Las Vegas Walk N' Roll
2024-09-28 10:00 - 12:00 (America/Los_Angeles) | Centennial Hills Park, 7101 N Buffalo Drive, Las Vegas, NV, 89131, United States
PACIFIC TIME ZONE
The Las Vegas Walk N’ Roll will bring together families, friends, co-workers, neighbors, and the community to support NAF’s mission to accelerate the development of treatments and improve the lives of people living with Ataxia. Join us for a fun event!
Start a Team or Donate: Click here.
Event Information
Join us for family-friendly activities, music, and a silent auction!
Contact Information
Have questions or want to help? Great! We’d love to hear from you!
NAF Contact: Rich McCutchen, Regional Development Manager
Email: rich@ataxia.org
Phone: 763-285-6359

North Carolina Walk N' Roll
2024-09-28 10:00 - 14:00 (America/Halifax) | Corpening Plaza, 231 1st Street W, Winston Salem, NC, 27101, United States
EASTERN TIME ZONE
The North Carolina Walk N’ Roll will bring together families, friends, co-workers, neighbors, and the community to support NAF’s mission to accelerate the development of treatments and improve the lives of people living with Ataxia. Join us for a fun event!
Start a Team or Donate: Click here.
Event Information
10am- 2pm
Corpening Plaza
231 1st St W
Winston Salem, NC 27101
Contact Information
Have questions or want to help? Great! We’d love to hear from you!
Event Organizer: Paulette Shannon
Email: pshannon809@gmail.com
NAF Contact: Jon Wegman, Regional Development Manager
Email: jon@ataxia.org
Phone: 763-231-2747

Johns Hopkins University Support Group Fall Picnic
2024-09-28 12:30 - 15:00 (America/New_York) | Centennial Park South Pavillion F, 1000 Route 108, Ellicott City, MD, 21043, United States
EASTERN TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.

Meeting Information
Get ready for an afternoon of food, fun and friendship.

Registration is required by September 20.

Contact Information
To register, cancel, or for questions contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu

Central Texas Support Group Meeting
2024-09-28 14:00 - 15:00, 2024-10-12 14:00 - 15:00 (America/Chicago) | Zoom
CENTRAL TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.

Meeting Information
Zoom Link: https://us06web.zoom.us/j/86961200049?pwd=[REDACTED]
Meeting ID: 869 6120 0049
Passcode: [REDACTED]

Contact Information
For meeting access information contact: Ivan Loesch at ivanloesch02@gmail.com

Pittsburgh Walk N' Roll
2024-09-29 10:00 - 17:00 (America/Halifax) | Riverfront Park Pavilion, 70 River Front Dr, Pittsburgh, PA, 15209, United States
EASTERN TIME ZONE
The Pittsburgh Walk N’ Roll will bring together families, friends, co-workers, neighbors, and the community to support NAF’s mission to accelerate the development of treatments and improve the lives of people living with Ataxia. Join us for a fun event!
Start a Team or Donate: Click here.

Event Information
10 am – Registration
11 am – 5K Walk/Run
12:00 pm – 3:00 pm – Games, Raffles, Food, and Live Music by the Fabulous Gunslingers!
Riverfront Park Pavilion
70 River Front Dr, Pittsburgh, PA 15209
Contact Information
Have questions or want to help? Great! We’d love to hear from you!
Event Organizer: Madalyn Gottschalk
Email: samgotts32@gmail.co
NAF Contact: Jon Wegman, Regional Development Manager
Email: jon@ataxia.org
Phone: 763-231-2747

Ataxia Resources and Discussion Support Group Meeting
2024-09-30 15:00 - 16:00 (America/New_York) | Zoom
EASTERN TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.

