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Cameryn’s story is a powerful reminder of why we can’t wait for progress in Ataxia treatment development. While Ataxia affects each person differently, every voice matters in the fight for treatments and a cure. Watch her story, then share your own on social media with #KnowAtaxia to raise awareness and bring us closer—together—to a world without Ataxia.
Share your story about living with Ataxia. For Cameryn. For everyone still fighting. Every voice brings us closer to a cure!
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Guest Author: Jeff Gallagher, Patient Advocate and Caregiver My wife, Debbie, inherited ataxia from her mother and became symptomatic nearly 35 years ago (when she Read More…
People with Ataxia who rely on Medicaid coverage may be impacted by new Medicaid community engagement requirements and may be required to provide proof of Read More…
For many families affected by Ataxia, becoming a caregiver isn’t something that happens all at once. It happens gradually through driving to more appointments, helping Read More…
When Mark Minkin signed up for Xtreme Hike, he wasn’t just taking on a mountain. He was taking on a challenge that would honor his Read More…
Hello, I wanted to share with you the disease that has been in my family (my dad) : Spinocerebellar Ataxia Type 3, or for short Read More…
It all started with a change in my speech. I honestly thought I may have suffered a stroke whilst sleeping or something because it suddenly Read More…
I was diagnosed with SCA1 in 2010, five years ago I had to stop work due to it becoming too hazardous, I lost my ability Read More…
Hi, I’m Rochelle I am 60 years old mother of three adult children and grandmother to 3. All of my life even as a teenager Read More…
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…
Global (Hope for Ataxia) Support Group – 1 Session EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. Read More…
Global Support Group (Hope for Ataxia) – 2nd Session EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. Read More…
