Fact Sheets

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Become a Member

NAF offers monthly newsletters and educational webinars to our members. NAF membership includes the following:

Persons with heredity or Sporadic Ataxia, their families, and friends.
Medical and scientific community involved in Ataxia research.

Become a member for free: www.ataxia.org/JoinNAF

View past Ataxia webinars:
www.ataxia.org/webinars

Join a Support Group

Ataxia support groups are a great source of information at the local level. They are also opportunities to network and learn from peers. Feel free to reach out directly to a support group leader in your area.

Find a support group: www.ataxia.org/support-groups
Learn about our current research

Find upcoming support group meetings:
www.ataxia.org/events

Contact Us

Email naf@ataxia.org or send mail to:

National Ataxia Foundation
PO Box 27986
Golden Valley, MN 55427
763-553-0020
763-553-0167 (Fax)

The National Ataxia Foundation provides these downloadable Fact Sheets for free. Click the icon or title to download the fact sheet.

General Fact Sheets (PDF Links)

Newly Diagnosed Resources

If you were recently diagnosed and don't know where to start, this fact sheet will provide you with things to do next.

Ataxia Brochure

Information about Ataxia and NAF.

Ataxia Card

Printable business card explaining Ataxia symptoms.

Ataxia Classification

Frequently asked questions about Ataxia classification

Ataxia Fact Sheet

Frequently asked questions about Ataxia

Ataxia – Resources

A list of resources available from the National Ataxia Foundation.

Brain Tissue Donation

Fact sheet about brain tissue donation for Ataxia patients.

Coordinative Physiotherapy for Patients with Ataxia

Directions and diagrams for an exercise program for those with Ataxia.

Gene Testing for Hereditary Ataxia

Information about genetic testing for Ataxia.

Medications for Ataxia Symptoms

Educational discussion of medications for Ataxia symptoms.

Preparing for a Visit with the Neurologist

Tips about how to have a productive neurologist appointment.

Rare Disease Medication FAQs

A look at how to access a new medication for a rare disease after it has been approved by the FDA.

This resource was created by FARA.

Fact Sheets by Ataxia Type

Episodic Ataxia

Fact sheet about Episodic Ataxia.

Friedreich's Ataxia

Fact sheet about FA.

FXTAS

Fact sheet about FXTAS, provided by the National Fragile X Foundation

Spinocerebellar Ataxia Type 1 (SCA 1)

Fact sheet about SCA1.

Spinocerebellar Ataxia Type 2 (SCA 2)

Fact sheet about SCA2.

Spinocerebellar Ataxia Type 3 (SCA 3)

Fact sheet about SCA3, also known as Machado-Joseph Disease.

Spinocerebellar Ataxia Type 5 (SCA 5)

Fact sheet about SCA5.

Spinocerebellar Ataxia Type 6 (SCA 6)

Fact sheet about SCA6.

Spinocerebellar Ataxia Type 7 (SCA 7)

Fact sheet about SCA7.

Spinocerebellar Ataxia Type 8 (SCA 8)

Fact sheet about SCA8.

Spinocerebellar Type 10 (SCA 10)

Fact sheet about SCA10.

Spinocerebellar Type 14 (SCA 14)

Fact sheet about SCA14.

Sporadic Ataxia And Multiple System Atrophy

Fact sheet about Sporadic Ataxia and MSA

Topical Fact Sheets, Printable Articles, or Books

Children with Ataxia (2011)

Children with Ataxia

Children with Ataxia, 2nd Ed. (2015)

Children with Ataxia 2nd. ed.

Cognition and Emotion in Cerebellar Disorders

Frequently asked questions about cognition and emotion in cerebellar disorders.

Financial Planning

Financial planning questions and resources.

Nutrition and the Patient with Progressive Central Nervous System Disease

A manual for patients and their families.

Sleep Difficulties in Patients With Cerebellar Degeneration

Information about sleep disorders and Ataxia.

Spinocerebellar Ataxia: Making an Informed Choice About Genetic Testing

This booklet reviews information about dominantly inherited forms of Spinocerebellar Ataxia (SCA) and genetic testing for SCAs.

Understanding Genetics

Information about genes, DNA and cause of genetic disease.