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National Ataxia Foundation

Research Pipeline

Our Vision:

A World Without Ataxia.

Ensuring no one experiences Ataxia alone, until no one experiences Ataxia, period.

Our Mission

To accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.

Join ACCELERATE! To Get Involved

Accelerate! is a $1 million annual fund to accelerate our ability to improve the lives of those living with Ataxia. It is designed to raise funds in order to speed up our advocacy efforts, including:

  • New legislation important to our community and progress
  • Add more resources for the 65+ support groups
  • Educate our community about genetic testing including providing genetic counseling and testing for all those living with Ataxia 
  • Create a national, regional, and local Ataxia Awareness campaign to accelerate the understanding of Ataxia.

Become a Member of NAF for FREE!

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NAF Members

Join the growing number of people that want to stay connected with the Ataxia community! Sign up today. It only takes a few moments. Our members receive:

  • News and research opportunities about their specific type of Ataxia as it becomes available.
  • Early access to free webinars
  • NAF’s eNewsletter and Generations publications. 

NEWS

WHAT IS ATAXIA?

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EVENTS

Sep 25, 2023 12:00 am - 11:59 pm
International Ataxia Awareness Day (IAAD)

International Ataxia Awareness Day (IAAD) is on September 25th of each year. It is a coordinated effort from individuals and Ataxia organizations worldwide to help shed light on this rare Read More…

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Sep 25, 2023 03:00 pm - 04:00 pm
VIRTUAL Ataxia Resources and Discussion Group Meeting

EASTERN TIME Topic: Celebrating International Ataxia Awareness Day Speaker: Lori Shogren, NAF Programs Director Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09   For more information, contact Susan Stiles at sstiles12@gmail.com Read More…

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Sep 25, 2023 04:30 pm - 05:30 pm
PrepRARE Webinar: All about Imaging: CT, MRI, and PET

In this session, we will learn about different imaging techniques used in ataxia research and clinical care. Dr. Ian Harding from Monash University will discuss three different kinds of imaging Read More…

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Sep 26, 2023 11:00 am - 12:00 pm
VIRTUAL Lower Michigan Ataxia Support Group Meeting

EASTERN TIME Zoom link: https://us06web.zoom.us/j/85747241562?pwd=M0JJV2tHM1g3cGs3TjJ3YlpnRWJMQT09   For more information, email Brenda Cavanaugh at bkjgcavanaugh@gmail.com Don’t forget to join our facebook group! https://www.facebook.com/groups/900105314524248 Read More…

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