Calendar of Events
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1 event,
VIRTUAL Boston Ataxia Support Group Evening Chat
VIRTUAL Boston Ataxia Support Group Evening Chat
We welcome anyone to these meetings, regardless of location. Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343
0 events,
1 event,
VIRTUAL JHU Music Therapy Session
VIRTUAL JHU Music Therapy Session
EASTERN TIME Presented by: Emily Mahoney, MMT, LGPC, LPMT, MT-BC The same zoom link will be used for each session, (registration is required). https://jhjhm.zoom.us/meeting/register/tJAtfumurj0qGdTX2xHaOHGp6WqCWsjdvahn For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
1 event,
WEBINAR: All about SCA1
WEBINAR: All about SCA1
Join our webinar to learn about the causes and symptoms of SCA1, the typical diagnostic journey for those affected, and what to expect for clinical care. Register Here!
2 events,
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
0 events,
1 event,
VIRTUAL Southeastern Nevada Ataxia Support Group Meeting
VIRTUAL Southeastern Nevada Ataxia Support Group Meeting
PACIFIC TIME Zoom link: https://bit.ly/3sYlilo For access information contact Howard Silverman at Phone #: 702-290-6724 | Email: Silverman3@cox.net or Kristy Anderson at Email: lasvegasataxia@gmail.com or Don Fey at Email: feydw@aol.com Join our Facebook Group: https://www.facebook.com/groups/2090650814550409/?hc_location=group
0 events,
1 event,
VIRTUAL JHU Ataxia Support Group Meeting
VIRTUAL JHU Ataxia Support Group Meeting
Zoom link: https://jhjhm.zoom.us/j/98422128138 For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
0 events,
1 event,
VIRTUAL Tri-State Ataxia Support Group Meeting
VIRTUAL Tri-State Ataxia Support Group Meeting
EASTERN TIME Join Zoom Meeting https://us02web.zoom.us/j/84798568538?pwd=NktWYVJRYUNXY1AzbDF6UGFuRGZCUT09 Meeting ID: 847 9856 8538 Passcode: 737916 For meeting access information, please contact Kathleen Gingerelli at kgingerelli@msn.com | 201-681-7639
2 events,
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
5 events,
VIRTUAL Self Compassion Through Mindfulness and Drawing Session
VIRTUAL Self Compassion Through Mindfulness and Drawing Session
Mindfulness is identified as a tool for so many with chronic pain, but sitting still and meditating doesn't work for most. I would like to demonstrate and guide participants through more active ways to achieve mindfulness with drawing, and at the same time having an emphasis on being self compassionate through the process. This class
VIRTUAL North Texas Ataxia Support Group Meeting
VIRTUAL North Texas Ataxia Support Group Meeting
CENTRAL TIME Join Zoom Meeting https://us05web.zoom.us/j/81003912137?pwd=Z0c5eE9jTnpyaFdYTHhXNGk1blVZUT09 Meeting ID: 810 0391 2137 Passcode: R5GrWi For meeting access information contact: David Henry Jr 817-739-2886 (contact by email preferred) spinnerjr884@gmail.com Join our Facebook Group!
HYBRID St. Louis Ataxia Support Group Meeting
HYBRID St. Louis Ataxia Support Group Meeting
We meet at 10:30-12:30 Central Time on the 2nd Saturday of every month. Location: Center for Advanced Medicine at the WashU/BJD medical complex Zoom link: https://us02web.zoom.us/j/9247613557 For meeting access information or to be added to the mailing list for this group please contact: Shannon Dunphy Lazo at 202-306-2738 or shan_d@hotmail.com For more information, see our
VIRTUAL Treasure Coast Ataxia Support Group Meeting
VIRTUAL Treasure Coast Ataxia Support Group Meeting
EASTERN TIME Join Zoom Meeting https://us02web.zoom.us/j/84984977383?pwd=clliaE0yTER3ZVA3L2Z5RXN0SWdtUT09 Meeting ID: 849 8497 7383 Passcode: 990545 For more information contact Lisa Cole at 772-370-3041 | lisacoleataxia@gmail.com Join our Facebook Group!
