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BREAKING NEWS: FDA Approves First Treatment for Friedreich’s Ataxia. LEARN MORE!

National Ataxia Foundation

2023 AAC

Our Vision:

A World Without Ataxia.

Ensuring no one experiences Ataxia alone, until no one experiences Ataxia, period.

Our Mission

To accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.

Join ACCELERATE! To Get Involved

Accelerate! is a $1 million annual fund to accelerate our ability to improve the lives of those living with Ataxia. It is designed to raise funds in order to speed up our advocacy efforts, including:

  • New legislation important to our community and progress
  • Add more resources for the 65+ support groups
  • Educate our community about genetic testing including providing genetic counseling and testing for all those living with Ataxia 
  • Create a national, regional, and local Ataxia Awareness campaign to accelerate the understanding of Ataxia.

Become a Member of NAF for FREE!

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NAF Members

Join the growing number of people that want to stay connected with the Ataxia community! Sign up today. It only takes a few moments. Our members receive:

  • News and research opportunities about their specific type of Ataxia as it becomes available.
  • Early access to free webinars
  • NAF’s eNewsletter and Generations publications. 

NEWS

Jo Ann Kovar

My name is Jo Ann Kovar.  I’m a 60-year-old resident of Ames, Iowa.  I moved here 22 years ago from South Louisiana.  When I first moved here, I led an Read More…

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WHAT IS ATAXIA?

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EVENTS

Apr 03, 2023 06:00 pm - 07:30 pm
VIRTUAL Boston Ataxia Support Group Evening Chat

We welcome anyone to these meetings, regardless of location.   Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia   For access information contact Donna Gorzela at Phone #: Read More…

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Apr 05, 2023 01:00 pm - 02:00 pm
VIRTUAL JHU Music Therapy Session

EASTERN TIME Presented by: Emily Mahoney, MMT, LGPC, LPMT, MT-BC The same zoom link will be used for each session, (registration is required). https://jhjhm.zoom.us/meeting/register/tJAtfumurj0qGdTX2xHaOHGp6WqCWsjdvahn For more information, contact Melissa Egerton, Read More…

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Apr 07, 2023 12:30 pm - 01:30 pm
VIRTUAL North Carolina Triangle Ataxia Support Group Meeting

EASTERN TIME Zoom Link: https://us06web.zoom.us/j/86359579262?pwd=eWhMWWpTZjNwMmlONVh4WnFQd1orZz09 Meeting ID: 863 5957 9262 Passcode: zfsW5T During the meeting we will be talking about TRAVEL.  We will be sharing travel tips and stories, so Read More…

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Apr 07, 2023 03:00 pm - 05:00 pm
VIRTUAL Global Ataxia Support Group Meeting – Time Slot #1

Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org. Read More…

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National Ataxia Foundation

Join NAF

Become a member for FREE!
It only takes a few moments.

Sign up today to receive:

  • News and research opportunities about your specific type of Ataxia as they become available
  • Early access to free webinars
  • eNewsletter and Generations publications