NAF coordinates Support Groups as a way for the Ataxia to connect and learn from others. There are more than 65 support groups and hundreds of meetings each year. Our volunteer Support Group Leaders provide this invaluable service to the community. There are in-person and virtual meeting options that vary by group.
Interested in volunteering as a Support Group Leader or Co-Leader?
Contact Sarah Pilato, NAF’s Program Coordinator, at email@example.com.
Upcoming support group meetings can be found below. Click on a meeting for more detailed information about how to join. Feel free to join any virtual meeting, even if the support group is not in your area.
This is an online group for anyone affected by Ataxia. Persons with Ataxia, friends, and family members are all welcome!
Facebook Group: NAF Community
This group is for spouses and partners without Ataxia who have a spouse or partner with Ataxia. This is our spot to learn from one another, vent, have fun, and discuss topics important to us!
This group is for African-Americans with Ataxia to connect with each other to share resources and experiences.
This group is for Military & Veteran members who have been diagnosed with some form/type of Ataxia. This Team Room is a platform to share experiences and information related to Ataxia, as well as provide support, education, awareness, and discuss personal observations with each other to learn and become aware of how Ataxia affects individuals. ***Note*** This Team Room is also used to initiate (with members permission) a database of names and stories of how individuals became affected and to study if there is any correlation of what, if anything, we did, or environments we were exposed to during our military tenure, that caused symptoms to appear in persons with hereditary Ataxia’s or to cause Acquired Ataxias.
See what the Support Groups have been up to with the latest Support Group updates.
In a continued effort to protect our Ataxia community, we’ve been monitoring the news about COVID-19. We have also been in contact with members of NAF’s Medical Research Advisory Board (MRAB). An important note that supersedes any specific NAF policy: Local regulations vary by city/county/state, so please follow any local regulations in regard to in-person meetings.
At this time, NAF recommends the following for in-person support group meetings:
We are always looking for volunteers to be an ambassador or Support Group Leader. Email Lori Shogren, Community Program and Services Director, at firstname.lastname@example.org for more information.