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Welcome to the NAF Member hub!
As an organization dedicated to improving the lives of those affected by Ataxia, we believe that each story has the power to inspire, connect, and empower others. We invite you to share your personal Ataxia journey with us.
Are you here to read the personal stories, but haven’t yet joined as a member? We hope you find comfort in reading about the experiences of others on their Ataxia journey. We invite you to join as a member to receive a new member story each month. It’s free, and you’ll be kept up-to-date on the latest developments in the Ataxia community.
Our members are a community of individuals and families who are united in the fight against Ataxia. Read about their unique Ataxia journeys from their perspectives.
When I had my tinnitus investigated in 2007, a balance Read More…
Living and Dying with Spinocerebellar Ataxia Type 7: A Carer’s Read More…
http://youtu.be/sYccDzT25eY?si=f6GkonkY4FvsyFHy The video above is from Maitreyi’s personal YouTube channel, Read More…
Check out our latest articles to stay-up-to-date on the happenings at NAF and in the Ataxia community.
Good Laboratory Practices (GLPs) are standards for nonclinical research studies. These standards must be met before the research data can be accepted and reviewed by a regulatory agency. A nonclinical study involves experiments to determine the safety of a product. But not in people! Read More…
Written by Victoria Martinez Faces of Ataxia Research highlights scientists whose work is supported by grants from NAF. Each story shows how our donors are Read More…
The National Ataxia Foundation (NAF) led a survey of people with Ataxia and their families in January 2025. The goal of the survey was to get Read More…
This is a periodic newsletter for Ataxia clinicians to keep them up-to-date on patient resources and other medical news. To begin receiving this newsletter, join Read More…
A benefit that we provide to our members is access to a variety of webinars to empower you with knowledge. Join us at an upcoming session!
Want to connect with others who are impacted by Ataxia? We have a variety of ways for you to get together with others in the community!
NAF moderates a private group on Facebook. It is a safe space to connect and learn from other members in the Ataxia community. We screen new group members and only allow those with connections to Ataxia to join.
Members of the group can:
It is a great space to learn from others and share information. We encourage you to join, even if you don’t plan to post or comment yourself. You can learn a lot just from reading through the conversations in the group.
Our local support groups are organized by volunteers in the Ataxia community. They are opportunities for social connection and education. Many groups have virtual options for attendance as well.
A community favorite – our Annual Ataxia Conference (AAC) is the largest gathering of Ataxia patients and families in the world. At this 2-day event, expert Ataxia clinicians and researchers offer sessions on the latest news and clinical care. In addition, there are several opportunities for networking with other community members, including our inclusive finale party that packs the dance floor! Many dedicated members make it their annual vacation.
Our event calendar is packed with support group meetings, fundraisers, and other community events that might be of interest to you. Check out what is coming up and join us!
