Calendar of Events
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1 event,
Ataxia Resources and Discussion Group Meeting
Ataxia Resources and Discussion Group Meeting
EASTERN TIME Topic: “Living with Ataxia Hacks” with speaker Charlotte DePew from 2022 NAF conference Speaker: N/A Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09 For more information, contact Susan Stiles at sstiles12@gmail.com
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1 event,
Spouses and Partners of Loved Ones with Ataxia Support Group Meeting
Spouses and Partners of Loved Ones with Ataxia Support Group Meeting
EASTERN TIME This group is for spouses and partners without Ataxia who have a spouse or partner with Ataxia. This is our spot to learn from one another, vent, have fun, and discuss topics important to us! For meeting access information join our Facebook Group https://www.facebook.com/groups/AtaxiaSpousesAndPartners/. For additional information about the group contact Dana Mauro
2 events,
Global Support Group Meeting – Time Slot #1
Global Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Amy DeLeon at amy@hopeforataxia.org.
Global Support Group Meeting – Time Slot #2
Global Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Amy DeLeon at amy@hopeforataxia.org.
0 events,
0 events,
2 events,
Ataxia Resources and Discussion Group Meeting
Ataxia Resources and Discussion Group Meeting
EASTERN TIME Topic: “Adaptive Recreation” with speaker Linda Snyder, Nebraska SGL from NAF 2020 webinar Speaker: N/A Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09 For more information, contact Susan Stiles at sstiles12@gmail.com
Boston Support Group Evening Chat
Boston Support Group Evening Chat
We welcome anyone to these meetings, regardless of location. Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343
1 event,
Just Us Ataxians (55+) Support Group Meeting
Just Us Ataxians (55+) Support Group Meeting
EASTERN TIME Though we are grateful for the support of Parents/Spouses/Friends of people with Ataxia, this group is just for those WITH ataxia. Join Zoom Meeting https://us02web.zoom.us/j/88594464256?pwd=Wi9pVWVGeGNtb2ErQmxBckpHdlY1dz09 Meeting ID: 885 9446 4256 Passcode: Ataxia For more information or meeting access, contact Donna Gorzela at donna.gorzela@gmail.com
1 event,
Chair Yoga for Ataxia
Chair Yoga for Ataxia
CENTRAL TIME Do you or someone you care about struggle to find ways to stay active and mobile? For people affected by Ataxia it can be hard to stay mobile when challenged with balance and other neurological issues. That’s why we’re offering this special Chair Yoga and Mobility online series for the global Ataxia community.
0 events,
2 events,
Global Support Group Meeting – Time Slot #1
Global Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Amy DeLeon at amy@hopeforataxia.org.
Global Support Group Meeting – Time Slot #2
Global Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Amy DeLeon at amy@hopeforataxia.org.
4 events,
St. Louis Support Group Meeting
St. Louis Support Group Meeting
We meet at 10:30-12:30 Central Time on the 2nd Saturday of every month. Zoom link: https://us02web.zoom.us/j/9247613557 For meeting access information or to be added to the mailing list for this group please contact: Shannon Dunphy Lazo at 202-306-2738 or shan_d@hotmail.com For more information, see our Facebook Group!
North Texas Support Group Meeting
North Texas Support Group Meeting
For meeting access information contact: David Henry Jr 817-739-2886 (contact by email preferred) spinnerjr884@gmail.com Join our Facebook Group!
Treasure Coast Support Group Meeting
Treasure Coast Support Group Meeting
EASTERN TIME Join Zoom Meeting https://us02web.zoom.us/j/84872580415?pwd=R09hRnNpVVNPeHhUa0tPYXZXVnJYQT09 Meeting ID: 848 7258 0415 Passcode: 429848 For more information contact Lisa Cole at 772-370-3041 | lisacoleataxia@gmail.com Join our Facebook Group!
