ACE applications are now open through October 15. Join a national network committed to providing high-quality, comprehensive Ataxia care. Apply Now!
Cameryn’s story is a powerful reminder of why we can’t wait for progress in Ataxia treatment development. While Ataxia affects each person differently, every voice matters in the fight for treatments and a cure. Watch her story, then share your own on social media with #KnowAtaxia to raise awareness and bring us closer—together—to a world without Ataxia.
Share your story about living with Ataxia. For Cameryn. For everyone still fighting. Every voice brings us closer to a cure!
Join the growing number of people that want to stay connected with the Ataxia community! Sign up today. It only takes a few moments. Our members receive:
When Mark Minkin signed up for Xtreme Hike, he wasn’t just taking on a mountain. He was taking on a challenge that would honor his Read More…
Enhancing Community Through Professional Support For decades, NAF Support Groups have provided a welcoming place for people living with Ataxia, caregivers, family members, and loved Read More…
Guest Author: Pinalben “Pinky” Patel My vision has never been 20/20. Okay, maybe it was up until my preteen years. This disease I have affects Read More…
Good Laboratory Practices (GLPs) are standards for nonclinical research studies. These standards must be met before the research data can be accepted and reviewed by a regulatory agency. A nonclinical study involves experiments to determine the safety of a product. But not in people! Read More…
A 29-Year Journey to the Truth My name is Anamaria Mitre, I am from Zalau, Romania, and I am 42 years old. If you saw me today, Read More…
My story started in 2016 with double vision and eye movements. I went to the neuro ophthalmologist who suggested fixing my problem with Yankee my Read More…
When I had my tinnitus investigated in 2007, a balance disorder was discovered. I was put in touch with a neurologist who suspected something called Read More…
Finding Balance: My Journey to a Rare Diagnosis For years, I brushed off the dizziness, fatigue, and the way my feet sometimes seemed to have Read More…
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…
Global (Hope for Ataxia) Support Group – 1 Session EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. Read More…
Global Support Group (Hope for Ataxia) – 2nd Session EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. Read More…
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…
