Calendar of Events
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1 event,
VIRTUAL Ataxia Resources and Discussion Group Meeting
VIRTUAL Ataxia Resources and Discussion Group Meeting
EASTERN TIME Topic: Introduction and background (Living with Ataxia story) Speaker: Douglas "Art" Thomas (via YouTube video) Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09 For more information, contact Susan Stiles at sstiles12@gmail.com
0 events,
1 event,
VIRTUAL JHU Music Therapy Session
VIRTUAL JHU Music Therapy Session
EASTERN TIME Presented by: Emily Mahoney, MMT, LGPC, LPMT, MT-BC Register to attend here For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
0 events,
3 events,
VIRTUAL North Carolina Triangle Ataxia Support Group Meeting
VIRTUAL North Carolina Triangle Ataxia Support Group Meeting
EASTERN TIME Topic: Financial and Legal Considerations for Individuals with Disabilities and Their Families It is critical to understand the various financial and legal considerations for individuals with disabilities. Having a better understanding will help you to be better prepared now, and in the future. This workshop will discuss important government benefits (Social Security Retirement,
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
2 events,
VIRTUAL Arizona Ataxia Support Group Meeting
VIRTUAL Arizona Ataxia Support Group Meeting
MOUNTAIN TIME Join Zoom Meeting https://us02web.zoom.us/j/86106135905?pwd=SUtUQlFoa1o4QU8xMWJIT1MzQ0Y3dz09 Meeting ID: 861 0613 5905 Passcode: 278134 For information and meeting access, contact: Mary Fuchs at Phone #: 480-212-6425 | maryrio101@gmail.com Join Our Facebook Group!
HYBRID Treasure Coast and Tampa Bay Support Groups Joint Meeting
HYBRID Treasure Coast and Tampa Bay Support Groups Joint Meeting
EASTERN TIME Saturday, August 5, 2023, 1:30pm to 3:30pm Eastern Time The location is the Hiawassee Branch Library Meeting Room. Located at 7391 W. Colonial Drive. Orlando, FL 32818. Zoom Link: https://us02web.zoom.us/j/86492397155?pwd=clpKVjBUY0VlRm9wcFV4cUpRN3NOdz09 Meeting ID: 864 9239 7155 Passcode: 829517 Please R.S.V.P., space is limited. R.S.V.P. to lisacoleataxia@gmail.com or msdee004@yahoo.com
1 event,
VIRTUAL Southeastern Nevada Ataxia Support Group Meeting
VIRTUAL Southeastern Nevada Ataxia Support Group Meeting
PACIFIC TIME Guest Speaker: Charlotte DePew Link to join: https://bit.ly/3sYlilo For access information contact Howard Silverman at Phone #: 702-290-6724 | Email: Silverman3@cox.net or Kristy Anderson at Email: lasvegasataxia@gmail.com or Don Fey at Email: feydw@aol.com Join our Facebook Group: https://www.facebook.com/groups/2090650814550409/?hc_location=group
3 events,
CANCELLED Ataxia Resources and Discussion Group Meeting
CANCELLED Ataxia Resources and Discussion Group Meeting
EASTERN TIME Topic: Breakout sessions - getting to know each other in smaller rooms Speaker: N/A Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09 For more information, contact Susan Stiles at sstiles12@gmail.com
VIRTUAL JHU Presentation – Dizziness and Ataxia
VIRTUAL JHU Presentation – Dizziness and Ataxia
EASTERN TIME David Rastall, DO, PhD, Assistant Professor of Neurology will present on dizziness as it relates to ataxia and treatment options. Zoom Link: https://jhjhm.zoom.us/meeting/register/tJcvdemuqTsuE9IrR5k4jeixnz6NqsdKUznY For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
