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National Ataxia Foundation

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International Ataxia Awareness Day

September 25th

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International Ataxia Awareness Day (IAAD) is on September 25th of each year. It is a coordinated effort from individuals and Ataxia organizations around the world to help shed light on this rare disease. NAF is committed to leading the way on this outreach effort – but we need your help! We encourage individuals and disease organizations to join us by planning events and/or awareness campaigns for IAAD. 

Get Involved

IAAD is a great time to start up Ataxia advocacy initiatives. Join our Hill Day event to help get the day declared as National Ataxia Awareness Day or get a proclamation for IAAD in your city or state. Instructions that explain the process are included in the downloads below. Visit our advocacy page for more info about ongoing initiatives.

Join Our Hill Day Advocacy Event

We invite you to join NAF and FARA in raising awareness about Ataxia and supporting legislation that directly impacts our communities. The fourth United Against Ataxia Hill Day will be held on Wednesday, September 21, 2022. A group of advocates will meet with Congressional Members to discuss issues important to the Ataxia community. It will be a virtual event so every US resident, regardless of where you are, can participate. There is no cost or need to travel. Instead, you can speak to your Congressional Members right from the comforts of your home!

Post on Social Media

An easy way to help with Ataxia awareness is using social media. You can post a personal story or information about Ataxia to help with the awareness efforts. NAF offers social media post ideas and images. Use #IAAD22 for your social media posts to help International Ataxia Awareness Day trend on social media! Follow NAF on Facebook and Twitter to share our IAAD messages.

Join Our #AskMeAboutAtaxia Campaign

A great way to spread awareness is to encourage people to learn about Ataxia. The best way to help others understand something that they are unfamiliar with is to allow them to ask questions. For IAAD, we’re starting an “Ask Me About Ataxia” movement! Post a photo of yourself or your group with a sign that says, “Ask Me About Ataxia.”  Our goal is to get a conversation started. If you give your friends and followers the opportunity to ask questions – you never know how many people you might reach! Share what you know about Ataxia and your experiences.

Tag us on social media or submit your photos to naf@ataxia.org. We will post your photos during our IAAD campaign throughout the month of September.

Printable Signs

Feel free to use our printable signs for your photos! 

Sample Social Media Posts

Did you know that I have a rare brain disease? International Ataxia Awareness Day is September 25th. #AskMeAboutAtaxia or visit www.ataxia.org so that I can help you learn more! #IAAD22

Did you know that I have family members affected by a rare brain disease? International Ataxia Awareness Day is September 25th. #AskMeAboutAtaxia or visit www.ataxia.org so that I can help you learn more! #IAAD22

Ataxia is a rare brain disease that affects every part of a person’s life. International Ataxia Awareness Day is September 25th. #AskMeAboutAtaxia or visit www.ataxia.org so that I can help you learn more! #IAAD22

Attend a Walk N' Roll to Cure Ataxia

Walk N’ Roll is NAF’s largest grassroots fundraising campaign. Walk N’ Roll began in 2007. It is held in cities across the United States. Thousands of families, friends, co-workers, neighbors, and communities come together each year to support NAF’s mission to accelerate the development of treatments and improve the lives of people living with Ataxia. 

IAAD Downloads

Looking for graphics or information to share on social media? Feel free to use the images and information below. 

Plan an Event

Planning an event or activity is a great way to raise awareness and get others involved in taking action. Organizing your awareness activity on or around September 25th will help build strength of the awareness effort and draw media attention. Activities can be small or large, social or educational, informational or fundraiser – the possibilities are endless! 

Organize an Event
Get started by promoting your IAAD event or activity. Submit the event details to naf@ataxia.org if you’d like it added to our events calendar. Tell your friends, family, and local news outlets about your event. 

Find an Event
Check out our events calendar to find an IAAD event near you. Many Walk N’ Roll to Cure Ataxia events are held in honor of IAAD. Join us at an event or walk in your area! Local support groups are also a great resource for meetings and events. Find a support group leader in your area and reach out!

Upcoming Events

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