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Jerry’s Story

I’m actually reluctant to tell my story as it’s far from positive. Currently my tremors are more disabling than my balance issues, which are dreadful. I suppose I noticed things Read More…

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Accessible Activities in Florida

Are you traveling somewhere? Don’t assume that an activity isn’t accessible! Jessica, who has Ataxia and uses a wheelchair, traveled to the Florida Keys with her parents in June 2023. Read More…

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Intro to Centers for Independent Living

According to the National Council on Independent Living, Centers for Independent Living (or CILs) are community-based, cross-disability, non-profit organizations that are designed and operated by people with disabilities. Kory Macy, Read More…

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Parna Mukherjee

I was born in a family with SCA2 back in India. My father had the symptoms of Ataxia as well as all his five siblings. At that time, it was Read More…

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Jency W

I got diagnosed at 40 after always walking awkward and 2 years of being unsteady. Now I’m going to start physical therapy and apply for SSDI. It’s sad for me, Read More…

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2024 NAF Research Grants

NAF Awarded a Record Number of Projects in 2024 18 Studies Funded Totaling $845k Funded! We had our most competitive year ever for Ataxia research grant applications! As a result Read More…

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