VIRTUAL Boston Ataxia Support Group Evening Chat
VIRTUAL Boston Ataxia Support Group Evening Chat
We welcome anyone to these meetings, regardless of location. Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343
1 event,
VIRTUAL JHU Ataxia Support Group Meeting
VIRTUAL JHU Ataxia Support Group Meeting
EASTERN TIME Zoom link: https://jhjhm.zoom.us/j/98422128138 For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
3 events,
VIRTUAL JHU Music Therapy Session
VIRTUAL JHU Music Therapy Session
EASTERN TIME Presented by: Emily Mahoney, MMT, LGPC, LPMT, MT-BC Register to attend here For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
Ask the Ataxia Expert
Ask the Ataxia Expert
Dr. Susan Perlman of UCLA Medical Center in Los Angeles joins NAF to offer a Q&A session for the Ataxia community. This is an informal discussion-style webinar without a set topic. You will have the opportunity to ask any questions you have related to Ataxia. Please do not submit questions in advance. Post your questions
VIRTUAL Northwestern Wisconsin Ataxia Support Group Meeting
VIRTUAL Northwestern Wisconsin Ataxia Support Group Meeting
CENTRAL TIME Join Zoom Meeting https://us04web.zoom.us/j/9381046547?pwd=Z0FacjV1bTF3UVpJaUxBLzAvMDhHZz09 Meeting ID: 938 104 6547 Passcode: vvPL0a For more information or to be added to the group’s mailing list please contact Richard Jones at (715) 639-2324 or jones1957@hotmail.com. We look forward to seeing you!
0 events,
2 events,
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
6 events,
VIRTUAL Self Compassion Through Mindfulness and Drawing Session
VIRTUAL Self Compassion Through Mindfulness and Drawing Session
Mindfulness is identified as a tool for so many with chronic pain, but sitting still and meditating doesn't work for most. I would like to demonstrate and guide participants through more active ways to achieve mindfulness with drawing, and at the same time having an emphasis on being self compassionate through the process. This class
VIRTUAL St. Louis Ataxia Support Group Meeting
VIRTUAL St. Louis Ataxia Support Group Meeting
We meet at 10:30-12:30 Central Time on the 2nd Saturday of every month. Zoom link: https://us02web.zoom.us/j/9247613557 For meeting access information or to be added to the mailing list for this group please contact: Shannon Dunphy Lazo at 202-306-2738 or shan_d@hotmail.com For more information, see our Facebook Group!
IN-PERSON North Texas Ataxia Support Group Meeting
IN-PERSON North Texas Ataxia Support Group Meeting
CENTRAL TIME Location: Cozby Library in Coppell For meeting access information contact: David Henry Jr 817-739-2886 (contact by email preferred) spinnerjr884@gmail.com Join our Facebook Group!
VIRTUAL Treasure Coast Ataxia Support Group Meeting
VIRTUAL Treasure Coast Ataxia Support Group Meeting
EASTERN TIME Guest Speaker: Lori Shogren, National Ataxia Foundation Programs Director Topic: United Against Ataxia Hill Day 2023 Join Zoom Meeting https://us02web.zoom.us/j/84872580415?pwd=R09hRnNpVVNPeHhUa0tPYXZXVnJYQT09 Meeting ID: 848 7258 0415 Passcode: 429848 For more information contact Lisa Cole at 772-370-3041 | lisacoleataxia@gmail.com Join our Facebook Group!
