To accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.
Accelerate! is a $1 million annual fund to accelerate our ability to improve the lives of those living with Ataxia. It is designed to raise funds in order to speed up our advocacy efforts, including:
Join the growing number of people that want to stay connected with the Ataxia community! Sign up today. It only takes a few moments. Our members receive:
Last month we asked for your feedback about the FDA’s decision to refuse to file Biohaven’s NDA for troriluzole. More than 3,000 people stepped up to make their voices heard! Read More…
Pictured: Tanoa (left) and Mike (right) at NAF’s 2023 Annual Ataxia Conference in Las Vegas. My name is Tanoa and I am NAF’s Social Media Coordinator. I am proud to Read More…
Step into the world of Mary Hogan, where genealogy goes far beyond a mere hobby and leads to learning about a pervasive genetic disorder called SCA27B. A Family Affected – Read More…
Thank you for submitting your comments for the FDA! NAF gathered feedback from the Ataxia community to submit to the FDA. We’re concerned with the FDA’s decision to refuse to Read More…
Thank you for submitting your comments for the FDA! Troriluzole, an experimental drug being developed by Biohaven, completed Phase 3 clinical trials last year. While the primary endpoint assessing benefit across Read More…
Author: Mark Hazlin, NAF Board Member In 2021, as I logged into the virtual platform for the National Ataxia Foundation (NAF) Hill Day for the first time, I was nervous. Read More…
International Ataxia Awareness Day (IAAD) is on September 25th of each year. It is a coordinated effort from individuals and Ataxia organizations worldwide to help shed light on this rare Read More…
EASTERN TIME Topic: Celebrating International Ataxia Awareness Day Speaker: Lori Shogren, NAF Programs Director Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09 For more information, contact Susan Stiles at sstiles12@gmail.com Read More…
In this session, we will learn about different imaging techniques used in ataxia research and clinical care. Dr. Ian Harding from Monash University will discuss three different kinds of imaging Read More…
EASTERN TIME Zoom link: https://us06web.zoom.us/j/85747241562?pwd=M0JJV2tHM1g3cGs3TjJ3YlpnRWJMQT09 For more information, email Brenda Cavanaugh at bkjgcavanaugh@gmail.com Don’t forget to join our facebook group! https://www.facebook.com/groups/900105314524248 Read More…
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
501(c)(3)
EIN 41-0832903
Mailing Address:
PO Box 27986
Golden Valley, MN 55427
Physical Address:
600 Highway 169 South
Suite 1725
Minneapolis, MN 55426
763-553-0020
763-553-0167 (Fax)