Kansas City Support Group Meeting
Kansas City Support Group Meeting
Join Zoom Meeting https://us02web.zoom.us/j/6185650820?pwd=RXlPMmpCc0tXTmxydC9RcUF3RUxOZz09 Meeting ID: 618 565 0820 Passcode: 8nsFHF For more information join our mailing list by contacting Stephanie Wilkins at Phone #: 816-623-3318 | Email: sfwilkins@yahoo.com Join our Facebook Group: https://www.facebook.com/groups/208618772974351/
2 events,
Cincinnati Support Group Meeting
Cincinnati Support Group Meeting
EASTERN TIME Join Zoom Meetinghttps://us02web.zoom.us/j/81955190420?pwd=dGpGM1FkaXNpSzNXTG4weHA3SXVNUT09 For more information or to be added to the mailing list for this group please contact: William Vetter at (513) 310-7530 or wjuniorvet@gmail.com Join our Facebook Group: https://www.facebook.com/CincinnatiAtaxiaSupportGroup/
Delaware Support Group Meeting
Delaware Support Group Meeting
EASTERN TIME Join Zoom Meeting https://us06web.zoom.us/j/87233976346?pwd=alhaVHBTVW52M0o2ZVpHaDJGRWh6UT09 Meeting ID: 872 3397 6346 Passcode: XfD77w For more information contact Dawn Lentz at Email: silvercat2800@hotmail.com
1 event,
Ataxia Resources and Discussion Group Meeting
Ataxia Resources and Discussion Group Meeting
EASTERN TIME Topic: Breakout Rooms Speaker: N/A Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09 For more information, contact Susan Stiles at sstiles12@gmail.com
2 events,
Research and Treatment Development for SCA27B
Research and Treatment Development for SCA27B
CENTRAL TIME Do you or a loved one have a SCA27B? Our experts will teach us how SCA27B is studied and give an overview of the current state of research and drug development for the disease. Register: Click here.
JHU Ataxia Support Group Meeting
JHU Ataxia Support Group Meeting
EASTERN TIME Zoom link: https://jhjhm.zoom.us/j/98422128138 For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu
0 events,
0 events,
4 events,
Science Showcase: Dr. Santana
Science Showcase: Dr. Santana
CENTRAL TIME A Systems Approach to Find a Blood-Based Biomarker for Machado-Joseph Disease - presented by Dr. Magda Santana. Science Showcase sessions explore a past NAF research grant awardee's funded study to gain scientific insights about their Ataxia research. Register for Webinar: Click here. Lay Summary: In this project, we aim at identifying and developing a
Connecticut Support Group Meeting
Connecticut Support Group Meeting
We meet on the third Friday of the month at 11:30am Eastern Time. For meeting access information contact Susan Masse at: 860-528-1875 or Smasse1875@gmail.com
Global Support Group Meeting – Time Slot #1
Global Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Amy DeLeon at amy@hopeforataxia.org.
Global Support Group Meeting – Time Slot #2
Global Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Amy DeLeon at amy@hopeforataxia.org.
7 events,
Northwestern Washington Yetis Support Group Meeting
Northwestern Washington Yetis Support Group Meeting
Google Meets Link: https://meet.google.com/wms-koqx-evb Contact Instructor Christina Newell at christinanwwasg@gmail.com with questions.
