NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
Welcome to our Provider Resource page, a hub designed to support healthcare providers who are treating patients with Ataxia.
This page offers a collection of reliable information and resources tailored to empower patients and enhance their care journey. As a clinical provider, you’ll find a variety of resources here that you can confidently share with your patients, helping them to better understand their condition and manage their health more effectively.
Ataxia Med News is intended to be a quick read for health practitioners that specialize in Ataxia clinical care. We understand the need for patient-facing resources available at your fingertips. Read through our recent issues to find exactly that.
Are you signed up to receive Ataxia Med News? Join as a professional member of NAF for free to begin receiving the emails!
NAF is always updating our resources and adding new ones. Please share with patients!
These resources may be helpful to your patients who were recently diagnosed and are looking for what they should do next.
This is a collection of general resources.
These resources are designed for healthcare providers. These resources are designed for healthcare providers. NAF is always updating our resources and adding new ones. Stay tuned for more!
Vumedi – Video Education Platform
Vumedi is the leading video education platform for doctors, hosting over 65,000 videos created by nationally recognized physicians and academic partners and featuring the latest medical trends and expertise. Register for free access to Vumedi’s video library at www.vumedi.com.
NAF proudly announced our Ataxia Centers of Excellence (ACE) sites in May & September 2023. We have designated 24 U.S. and international clinics whose providers demonstrate exceptional clinical care, a commitment to professional training and research, and focus on community outreach and education for patients and families. Visit our ACE page for more information about the next cycle of applications. Reach out to Kelsey, our Clinical Services Director, at kelsey@ataxia.org for more information.
NAF provides comprehensive support and resources to those living with Ataxia. As part of our ongoing efforts, we create content on a variety of healthcare topics. We are always looking for dedicated health professionals to collaborate with to provide education to the Ataxia community. If you are interested in presenting for a webinar, being considered as a speaker at our annual patient conference, or writing content for a blog or fact sheet, reach out! Email us at research@ataxia.org with your thoughts.
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