VIRTUAL Kansas City Ataxia Support Group Meeting
VIRTUAL Kansas City Ataxia Support Group Meeting
Join Zoom Meeting https://us02web.zoom.us/j/6185650820?pwd=RXlPMmpCc0tXTmxydC9RcUF3RUxOZz09 Meeting ID: 618 565 0820 Passcode: 8nsFHF For more information join our mailing list by contacting Stephanie Wilkins at Phone #: 816-623-3318 | Email: sfwilkins@yahoo.com Join our Facebook Group: https://www.facebook.com/groups/208618772974351/
2 events,
CANCELLED Cincinnati Ataxia Support Group Meeting
CANCELLED Cincinnati Ataxia Support Group Meeting
EASTERN TIME Join Zoom Meetinghttps://us02web.zoom.us/j/81955190420?pwd=dGpGM1FkaXNpSzNXTG4weHA3SXVNUT09 For more information or to be added to the mailing list for this group please contact: William Vetter at (513) 310-7530 or wjuniorvet@gmail.com Join our Facebook Group: https://www.facebook.com/CincinnatiAtaxiaSupportGroup/
VIRTUAL Delaware Ataxia Support Group Meeting
VIRTUAL Delaware Ataxia Support Group Meeting
EASTERN TIME Join Zoom Meeting https://us06web.zoom.us/j/85360518033?pwd=M3dyMnFwdVMrMFpBSythRWRXTTFyUT09 Meeting ID: 853 6051 8033 Passcode: 281636 For more information contact Dawn Lentz at Email: silvercat2800@hotmail.com
1 event,
CANCELLED San Diego Ataxia Support Group Meeting
CANCELLED San Diego Ataxia Support Group Meeting
Meeting location: Carmel Mountain Ranch Library, 12095 World Trade Drive, San Diego, CA 92128 For meeting information or questions, reach out to Group Leader: Pamela Kahn at familykahn@cox.net (or call 760-855-0487)
0 events,
1 event,
VIRTUAL Ontario Ataxia Support Group Meeting
VIRTUAL Ontario Ataxia Support Group Meeting
We meet at 7pm Eastern every third Wednesday of the month. For meeting access information Join our Facebook Group: www.facebook.com/groups/1468963499991380/ For more information contact Susan Harding at susangmharding@gmail.com
2 events,
WEBINAR – Research and Treatment Development for SCA1
WEBINAR – Research and Treatment Development for SCA1
Title: Research and Treatment Development for SCA1 Webinar Description: Our expert will teach us how SCA1 is studied and give an overview of the current state of research and drug development for the disease. Date: May 18, 2023 Time: 12:00 PM CDT Link to Register: https://us02web.zoom.us/webinar/register/WN_3ohIkmhxTC-drLqHB-7YZw
VIRTUAL Richmond Virginia Ataxia Support Group Meeting
VIRTUAL Richmond Virginia Ataxia Support Group Meeting
EASTERN TIME For more information or to join this group’s mailing list contact Karen Russell at Phone #: 804-543-8707 | Email: klruss@comcast.net
3 events,
VIRTUAL Connecticut Ataxia Support Group Meeting
VIRTUAL Connecticut Ataxia Support Group Meeting
We meet on the third Friday of the month at 11:30am Eastern Time. For meeting access information contact Susan Masse at: 860-528-1875 or Smasse1875@gmail.com
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
7 events,
VIRTUAL Northwestern Washington Yetis Ataxia Support Group Meeting
VIRTUAL Northwestern Washington Yetis Ataxia Support Group Meeting
Google Meets Link: https://meet.google.com/wms-koqx-evb Contact Instructor Christina Newell at christinanwwasg@gmail.com with questions.
