NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF’s Ataxia Clinical Training (ACT) program debuted in March 2022. The primary objective of this training session is to acquire practical knowledge about the diagnostic investigation and treatment of ataxias. Attendees can expect a full agenda, including a series of didactic lectures by ataxia experts, as well as panels, networking opportunities, and hands-on clinical demonstrations. At ACT, attendees receive cutting-edge, focused instruction and exposure to the latest clinical research in the ataxia field. Notably, attending ACT provides the opportunity to personally interact with patients and families affected by a wide spectrum of ataxic disorders as ACT is held alongside the National Ataxia Foundation’s annual patient conference. ACT curriculum, designed and taught by leading clinical experts, includes talks on diagnostic approaches to ataxias, hereditary and acquired ataxias, neurogenetics of ataxias, treatment of ataxia, and research on ataxia.
ACT provides attendees with the ability to network with ataxia experts, world-renowned clinicians and scientists, and explore opportunities for specializing in this field. There is a need for new talent and ideas, given we are ushering in an era of cutting-edge molecular, biopharmaceutical, and bioengineering tools that hold significant promise for the cure of neurodegenerative disorders.
The highlight of ACT is interactions between attendees and patients affected by a wide spectrum of ataxic disorders. Very few conferences offer the opportunity to bolster didactic knowledge with hands-on clinical training and patient engagement, making this course unique in its training scope.
Feedback from prior attendees:
ACT is an intensive course designed for all interested neurology providers including residents, fellows, attending physicians, advanced practice providers, allied healthcare professionals, and industry professionals seeking to broaden their understanding of Ataxia diagnosis and clinical management.
A certificate of completion will be awarded to each attendee who attends all sessions and completes all aspects of the program including required pre-reading and on-demand lectures, pre-and-post tests, and course feedback evaluations.
More details, including application & registration links, will be shared later this year. Please reach out to our team at research@ataxia.org if interested in joining the ACT mailing list.
NAF’s Ataxia Clinical Training program is designed for clinicians and other interested ataxia care providers and industry allies.
NAF will share application details as available. Please reach out to our team at research@ataxia.org if interested in joining the ACT mailing list.
Registration provides access to a full agenda of in-person lectures, panels, and training & networking opportunities at ACT 2026. Most meals are included on-site.
Travel and lodging costs are at attendee expense; we encourage applicants to inquire with their institutions to source additional travel support. Registered attendees will have access to reduced room rates at the conference hotel.
Registration Fees
Residents/Movement Disorders, Neuromuscular, Genetics Fellows: Complimentary*
*Limited complimentary registrations are available and will be allocated on a first come, first served basis based on the date an application was received. Please apply early! If all complimentary spots fill, residents & fellows will be invited to register to attend at the regular registration rate.
Regular Registration: TBA
Applies to all non-industry healthcare and medical professionals.
Corporate/Industry Registration: TBA
Applies to all corporate and industry attendees.
NAF Drug Development Collaborative members, please contact Aimee Alcott at aimee@ataxia.org for reduced registration rates.
ACT 2026 will be hosted at the Rosen Center in Orlando, FL April 9-11, 2026.
Additional travel information, including group rates for the conference hotel, will be sent to registered attendees.
2026 ACT Application Forthcoming-
watch this page for updates!
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
