved one have Immune-Mediated Ataxia? Our expert will teach us how it is studied and give an overview of the current state of research and drug development for the disease. Join us June 26, 2023 at 10:00 AM Central Time (US and Canada) REGISTER HERE!
VIRTUAL Ataxia Resources and Discussion Group Meeting
VIRTUAL Ataxia Resources and Discussion Group Meeting
EASTERN TIME Topic: Ataxia Toolbox - mobility aids and other adaptive equipment Speaker: John Mauro, NAF Executive Board of Directors Member Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09 For more information, contact Susan Stiles at sstiles12@gmail.com
1 event,
VIRTUAL Lower Michigan Ataxia Support Group Meeting
VIRTUAL Lower Michigan Ataxia Support Group Meeting
EASTERN TIME Zoom link: https://us06web.zoom.us/j/85747241562?pwd=M0JJV2tHM1g3cGs3TjJ3YlpnRWJMQT09 For more information, email Brenda Cavanaugh at bkjgcavanaugh@gmail.com Don't forget to join our facebook group! https://www.facebook.com/groups/900105314524248
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4 events,
VIRTUAL Western North Carolina Ataxia Support Group Meeting
VIRTUAL Western North Carolina Ataxia Support Group Meeting
We hope to see you there! For access information contact: Jodie Kawa at Phone #: 828-384-8414 or Email: jodiekawa@comporium.net\ Maggie Dentremont at Phone #: 828-777-7411 Email: magdalenedentremont@gmail.com Join our Facebook Group: https://www.facebook.com/groups/919905244740316/
VIRTUAL Chicago Ataxia Support Group Meeting
VIRTUAL Chicago Ataxia Support Group Meeting
Join us for our virtual meeting at 2pm Central Time! For the Zoom meeting access information contact Julia Pantoga at Phone #: 414-899-5195 | E-mail: sharpturninstitute@gmail.com
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.