Meeting Information
Topic: Ataxia Awareness
Zoom Information
Join at: zoom.us/join
Meeting ID: 2276674020
Password: [REDACTED]

Contact Information
For more information, contact Susan Stiles at susanataxia@gmail.com or Linda Allen at leallen48@gmail.com
Facebook Group: Ataxia Resources and Discussion Group

Coffee Chat for Parents
2024-10-01 13:00 - 14:00 (America/Chicago) | Zoom
CENTRAL TIME ZONE
Navigating the challenges of parenting children with Ataxia can often feel isolating, but you’re not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These sessions will be interactive discussions offered in a welcoming and informal setting, moderated by Dr. Barañano.
Link to Join: https://us02web.zoom.us/j/83517215745?pwd=[REDACTED]
Meeting ID: 835 1721 5745
Passcode: [REDACTED]
Add to Calendar: Download iCal File
About the Care Partners Series: Care Partners have an essential role in the lives of their loved ones with Ataxia. Whether you are a parent, spouse, or other care partner, this series is for you! It will provide information on a variety of caregiving topics, such as daily care, care planning, self-care, and other specialized subjects. The goal of the Care Partners series is to provide guidance, strategies, and resources for those who provide care.

Past Care Partner Webinars
Want to see the recordings of past presentations? Visit www.ataxia.org/carepartners to see upcoming sessions, view past recordings, and access resources for care givers.

55+ with Ataxia Support Group (Just Us Ataxians) Meeting
2024-10-01 14:00 - 15:00 (America/New_York)
EASTERN TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.

Meeting Information
Though we are grateful for the support of Parents/Spouses/Friends of people with Ataxia, this group is just for those WITH ataxia.
Zoom Link: https://us06web.zoom.us/j/83675646834?pwd=[REDACTED]

Contact Information
Cindy Michul
E-mail: michlecynt@gmail.com
Jeanne Harrington
E-mail: jpharri39@gmail.com
Facebook Group: Just Us Ataxians

Under 30 with Ataxia Support Group Meeting
2024-10-02 18:00 - 19:00 (America/Chicago) | Zoom
CENTRAL TIME ZONE

Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.

Meeting Information

Our support group meetings are bimonthly every 1st Wednesday at 6:00pm CT and 3rd Wednesday at 5:00pm CT.

Zoom Link: https://us06web.zoom.us/j/89830873266?pwd=[REDACTED]

Meeting ID: 898 3087 3266
Passcode: [REDACTED]

Contact Information

Shelbi Davenport
E-mail: shelbidavenport2020@gmail.com
Evan Gress
Email: evan.gress@outlook.com
Join Our Facebook Group: Under 30 With Ataxia

North Carolina Triangle Support Group Meeting
2024-10-04 12:30 - 13:30 (America/Halifax)
EASTERN TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.

Meeting Information
Please reach out to the group leader for zoom access information!

Contact Information
Kaitlyn Briggs
Email: kebriggs@comcast.net
Facebook Group: www.facebook.com/groups/429227696088261/

Global Support Group (Hope For Ataxia) Meeting - 1st Session
2024-10-04 15:00 - 17:00, 2024-10-11 15:00 - 17:00 (America/Halifax)
EASTERN TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.

Meeting Information
Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=[REDACTED]
Meeting ID: 879 5083 6761
Passcode: [REDACTED]

Contact Information
For more information contact Amy DeLeon at amy@hopeforataxia.org.

Global Support Group (Hope For Ataxia) Meeting - 2nd Session
2024-10-04 18:00 - 20:00, 2024-10-11 18:00 - 20:00 (America/Halifax)
EASTERN TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.

Meeting Information
Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=[REDACTED]
Meeting ID: 862 0682 9129
Passcode: [REDACTED]

Contact Information
For more information contact Amy DeLeon at amy@hopeforataxia.org.

On the Move to a Cure: 5K Run/Walk Fundraiser (Jacksonville)
2024-10-05 09:00 - 12:00 (America/New_York) | Winston Family YMCA, 221 Riverside Avenue, Jacksonville, FL, 32202, United States
EASTERN TIME ZONE
The Jacksonville 5K Run/Walk will bring together families, friends, co-workers, neighbors, and the community to support NAF’s mission to accelerate the development of treatments and improve the lives of people living with Ataxia. Join us for a fun event!
Register to Walk/Run: runsignup.com/Race/FL/Jacksonville/OntheMovetoCureAtaxia
Donate: Click here.
Event Information
I’ve been involved in various endeavors over the years, but today, I’m excited to share something very close to my heart. As many of you may not know, I’ve been a caregiver for my mother since her diagnosis of Spinal Ataxia in 2012, a rare brain disease. It’s a journey that has profoundly shaped me. In my quest to make a difference, I’ve partnered with the Winston YMCA to host a 5k run/walk fundraising event on Saturday, October 5th 2024 at 8:00am. Together, we’ll raise funds and awareness for Ataxia, with all proceeds going to the National Ataxia Foundation. 🏃🏾‍♀️ Register to run here: https://runsignup.com/Race/FL/Jacksonville/OntheMovetoCureAtaxia 🌍
Contact Information
Have questions or want to help? Great! We’d love to hear from you!
NAF Contact: Jon Wegman, Regional Development Manager
Email: jon@ataxia.org
Phone: 763-231-2747

