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The Ataxia Community Comes Together in Orlando April 9–11, 2026 for the Annual Ataxia Conference! LEARN MORE

Our Vision:

A World Without Ataxia.

Ensuring no one experiences Ataxia alone, until no one experiences Ataxia, period.

Our Mission

To accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.

Share Your Story. Strengthen Our Voice.

Cameryn’s story is a powerful reminder of why we can’t wait for progress in Ataxia treatment development. While Ataxia affects each person differently, every voice matters in the fight for treatments and a cure. Watch her story, then share your own on social media with #KnowAtaxia to raise awareness and bring us closer—together—to a world without Ataxia.

Share your story about living with Ataxia. For Cameryn. For everyone still fighting. Every voice brings us closer to a cure!

Become a Member of NAF for FREE!

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Join the growing number of people that want to stay connected with the Ataxia community! Sign up today. It only takes a few moments. Our members receive:

  • News and research opportunities about their specific type of Ataxia as it becomes available.
  • Early access to free webinars
  • NAF’s eNewsletter and Generations publications. 

NAF Blog

Recent Articles

University of Florida Brain Bank

Location Gainesville, FL USA  Website www.neurogenetics.med.ufl.edu/patients/brain-donation-program/ Phone Number (352) 273-5189  Email dgmorrison@ufl.edu  Geographic Restrictions Continental USA   Other Restrictions Donations are restricted to forms of Ataxia characterized Read More…

Recent Member Stories

Sarah Altis

It started about 12 years ago. My dad was diagnosed with Ataxia. I wasn’t really sure what that meant, but I spent the next several Read More…

Bella

I’m Bella and from China, thanks to this platform so I could share my story here. My diagnosis was very easy, not that complicating. I Read More…

Michal

Hello Everyone, I’m a pharmacist and have been living for half a century. I learned about my wife’s Ataxia in October of this year. I Read More…

What Is Ataxia?

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EVENTS

Feb 15, 2026 09:00 am - 02:00 pm
Treasure Coast Support Group Booth

EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…

Feb 15, 2026 01:00 pm - 02:00 pm
30-55 Years old with Ataxia Support Group Meeting

PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…

Feb 16, 2026 07:00 pm - 09:00 pm
Indianapolis National Ataxia Community (I-NAC) Support Group Meeting

EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…

Feb 17, 2026 01:00 pm - 02:00 pm
Ask the Ataxia Expert

CENTRAL TIME Dr. Susan Perlman of UCLA Medical Center in Los Angeles joins NAF to offer a Q&A session for the Ataxia community. This is an informal discussion-style webinar without Read More…

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