NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
Welcome to the NAF Member hub!
As an organization dedicated to improving the lives of those affected by Ataxia, we believe that each story has the power to inspire, connect, and empower others. We invite you to share your personal Ataxia journey with us.
Are you here to read the personal stories, but haven’t yet joined as a member? We hope you find comfort in reading about the experiences of others on their Ataxia journey. We invite you to join as a member to receive a new member story each month. It’s free, and you’ll be kept up-to-date on the latest developments in the Ataxia community.
Our members are a community of individuals and families who are united in the fight against Ataxia. Read about their unique Ataxia journeys from their perspectives.
Submitted by Theresa Nelson, Executive Director at Ataxia Connection It Read More…
Submitted by Mark Holdenried Attending the 2025 Annual Ataxia Conference Read More…
Check out our latest articles to stay-up-to-date on the happenings at NAF and in the Ataxia community.
Ataxia Tips Real advice from real people living with Ataxia. SUBMIT A TIP RECENT TIPS FOLLOW #AtaxiaTipTuesday Living with Ataxia means adapting every day—and sometimes, Read More…
Disability Services and Financial Planning Information and resources on disability services and financial planning for people impacted by Ataxia. What is Disability? What are Disability Read More…
Artisans for Ataxia A virtual art auction that showcases original, handcrafted works to raise funds and awareness for Ataxia. DONATE ARTWORK HOW THE AUCTION WORKS Read More…
Guest Author: Camille Johnson Moving is one of those life events that sits at the intersection of stress and excitement, but for people living with Ataxia, Read More…
A benefit that we provide to our members is access to a variety of webinars to empower you with knowledge. Join us at an upcoming session!
Want to connect with others who are impacted by Ataxia? We have a variety of ways for you to get together with others in the community!
NAF moderates a private group on Facebook. It is a safe space to connect and learn from other members in the Ataxia community. We screen new group members and only allow those with connections to Ataxia to join.
Members of the group can:
It is a great space to learn from others and share information. We encourage you to join, even if you don’t plan to post or comment yourself. You can learn a lot just from reading through the conversations in the group.
Our local support groups are organized by volunteers in the Ataxia community. They are opportunities for social connection and education. Many groups have virtual options for attendance as well.
A community favorite – our Annual Ataxia Conference (AAC) is the largest gathering of Ataxia patients and families in the world. At this 2-day event, expert Ataxia clinicians and researchers offer sessions on the latest news and clinical care. In addition, there are several opportunities for networking with other community members, including our inclusive finale party that packs the dance floor! Many dedicated members make it their annual vacation.
Our event calendar is packed with support group meetings, fundraisers, and other community events that might be of interest to you. Check out what is coming up and join us!
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
