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Registration for 2024 Annual Ataxia Conference is NOW OPEN! Early-bird discount available for a limited time.  LEARN MORE!

NAF Members

You are not alone on your Ataxia journey.

NAF BLOGS

Welcome to the NAF Member hub! 

As an organization dedicated to improving the lives of those affected by Ataxia, we believe that each story has the power to inspire, connect, and empower others. We invite you to share your personal Ataxia journey with us.

Are you here to read the personal stories, but haven’t yet joined as a member? We hope you find comfort in reading about the experiences of others on their Ataxia journey. We invite you to join as a member to receive a new member story each month. It’s free, and you’ll be kept up-to-date on the latest developments in the Ataxia community. 

Member Stories

Our members are a community of individuals and families who are united in the fight against Ataxia. Read about their unique Ataxia journeys from their perspectives. 

Timothy Wahl

Episodic Ataxia: The Invisible Impairment Often misdiagnosed, misunderstood, and unseen. Read More…

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Latest NAF Blogs

Check out our latest articles to stay-up-to-date on the happenings at NAF and in the Ataxia community. 

Upcoming Webinars

A benefit that we provide to our members is access to a variety of webinars to empower you with knowledge. Join us at an upcoming session!

28
Feb
Wed
04:00 pm-05:00 pm
Science Showcase: Dr. Hellyer
Online
FREE
08
Mar
Fri
12:00 pm-01:00 pm
All About SCA5
Online
FREE
14
Mar
Thu
11:00 am-12:00 pm
Care Partners: Support for Spouses and Partners
Online
FREE
19
Mar
Tue
12:00 pm-01:00 pm
Research and Treatment Development for SCA5
Online
FREE
29
Mar
Fri
10:00 am-11:00 am
NAF Science Showcase: Dr. Maimuna Paul
Online
FREE
03
Apr
Wed
01:00 pm-02:00 pm
All About SCA14
Online
FREE

Connect

Want to connect with others who are impacted by Ataxia? We have a variety of ways for you to get together with others in the community!

Chat with Others in the Ataxia Community

NAF moderates a private group on Facebook. It is a safe space to connect and learn from other members in the Ataxia community. We screen new group members and only allow those with connections to Ataxia to join. 

Members of the group can:

  • Post privately to the group (non-members cannot see your posts)
  • Read and/or comment on posts from other members

It is a great space to learn from others and share information. We encourage you to join, even if you don’t plan to post or comment yourself. You can learn a lot just from reading through the conversations in the group. 

Join the NAF Facebook Group

Support Groups

Our local support groups are organized by volunteers in the Ataxia community. They are opportunities for social connection and education. Many groups have virtual options for attendance as well. 

Find My Support Group

Annual Ataxia Conference

A community favorite – our Annual Ataxia Conference (AAC) is the largest gathering of Ataxia patients and families in the world. At this 2-day event, expert Ataxia clinicians and researchers offer sessions on the latest news and clinical care. In addition, there are several opportunities for networking with other community members, including our inclusive finale party that packs the dance floor! Many dedicated members make it their annual vacation.

Learn About this Year’s AAC

Upcoming Events

Our event calendar is packed with support group meetings, fundraisers, and other community events that might be of interest to you. Check out what is coming up and join us!

Find Upcoming Events

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