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National Ataxia Foundation

2022 AAC

Our Vision:

A World Without Ataxia.

Ensuring no one experiences Ataxia alone, until no one experiences Ataxia, period.

Our Mission

To accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.

Join ACCELERATE! To Get Involved

Accelerate! is a $1 million annual fund to accelerate our ability to improve the lives of those living with Ataxia. It is designed to raise funds in order to speed up our advocacy efforts, including:

  • New legislation important to our community and progress
  • Add more resources for the 65+ support groups
  • Educate our community about genetic testing including providing genetic counseling and testing for all those living with Ataxia 
  • Create a national, regional, and local Ataxia Awareness campaign to accelerate the understanding of Ataxia.

Become a Member of NAF for FREE!

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NAF Members

Join the growing number of people that want to stay connected with the Ataxia community! Sign up today. It only takes a few moments. Our members receive:

  • News and research opportunities about their specific type of Ataxia as it becomes available.
  • Early access to free webinars
  • NAF’s eNewsletter and Generations publications. 

NEWS

Pat Clementz-Peterson

The Michael and Patricia Clementz-Peterson Family Fund has supported NAF in many ways throughout the years. Since 2017, they generously pledge to match donations made Read More…

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Debbie Levi

Collective Strength During my late thirties my loss of balance was apparent. That was over 35 years ago. By my early forties, I was diagnosed Read More…

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National Ataxia Foundation

2022 NAF Funded Research

We’re excited to announce that NAF will award more than $850,000 in Ataxia research grants this year! This year’s funded projects will support research on Read More…

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WHAT IS ATAXIA?

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EVENTS

May 20, 2022 03:00 pm - 05:00 pm
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1

Meetings are at 3PM Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org. Read More…

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May 20, 2022 06:00 pm - 08:00 pm
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #2

Meetings are at 6PM EST Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org. Read More…

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May 21, 2022 10:00 am - 11:30 am
CANCELLED Boston Ataxia Support Group Meeting

We welcome anyone to these meetings, regardless of location.   Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia   For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343 Read More…

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May 21, 2022 11:00 am - 01:00 pm
IN-PERSON Nebraska Ataxia Support Group Meeting

Date and Time:               Saturday, May 21, 2022 11:00am to 1:00pm – Lunch to follow   Meeting Location:           University of Nebraska State Museum Morrill Hall 645 North 14th St Lincoln NE 68588   Event:                                “Exploring History and Culture” This outing will be at the museum where we will visit and tour.  Lunch will follow Read More…

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