VIRTUAL Boston Ataxia Support Group Meeting
VIRTUAL Boston Ataxia Support Group Meeting
We welcome anyone to these meetings, regardless of location. Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343
IN-PERSON Twin Cities Ataxia Support Group Meeting
IN-PERSON Twin Cities Ataxia Support Group Meeting
CENTRAL TIME Location: Harmony Gardens in Maplewood. https://www.harmonygardenssenior.org/ For access information join our Facebook Group https://www.facebook.com/groups/103233603504142/ For other questions contact Lenore Healey Schultz at Phone #: 612-724-3784 | E-mail: schultz.lenore@yahoo.com
VIRTUAL Western Washington Ataxia Support Group Meeting
VIRTUAL Western Washington Ataxia Support Group Meeting
PACIFIC TIME Topics: AAC feedback and announcement of 2023 activities For access information join our Facebook Group: https://www.facebook.com/groups/1033349420106652/ or contact Sherry McLaughlin Phone #: 360-443-6206 | Email: cherilyn546@gmail.com
IN-PERSON Nebraska Ataxia Support Group Social Event
IN-PERSON Nebraska Ataxia Support Group Social Event
CENTRAL TIME Picnic at the Park Eugene T. Mahoney State Park, 28500 West Park Hwy, Ashland, NE 68003 RSVP required by Monday, May 15, 2023 RSVP email – info@nebraskaataxia.org or phone number 402-979-6331 For information, visit our website: https://nebraskaataxia.org/events/ For more information contact: Theresa Nelson, 402-979-6331, theresa.nelson@nebraskaataxia.org
VIRTUAL African Americans With Ataxia Support Group Meeting
VIRTUAL African Americans With Ataxia Support Group Meeting
EASTERN TIME For meeting access information, contact the support group leaders or join our Facebook Group: https://www.facebook.com/groups/501238100417901/ For more information about our group contact Letitia Diggs at Letitia.diggs@iCloud.com | 202-386-8289 or Veronica Denis at aaataxia@gmail.com
VIRTUAL Wisconsin Ataxia Warriors Support Group Meeting
VIRTUAL Wisconsin Ataxia Warriors Support Group Meeting
CENTRAL TIME For information and virtual access, contact Greg Forster at ForGreg77@protonmail.com
1 event,
IN-PERSON Cincinnati Ataxia Support Group Meeting
IN-PERSON Cincinnati Ataxia Support Group Meeting
EASTERN TIME Meeting Location: Reading Branch Library conference room, 8740 Reading rd., Cincinnati, Ohio. For more information or to be added to the mailing list for this group please contact: William Vetter at (513) 310-7530 or wjuniorvet@gmail.com Join our Facebook Group: https://www.facebook.com/CincinnatiAtaxiaSupportGroup/
0 events,
1 event,
VIRTUAL Lower Michigan Ataxia Support Group Meeting
VIRTUAL Lower Michigan Ataxia Support Group Meeting
EASTERN TIME For more information, email Brenda Cavanaugh at bkjgcavanaugh@gmail.com Don't forget to join our facebook group! https://www.facebook.com/groups/900105314524248
1 event,
Tai Chi for Ataxia
Tai Chi for Ataxia
Tai chi is a slow, graceful ancient exercise that promotes calm mental focus and alignment while building leg strength, endurance, and balance. This will be a seated exercise webinar for all ages and abilities. Jennifer Keller will introduce Tai Chi Basic Moves and the Tai Chi Fundamentals Adapted Form. Learn more about Tai Chi at
0 events,
4 events,
VIRTUAL Western North Carolina Ataxia Support Group Meeting
VIRTUAL Western North Carolina Ataxia Support Group Meeting
We hope to see you there! For access information contact: Jodie Kawa at Phone #: 828-384-8414 or Email: jodiekawa@comporium.net\ Maggie Dentremont at Phone #: 828-777-7411 Email: magdalenedentremont@gmail.com Join our Facebook Group: https://www.facebook.com/groups/919905244740316/
VIRTUAL Chicago Ataxia Support Group Meeting
VIRTUAL Chicago Ataxia Support Group Meeting
Join us for our virtual meeting at 2pm Central Time! For the Zoom meeting access information contact Julia Pantoga at Phone #: 414-899-5195 | E-mail: sharpturninstitute@gmail.com
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.
0 events,
0 events,
1 event,
VIRTUAL Ataxia Resources and Discussion Group
VIRTUAL Ataxia Resources and Discussion Group
EASTERN TIME Topic: Living with Ataxia Speaker: Dr. Jason Wolfer and Nan Vail Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09 For more information, contact Susan Stiles at sstiles12@gmail.com