Ataxia Alliance of Northwest Florida Support Group Meeting
2024-10-05 13:00 - 15:00 (America/Chicago) | Ever’man Educational Center, 315 West Garden Street, Pensacola, FL, 32502, United States
CENTRAL TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.
Meeting Information
We meet the first Saturday of the month at 1 pm. at the Ever’man Educational Center.
Information to Join
Address:
Ever’man Educational Center
315 W Garden St.
Pensacola, FL 32502
Support Group Leader Contact Information
Robin Tillman
Email: robin.ataxiaalliance@gmail.com
Abby Conn
Email: abigail.ataxiaalliance@gmail.com

Stand Up to Ataxia - Denver
2024-10-05 19:00 - 21:30 (America/Denver)
MOUNTAIN TIME ZONE
This Denver Comedy Show will bring together friends, co-workers, neighbors, and the community to support NAF’s mission to accelerate the development of treatments and improve the lives of people living with Ataxia. Join us for a fun event with lots of laughs! Featuring Zac Mass and opener Ed Bell.
Buy Tickets or Donate: Click here.
Contact Information
Have questions or want to help? Great! We’d love to hear from you!
NAF Contact: Rich McCutchen, Regional Development Manager
Email: rich@ataxia.org
Phone: 763-285-6359

Ataxia Resources and Discussion Support Group Meeting
2024-10-07 13:00 - 14:00 (America/New_York) | Zoom
EASTERN TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.

Meeting Information
Topic: Social Media Tips, Celebrate October Birthdays
Zoom Information
Join at: zoom.us/join
Meeting ID: 2276674020
Password: [REDACTED]

Contact Information
For more information, contact Susan Stiles at susanataxia@gmail.com or Linda Allen at leallen48@gmail.com
Facebook Group: Ataxia Resources and Discussion Group

Boston Support Group Evening Chat
2024-10-07 18:00 - 19:00 (America/Halifax)
EASTERN TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.

Meeting Information
We welcome anyone to these meetings, regardless of location.
Zoom Link: https://us02web.zoom.us/j/87999250029?pwd=[REDACTED]
Meeting ID: 879 9925 0029
Passcode: [REDACTED]

Contact Information
For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com
or Doug Place at Phone #: 781-307-0800 | Email: ataxiadoug@gmail.com
Join our Facebook Group: https://www.facebook.com/groups/746918332709343

Louisiana Support Group Meeting
2024-10-07 18:00 - 19:00 (America/Chicago) | Zoom
CENTRAL TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.

Meeting Information
Zoom Link: https://us06web.zoom.us/j/81731073486?pwd=[REDACTED]
Meeting ID: 817 3107 3486
Passcode: [REDACTED]

Contact Information
Julie Guillot
Email: jbguillot@yahoo.com
John Guillot
Email: johnguillot97@gmail.com
Facebook Group: www.facebook.com/groups/401183702731349

Johns Hopkins University Support Group Meeting
2024-10-08 13:00 - 14:00 (America/Halifax)
EASTERN TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.

Meeting Information
Zoom Link: https://jhjhm.zoom.us/j/93492624629

Contact Information
For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu

Ask the Ataxia Expert
2024-10-09 13:00 - 14:00 (America/New_York) | Zoom Webinar
CENTRAL TIME
Dr. Susan Perlman of UCLA Medical Center in Los Angeles joins NAF to offer a Q&A session for the Ataxia community. This is an informal discussion-style webinar without a set topic. You will have the opportunity to ask any questions you have related to Ataxia.
Register Now: https://us02web.zoom.us/webinar/register/WN_ArZZ-DjtTQOrAbEOtr2cPA
Please do not submit questions in advance. Post your questions using the Q&A function as soon as you enter the webinar. Dr. Perlman will get to as many questions as she can in the allotted time.