Boston Support Group Meeting
Boston Support Group Meeting
We welcome anyone to these meetings, regardless of location. Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343
Twin Cities Support Group Meeting
Twin Cities Support Group Meeting
CENTRAL TIME Location: Harmony Gardens in Maplewood. https://www.harmonygardenssenior.org/ For access information join our Facebook Group https://www.facebook.com/groups/103233603504142/ For other questions contact Lenore Healey Schultz at Phone #: 612-724-3784 | E-mail: schultz.lenore@yahoo.com
Nebraska Ataxia Support Group Meeting
Nebraska Ataxia Support Group Meeting
HYBRID MEETING - CENTRAL TIME Articulating Ataxia How to communicate ataxia effectively, consistently and quickly-"elevator speech". Things caregivers, doctors or hospitals should know about Ataxians. Speaker - TBD NEW Location- University of Nebraska at Omaha's Community Engagement Center (UNO CEC) 6400 South University Drive Road North, Omaha, NE 68182 Room #201 Plan a little extra
African Americans With Ataxia Support Group Meeting
African Americans With Ataxia Support Group Meeting
EASTERN TIME For meeting access information, contact the support group leaders or join our Facebook Group: https://www.facebook.com/groups/501238100417901/ For more information about our group contact Letitia Diggs at Letitia.diggs@iCloud.com | 202-386-8289 or Veronica Denis at aaataxia@gmail.com
Greater JAX Ataxia Support Group Meeting
Greater JAX Ataxia Support Group Meeting
EASTERN TIME For more information, contact Becky Farinella at fourfarinellas@comcast.net or Wendy Everts at greaterjaxataxia@gmail.com
Wisconsin Ataxia Warriors Support Group Meeting
Wisconsin Ataxia Warriors Support Group Meeting
CENTRAL TIME For information and virtual access, contact Greg Forster at ForGreg77@protonmail.com
1 event,
Cincinnati Support Group Meeting
Cincinnati Support Group Meeting
EASTERN TIME Meeting Location: Reading Branch Library conference room, 8740 Reading rd., Cincinnati, Ohio. For more information or to be added to the mailing list for this group please contact: William Vetter at (513) 310-7530 or wjuniorvet@gmail.com Join our Facebook Group: https://www.facebook.com/CincinnatiAtaxiaSupportGroup/
1 event,
Ataxia Resources and Discussion Group Meeting
Ataxia Resources and Discussion Group Meeting
EASTERN TIME Topic: Christmas party with games and prizes Speaker: N/A Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09 For more information, contact Susan Stiles at sstiles12@gmail.com
0 events,
1 event,
Canada Support Group Meeting
Canada Support Group Meeting
We meet at 7pm Eastern every third Wednesday of the month. For meeting access information Join our Facebook Group: www.facebook.com/groups/1468963499991380/ For more information contact Susan Harding at susangmharding@gmail.com
1 event,
Richmond Virginia Support Group Meeting
Richmond Virginia Support Group Meeting
EASTERN TIME For more information or to join this group’s mailing list contact Karen Russell at Phone #: 804-543-8707 | Email: klrataxia@gmail.com
3 events,
Chicago Support Group Meeting
Chicago Support Group Meeting
Join us for our virtual meeting at 2pm Central Time! For the Zoom meeting access information contact Julia Pantoga at Phone #: 414-899-5195 | E-mail: sharpturninstitute@gmail.com
Global Support Group Meeting – Time Slot #1
Global Support Group Meeting – Time Slot #1
Meetings are at 3PM Click here to register For more information contact Amy DeLeon at amy@hopeforataxia.org.
Global Support Group Meeting – Time Slot #2
Global Support Group Meeting – Time Slot #2
Meetings are at 6PM EST Click here to register For more information contact Amy DeLeon at amy@hopeforataxia.org.
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0 events,
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1 event,
Lower Michigan Support Group Meeting
Lower Michigan Support Group Meeting
For more information, email Brenda Cavanaugh at bkjgcavanaugh@gmail.com Zoom link: https://us06web.zoom.us/j/85747241562?pwd=M0JJV2tHM1g3cGs3TjJ3YlpnRWJMQT09 (EASTERN TIME) For more information, email Brenda Cavanaugh at bkjgcavanaugh@gmail.com Don't forget to join our Facebook group! https://www.facebook.com/groups/900105314524248
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3 events,
Western North Carolina Support Group Meeting
Western North Carolina Support Group Meeting
We hope to see you there! For access information contact: Jodie Kawa at Phone #: 828-384-8414 or Email: jodiekawa@comporium.net\ Maggie Dentremont at Phone #: 828-777-7411 Email: magdalenedentremont@gmail.com Join our Facebook Group: https://www.facebook.com/groups/919905244740316/
Global Support Group Meeting – Time Slot #1
Global Support Group Meeting – Time Slot #1
Register: Click here. Meetings are at 3PM EST For more information contact Amy DeLeon at amy@hopeforataxia.org.
Global Support Group Meeting – Time Slot #2
Global Support Group Meeting – Time Slot #2
Register: Click here. Meetings are at 6PM EST For more information contact Amy DeLeon at amy@hopeforataxia.org.
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