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Fact Sheets

Printable resources to gain knowledge or bring to your care provider.

The National Ataxia Foundation provides these downloadable Fact Sheets for free. Click the icon or title to download the fact sheet.

General Fact Sheets for All Types

If you were recently diagnosed and don't know where to start, this fact sheet will provide you with things to do next.

Information about Ataxia and NAF.

Printable business card explaining Ataxia symptoms.

Frequently asked questions about Ataxia classification

Frequently asked questions about Ataxia

A list of resources available from the National Ataxia Foundation.

Fact sheet about brain tissue donation for Ataxia patients.

Directions and diagrams for an exercise program for those with Ataxia.

Information about genetic testing for Ataxia.

Educational discussion of medications for Ataxia symptoms.

Tips about how to have a productive neurologist appointment.

A look at how to access a new medication for a rare disease after it has been approved by the FDA.

This resource was created by FARA.

By Ataxia Type

Fact sheet about ataxia caused by stroke.

Fact sheet about Episodic Ataxia.

Fact sheet about FA.

Fact sheet about FXTAS, provided by the National Fragile X Foundation

Fact sheet about Immune-Mediated Ataxia.

Fact sheet about SCA3, also known as Machado-Joseph Disease.

Fact sheet about SCA10.

Fact sheet about SCA14.

Fact sheet about SCA27B.

Fact sheet about Sporadic Ataxia and MSA

Fact sheet about SYNE1 Ataxia, also known as Autosomal Recessive Spinocerebellar Ataxia type 8 (SCAR8), Autosomal Recessive Cerebellar Ataxia type 1 (ARCA1), SYNE1 Related Autosomal Recessive Ataxia (SYNE1 Ataxia), or Autosomal Recessive Ataxia, Beauce type.

By Language

Las Preguntas Más Frecuentes Acerca De La Ataxia

Topical Fact Sheets

Frequently asked questions about cognition and emotion in cerebellar disorders.

Financial planning questions and resources.

Information about sleep disorders and Ataxia.

This booklet reviews information about dominantly inherited forms of Spinocerebellar Ataxia (SCA) and genetic testing for SCAs.

Printable Articles or Books

Children with Ataxia

Children with Ataxia 2nd. ed.

Information about genes, DNA and cause of genetic disease.

Get More Information

Become a Member

NAF offers monthly newsletters and educational webinars to our members. NAF membership includes the following:

  • Persons with heredity or Sporadic Ataxia, their families, and friends.
  • Medical and scientific community involved in Ataxia research.

Become a member for free: www.ataxia.org/JoinNAF

 

Join a Support Group

Ataxia support groups are a great source of information at the local level. They are also opportunities to network and learn from peers. Feel free to reach out directly to a support group leader in your area.

www.ataxia.org/support-groups

 

Other Educational Resources

Ataxia webinars: www.ataxia.org/webinars

PrepRARE Clinical Trial Readiness Education: www.ataxia.org/PrepRARE

Contact Us

Email naf@ataxia.org or call 763-553-0020

Send mail to:

National Ataxia Foundation
PO Box 27986
Golden Valley, MN 55427
 
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