VIRTUAL Kansas City Ataxia Support Group Meeting
VIRTUAL Kansas City Ataxia Support Group Meeting
Join Zoom Meeting https://us02web.zoom.us/j/6185650820?pwd=RXlPMmpCc0tXTmxydC9RcUF3RUxOZz09 Meeting ID: 618 565 0820 Passcode: 8nsFHF For more information join our mailing list by contacting Stephanie Wilkins at Phone #: 816-623-3318 | Email: sfwilkins@yahoo.com Join our Facebook Group: https://www.facebook.com/groups/208618772974351/
HYBRID Greater Atlanta Ataxia Support Group Meeting
HYBRID Greater Atlanta Ataxia Support Group Meeting
EASTERN TIME Location: EMORY BRAIN HEALTH CENTER - First Floor Training Room 12 Executive Park Drive Atlanta, GA 30329 Zoom info to come Please use this link if you would like to sign up for the group's mailing list: https://mailchi.mp/5325ed76faee/atlanta-ataxia For more information or zoom access contact Greg Rooks at 404-822-7451 |rooksgj@yahoo.com Join Our
2 events,
VIRTUAL Cincinnati Ataxia Support Group Meeting
VIRTUAL Cincinnati Ataxia Support Group Meeting
EASTERN TIME Join Zoom Meetinghttps://us02web.zoom.us/j/81955190420?pwd=dGpGM1FkaXNpSzNXTG4weHA3SXVNUT09 For more information or to be added to the mailing list for this group please contact: William Vetter at (513) 310-7530 or wjuniorvet@gmail.com Join our Facebook Group: https://www.facebook.com/CincinnatiAtaxiaSupportGroup/
VIRTUAL Delaware Ataxia Support Group Meeting
VIRTUAL Delaware Ataxia Support Group Meeting
EASTERN TIME Join Zoom Meeting https://us06web.zoom.us/j/85360518033?pwd=M3dyMnFwdVMrMFpBSythRWRXTTFyUT09 Meeting ID: 853 6051 8033 Passcode: 281636 For more information contact Dawn Lentz at Email: silvercat2800@hotmail.com
1 event,
VIRTUAL Ataxia Resources and Discussion Group Meeting
VIRTUAL Ataxia Resources and Discussion Group Meeting
EASTERN TIME Topic: Breakout sessions - getting to know each other in smaller rooms Speaker: N/A Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09 For more information, contact Susan Stiles at sstiles12@gmail.com
0 events,
4 events,
All About SCA8
All About SCA8
Do you or a loved one have SCA8? Join our webinar to learn about the mechanisms of the disease, the diagnostic journey, and what to expect for clinical care with this diagnosis. Register HERE!
VIRTUAL JHU Music Therapy Session
VIRTUAL JHU Music Therapy Session
EASTERN TIME Presented by: Emily Mahoney, MMT, LGPC, LPMT, MT-BC Register to attend here For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
VIRTUAL JHU Presentation – Finding the “right fit” therapist
VIRTUAL JHU Presentation – Finding the “right fit” therapist
EASTERN TIME Tips for finding the “right fit” therapist presented by Melissa Egerton, M.S. Johns Hopkins Ataxia Center Health Educator Zoom Link: https://jhjhm.zoom.us/meeting/register/tJMtcO2srT0pE9QkQ3ZFnvvBF0Ha8f5l8WZ4 For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
VIRTUAL Canada Ataxia Support Group Meeting
VIRTUAL Canada Ataxia Support Group Meeting
We meet at 7pm Eastern every third Wednesday of the month. For meeting access information Join our Facebook Group: www.facebook.com/groups/1468963499991380/ For more information contact Susan Harding at susangmharding@gmail.com
1 event,
VIRTUAL Richmond Virginia Ataxia Support Group Meeting
VIRTUAL Richmond Virginia Ataxia Support Group Meeting
EASTERN TIME Hosted by Susan Stiles Join Zoom Meeting https://us02web.zoom.us/j/83359830565?pwd=bkxJRmQ0Qk9pdEpzTFM2NVU1M2RqZz09 Meeting ID: 833 5983 0565 Passcode: 136678 For more information or to join this group’s mailing list contact Karen Russell at Phone #: 804-543-8707 | Email: klrataxia@gmail.com
4 events,
VIRTUAL Connecticut Ataxia Support Group Meeting
VIRTUAL Connecticut Ataxia Support Group Meeting
We meet on the third Friday of the month at 11:30am Eastern Time. For meeting access information contact Susan Masse at: 860-528-1875 or Smasse1875@gmail.com
Research and Treatment Development for SCA8
Research and Treatment Development for SCA8
Do you or a loved one have a SCA8? Our expert will teach us how SCA8 is studied and give an overview of the current state of research and drug development for the disease. Register here!
