NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
We’re honored to have worked with Bill Nye the Science Guy to launch the largest Ataxia awareness campaign to-date!
In the series of videos, Bill Nye opens up about his personal connection to Ataxia. He lost his father to Ataxia and has many family members who are affected, including his sister and brother. He teaches people about Ataxia in his classic “science guy” style with simple information and light humor.
Check out all his videos at www.ataxia.org/BillNye.
Join the growing number of people that want to stay connected with the Ataxia community! Sign up today. It only takes a few moments. Our members receive:
Thank you for 15 Years of Chuck and Duck! We guarantee you will get a kick out of this! For the15th year, Charlton Heights Elementary Read More…
Session focused on the importance of funding research and approving new treatments for rare diseases, especially those with no FDA-approved treatment options like Spinocerebellar Ataxia Read More…
The well-known science educator joins with the National Ataxia Foundation on campaign to build broad understanding of Ataxia, a progressive brain disease that impacts a Read More…
This designation is important to raising awareness of ataxia, ataxia research, and the search for a cure. Minneapolis, MN (September 20, 2024) – The National Read More…
Guest Author: Camille Johnson Moving is one of those life events that sits at the intersection of stress and excitement, but for people living with Ataxia, Read More…
Guest Author: Ellie Martin Summer is here! I’ve put together a list of products that might be particularly useful during this time of year. Many Read More…
Cooking with Troy A webinar series for confidence in the kitchen. UPCOMING SESSIONS MEET CHEF TROY PAST SESSIONS DONATE Cooking with Troy is a new Read More…
Guest Author: Ellie Martin Seeking effective methods for healing and growth is significant for rehabilitation. Equine Assisted Therapy, a unique form of therapy that provides Read More…
Shortly after returning from a once in a lifetime vacation to Turkey in 2010, at age 58, I began to experience odd neurological symptoms and Read More…
My name is Neyveth Duarte and my dad was officially diagnosed with Ataxia earlier this year. My dad is my hero and he is going Read More…
I grew up in a small & rural town of about 3,500 people in central Minnesota. I was raised in a blue-collar middle class home, Read More…
Submitted by Theresa Nelson, Executive Director at Ataxia Connection It is an exciting opportunity for our organization, Ataxia Connection, to travel and attend the Annual Read More…
CENTRAL TIME Dr. Susan Perlman of UCLA Medical Center in Los Angeles joins NAF to offer a Q&A session for the Ataxia community. This is an informal discussion-style webinar without Read More…
PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…
CENTRAL TIME ZONE During this webinar, an expert will take a look at the causes and symptoms of Gluten Ataxia, the typical diagnostic journey for those affected, what to expect Read More…
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…
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