Comprehensive Clinical Care

• Must have a coordinated ataxia clinical care team to provide comprehensive multidisciplinary ataxia care that includes: 
• • • at least two neurologists with specialized training/experience in ataxia/movement disorder

      OR 

    • at least .5 FTE combined dedicated clinical time to ataxia between neurologist and Advanced Practice Practitioners 

• Offer Referral Services, such as, but not limited to:
  • Genetic Counseling and Testing
  • Urology
  • Cardiology
  • Ophthalmology
  • Psychiatry/Psychology
  • Family Planning & Reproductive Health
  • Trained Rehabilitation Specialists (e.g., Physical and Occupational Therapy, Speech Language Pathology)
  • Social Services
  • Palliative Care
• Provide clinical care for at least 30 ataxia patients annually and patients must span a variety of ataxia types.

Professional Training and Research

• Provide clinical education and training to health care professionals (e.g., fellows, nurses, PTs, social workers) through clinical rotations, fellowships, and/or professional conference presentations.
• Must have a designated clinical coordinator who dedicates some time to Ataxia. 
• Demonstrates active engagement in Ataxia clinical trials and/or research studies.

Community Education and Outreach

• Engage in community-based educational or outreach events for individuals with Ataxia, care partners and families (e.g., participate in fundraisers, patient meetings, support groups, webinars).
• Promote patient engagement in clinical research studies and clinical trials.
• NAF reserves the right to conduct anonymous satisfaction surveys for NAF membership regarding care experienced at ACE. Low satisfaction scores may jeopardize annual re-certification. Sites may have an opportunity to address issues via agreed upon care improvement contracts.