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
8 events,
VIRTUAL Northwestern Washington Yetis Ataxia Support Group Meeting
VIRTUAL Northwestern Washington Yetis Ataxia Support Group Meeting
Google Meets Link: https://meet.google.com/wms-koqx-evb Contact Instructor Christina Newell at christinanwwasg@gmail.com with questions.
VIRTUAL Boston Ataxia Support Group Meeting
VIRTUAL Boston Ataxia Support Group Meeting
We welcome anyone to these meetings, regardless of location. Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343
IN-PERSON Twin Cities Ataxia Support Group Meeting
IN-PERSON Twin Cities Ataxia Support Group Meeting
CENTRAL TIME Location: Harmony Gardens in Maplewood. https://www.harmonygardenssenior.org/ For access information join our Facebook Group https://www.facebook.com/groups/103233603504142/ For other questions contact Lenore Healey Schultz at Phone #: 612-724-3784 | E-mail: schultz.lenore@yahoo.com
HYBRID Nebraska Ataxia Support Group Meeting
HYBRID Nebraska Ataxia Support Group Meeting
CENTRAL TIME Healthy Sleep Do’s and Don’ts of healthy beneficial sleep Speaker – Dr Mike Summers NEW Location- University of Nebraska at Omaha's Community Engagement Center (UNO CEC) 6400 South University Drive Road North, Omaha, NE 68182 Room #201 Plan a little extra time to find the space, park and take the elevators to the
VIRTUAL African Americans With Ataxia Support Group Meeting
VIRTUAL African Americans With Ataxia Support Group Meeting
EASTERN TIME For meeting access information, contact the support group leaders or join our Facebook Group: https://www.facebook.com/groups/501238100417901/ For more information about our group contact Letitia Diggs at Letitia.diggs@iCloud.com | 202-386-8289 or Veronica Denis at aaataxia@gmail.com
VIRTUAL Wisconsin Ataxia Warriors Support Group Meeting
VIRTUAL Wisconsin Ataxia Warriors Support Group Meeting
CENTRAL TIME Join Zoom Meeting https://us06web.zoom.us/j/84275813466?pwd=QzdtMXJsSGw5NWlLZXRKYkROWmZ0Zz09 Meeting ID: 842 7581 3466 Passcode: 585352 For information and virtual access, contact Greg Forster at ForGreg77@protonmail.com
IN-PERSON Orange County Ataxia Support Group Meeting
IN-PERSON Orange County Ataxia Support Group Meeting
PACIFIC TIME Please join us for the Orange County Ataxia support group meeting on Sat. August 19th at 1-3pm!!! We have 3 Doctors from UCI/Irvine that will be speaking on various topics related to living with ATAXIA. All are welcome. UCI has become a Ataxia Center of Excellence and we are so excited to welcome
IN-PERSON Tampa Bay Ataxia Support Group Meeting
IN-PERSON Tampa Bay Ataxia Support Group Meeting
EASTERN TIME Date: Saturday, August 19, 2023 Time: 1:30 - 3:30pm Location: Seminole Heights Public Library Address: 4711 Central Ave. Tampa, FL 33603 We look forward to having you join us! For more information contact Darlene Harris at msdee004@yahoo.com or 813-431-2859 OR Janet Colon at colonjanet@yahoo.com
3 events,
CANCELLED Treasure Coast Ataxia Support Group Meeting
CANCELLED Treasure Coast Ataxia Support Group Meeting
EASTERN TIME Space is limited so please contact Lisa to RSVP. For more information contact Lisa Cole at 772-370-3041 | lisacoleataxia@gmail.com Join our Facebook Group!
