Skip to content

Bill Nye the Science Guy is speaking at the 2024 Annual Ataxia Conference! Register now.  LEARN MORE!

NAF Members

You are not alone on your Ataxia journey.

NAF BLOGS

Welcome to the NAF Member hub! 

As an organization dedicated to improving the lives of those affected by Ataxia, we believe that each story has the power to inspire, connect, and empower others. We invite you to share your personal Ataxia journey with us.

Are you here to read the personal stories, but haven’t yet joined as a member? We hope you find comfort in reading about the experiences of others on their Ataxia journey. We invite you to join as a member to receive a new member story each month. It’s free, and you’ll be kept up-to-date on the latest developments in the Ataxia community. 

Member Stories

Our members are a community of individuals and families who are united in the fight against Ataxia. Read about their unique Ataxia journeys from their perspectives. 

Latest NAF Blogs

Check out our latest articles to stay-up-to-date on the happenings at NAF and in the Ataxia community. 

Benefits of Rehabilitative Services

Guest Author: Ellie Martin According to the World Health Organization, rehabilitation is defined as “a set of interventions designed to optimize functioning and reduce disability Read More…

Print Friendly, PDF & Email

Ataxia Med News – April 2024

This is a periodic newsletter for Ataxia clinicians to keep them up-to-date on patient resources and other medical news. To begin receiving this newsletter, join Read More…

Print Friendly, PDF & Email

Accessible Activities in Florida

Are you traveling somewhere? Don’t assume that an activity isn’t accessible! Jessica, who has Ataxia and uses a wheelchair, traveled to the Florida Keys with Read More…

Print Friendly, PDF & Email

Upcoming Webinars

A benefit that we provide to our members is access to a variety of webinars to empower you with knowledge. Join us at an upcoming session!

25
Jun
Tue
01:00 pm-02:00 pm
Support for Parents of Adult Children
Online
FREE
26
Jun
Wed
09:00 am-10:00 am
CRC-SCA Natural History Study Canadian Information Panel / Table Ronde Canadienne Sur L’Étude D’Histoire Naturelle du CRC-SCA
Online
FREE
28
Jun
Fri
10:00 am-11:00 am
All About SCA12
Online
FREE
10
Jul
Wed
01:00 pm-02:00 pm
Ask the Ataxia Expert
Online
FREE
14
Aug
Wed
12:00 pm-01:00 pm
Chair Yoga for Ataxia
Online
FREE
21
Aug
Wed
11:00 am-12:00 pm
NORD: Alone we are rare. Together we are strong®
Online
FREE

Connect

Want to connect with others who are impacted by Ataxia? We have a variety of ways for you to get together with others in the community!

Chat with Others in the Ataxia Community

NAF moderates a private group on Facebook. It is a safe space to connect and learn from other members in the Ataxia community. We screen new group members and only allow those with connections to Ataxia to join. 

Members of the group can:

  • Post privately to the group (non-members cannot see your posts)
  • Read and/or comment on posts from other members

It is a great space to learn from others and share information. We encourage you to join, even if you don’t plan to post or comment yourself. You can learn a lot just from reading through the conversations in the group. 

Join the NAF Facebook Group

Support Groups

Our local support groups are organized by volunteers in the Ataxia community. They are opportunities for social connection and education. Many groups have virtual options for attendance as well. 

Find My Support Group

Annual Ataxia Conference

A community favorite – our Annual Ataxia Conference (AAC) is the largest gathering of Ataxia patients and families in the world. At this 2-day event, expert Ataxia clinicians and researchers offer sessions on the latest news and clinical care. In addition, there are several opportunities for networking with other community members, including our inclusive finale party that packs the dance floor! Many dedicated members make it their annual vacation.

Learn About this Year’s AAC

Upcoming Events

Our event calendar is packed with support group meetings, fundraisers, and other community events that might be of interest to you. Check out what is coming up and join us!

Find Upcoming Events

Print Friendly, PDF & Email
Translate »

Join the Ataxia community today!

Become a free member for exclusive content from NAF.