Western Michigan Support Group Meeting
2024-10-10 11:00 - 12:00 (America/New_York)
EASTERN TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.

Meeting Information
Meeting Link: https://us06web.zoom.us/j/85003567488?pwd=[REDACTED]
Meeting ID: 850 0356 7488
Passcode: [REDACTED]

Contact Information
For more information, contact Cyndi Gray at csgray2010@gmail.com

All About Spastic Paraplegia Type 7
2024-10-10 12:00 - 13:00 (America/Chicago) | Zoom Webinar
CENTRAL TIME ZONE
During this webinar, an expert will join us to take a look at the causes and symptoms of Spastic Paraplegia Type 7, the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into the disease.
Register: Click here.
Speaker Information
Gerald Pfeffer, MD, PhD
University of Calgary
Dr. Pfeffer is a clinician-scientist in the Department of Clinical Neurosciences and Hotchkiss Brain Institute. He completed medical school at McGill University, neurology residency at University of British Columbia, and PhD training at Newcastle University in the United Kingdom.
His research focuses on gene discovery in hereditary neuromuscular diseases, and the mechanistic processes which cause disease pathology. This work primarily involves basic science techniques to identify novel single gene disorders. The research program also integrates clinical research by studying genotype-phenotype relationships, and findings from paraclinical investigations.

Other Webinars
NAF hosts educational webinars about Ataxia presented by industry experts. Learn about important topics related to living with Ataxia. Webinars are complimentary for NAF members, with new sessions offered each month. Join NAF to receive invitations to upcoming Ataxia webinars. Visit www.ataxia.org/webinars to explore past webinars on a variety of topics.

Treasure Coast Support Group Meeting
2024-10-11 12:30 - 14:00 (America/Halifax) | Zoom
EASTERN TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.

Meeting Information
Register in advance for this meeting:
https://us02web.zoom.us/meeting/register/tZYqcuGrrzspH9R2M3NkOTsrH39QBrq76oVP
After registering, you will receive a confirmation email containing information about joining the meeting.

Contact Information
For more information contact Lisa Cole at 772-370-3041 | lisacoleataxia@gmail.com
Join our Facebook Group!

The Dakotas Support Group Meeting
2024-10-10 16:00 - 17:00 (America/Chicago) | Zoom
CENTRAL TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.

Meeting Information
We welcome those anywhere from both North and South Dakota!
Zoom Link: https://us02web.zoom.us/j/87486991723?pwd=[REDACTED]
Meeting ID: 874 8699 1723
Passcode: [REDACTED]

Contact Information
For more information, reach out to Mary Beth Farley at englishteacher1116@gmail.com

Kansas City Support Group Meeting
2024-10-12 08:00 - 17:00 (America/Chicago)
CENTRAL TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.

Meeting Information
Meetings are on the second saturday of the month.
Contact the group leaders or visit the facebook page for zoom access.

Contact Information
For more information join our mailing list by contacting Laurie Colby at lcolby61@gmail.com or Stephanie Wilkins at sfwilkins@yahoo.com
Join our Facebook Group: https://www.facebook.com/groups/208618772974351/

Los Angeles Support Group Meeting
2024-10-12 10:00 - 11:30 (America/Los_Angeles) | Zoom
PACIFIC TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.

Meeting Information
Zoom Link: zoom.us/join
ID# 868 5034 3922 Passcode [REDACTED]

Contact Information
For more information, contact Peter Selak at Email: peter.selak47@gmail.com or Phone: (626) 833-0700

St. Louis Support Group Meeting
2024-10-12 10:30 - 12:30 (America/Chicago)
CENTRAL TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.

Meeting Information
We meet at 10:30AM-12:30PM on the 2nd Saturday of every month.
Zoom Link: https://us02web.zoom.us/j/9247613557
Meeting ID: 924 761 3557

Contact Information
Shannon Dunphy Lazo at 202-306-2738 or shan_d@hotmail.com
For more information, see our Facebook Group!