VIRTUAL 30-55 Years Old with Ataxia Support Group Meeting
VIRTUAL 30-55 Years Old with Ataxia Support Group Meeting
PACIFIC TIME For questions or meeting information, contact the support group leaders: Kristy Taylor - kristyanderson1234@gmail.com Daniel Gavern - dkgavern@gmail.com
IN-PERSON Cincinnati Ataxia Support Group Meeting
IN-PERSON Cincinnati Ataxia Support Group Meeting
EASTERN TIME Meeting Location: Reading Branch Library conference room, 8740 Reading rd., Cincinnati, Ohio. For more information or to be added to the mailing list for this group please contact: William Vetter at (513) 310-7530 or wjuniorvet@gmail.com Join our Facebook Group: https://www.facebook.com/CincinnatiAtaxiaSupportGroup/
1 event,
VIRTUAL Ataxia Resources and Discussion Group Meeting
VIRTUAL Ataxia Resources and Discussion Group Meeting
EASTERN TIME Topic: Breakout sessions - getting to know each other in smaller rooms Speaker: N/A Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09 For more information, contact Susan Stiles at sstiles12@gmail.com
1 event,
VIRTUAL Lower Michigan Ataxia Support Group Meeting
VIRTUAL Lower Michigan Ataxia Support Group Meeting
EASTERN TIME Zoom link: https://us06web.zoom.us/j/85747241562?pwd=M0JJV2tHM1g3cGs3TjJ3YlpnRWJMQT09 For more information, email Brenda Cavanaugh at bkjgcavanaugh@gmail.com Don't forget to join our facebook group! https://www.facebook.com/groups/900105314524248
1 event,
VIRTUAL JHU Music Therapy Session
VIRTUAL JHU Music Therapy Session
EASTERN TIME Presented by: Emily Mahoney, MMT, LGPC, LPMT, MT-BC Register to attend here For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
0 events,
4 events,
VIRTUAL Western North Carolina Ataxia Support Group Meeting
VIRTUAL Western North Carolina Ataxia Support Group Meeting
We hope to see you there! For access information contact: Jodie Kawa at Phone #: 828-384-8414 or Email: jodiekawa@comporium.net\ Maggie Dentremont at Phone #: 828-777-7411 Email: magdalenedentremont@gmail.com Join our Facebook Group: https://www.facebook.com/groups/919905244740316/
VIRTUAL Chicago Ataxia Support Group Meeting
VIRTUAL Chicago Ataxia Support Group Meeting
Join us for our virtual meeting at 2pm Central Time! For the Zoom meeting access information contact Julia Pantoga at Phone #: 414-899-5195 | E-mail: sharpturninstitute@gmail.com
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
2 events,
VIRTUAL Houston Ataxia Support Group Meeting
VIRTUAL Houston Ataxia Support Group Meeting
CENTRAL TIME Meeting ID: 411-986-7191 Passcode: 5eukxB For more information, contact Doug Brunnert at dab424@yahoo.com
1 event,
IN-PERSON Northeast Ohio Ataxia Support Group Meeting
IN-PERSON Northeast Ohio Ataxia Support Group Meeting
EASTERN TIME Location: Applebee's (4191 Rockside Rd, Independence, OH 44131) at 3pm on August 27th Please RSVP to Mike if you plan to attend so there is an estimated headcount For meeting information contact Mike Hammer at mikey.hammer@gmail.com Join Our Facebook Group: https://www.facebook.com/groups/157330301877408/
1 event,
VIRTUAL Ataxia Resources and Discussion Group Meeting
VIRTUAL Ataxia Resources and Discussion Group Meeting
EASTERN TIME Topic: Publishing experience/tips Speaker: Jay Armstrong Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09 For more information, contact Susan Stiles at sstiles12@gmail.com
0 events,
1 event,
VIRTUAL JHU Music Therapy Session
VIRTUAL JHU Music Therapy Session
EASTERN TIME Presented by: Emily Mahoney, MMT, LGPC, LPMT, MT-BC Register to attend here For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu