Bill Nye the Science Guy is speaking at the 2024 Annual Ataxia Conference! Register now. LEARN MORE!
A collection of resources for individuals and families affected by an unknown type of Ataxia.
People affected by Ataxia may experience problems with using their fingers and hands, arms or legs, walking, speaking, swallowing, or moving their eyes. For complete information about symptoms, diagnosis, and treatment of Ataxia, visit our What is Ataxia? page.
Most types of Ataxia are caused by a genetic mutation that is passed on from parents to their children. However, in many cases, a person is diagnosed with Ataxia without the specific type being identified. This page contains NAF’s webinars that are specific to individuals with an unknown type of Ataxia who do not have any family members who have Ataxia.
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Presented by George “Chip” Wilmot, MD, PhD
Many people with Ataxia do not yet have a diagnosis for their disease. Our clinical expert joined us to take a look at the causes and symptoms of unknown Ataxia without a family history, the typical diagnostic journey for those affected, and what to expect for clinical care.
Presented by Brent Fogel, MD, PhD
Ataxia is a rare neurological disease that can have a wide array of genetic origins. While some forms of the disease have been identified, many people with Ataxia do not yet have a diagnosis for their disease. This webinar explores how the unknown Ataxias are studied and an overview of the current state of research and drug development.
NAF offers webinars on many topics to help you live better with Ataxia. Visit www.ataxia.org/webinars to find other helpful presentations.
Participating in a research study or clinical trial is one way to take an active role in furthering understanding and treatment of Ataxia. It is also a way to get access to new treatment options before they are widely available. To find studies that are enrolling patients, visit our Help Develop New Treatments page.
SCAsource provides Ataxia research news, directly from researchers to the Ataxia community. Visit SCAsource to see their full collection. Here is a collection of articles that are relevant to unknown types of Ataxia.
Written by Dr. Hayley McLoughlin and Dr. Sharan Srinivasan Edited by Dr. Celeste Suart A novel genetic sequencing technology uncovered numerous familial ataxia cases linked to a unique mutation in Read More…
Most things about you are written in your genes: from the colour of your eyes, whether you are lactose intolerant, to if you have a higher chance of getting certain Read More…
Written by Ziyang Zhao Edited by Dr. Hayley McLoughlin A newly developed smartphone application will allow patients to assess ataxia at home. There’s an interesting problem in science that’s often Read More…
Transcranial Direct Current Stimulation (tDCS) is a non-invasive method of brain stimulation. It promotes or inhibits activities in specific parts of the brain. tDCS is an experimental treatment that has Read More…
Riluzole, often sold under the trade name Rilutek, is a medication used for the treatment of amyotrophic lateral sclerosis (ALS). ALS is a fatal neurodegenerative disease that mainly affects neurons Read More…
Written by Dr. David Bushart Edited by Dr. Sriram Jayabal How can employment be made more accessible for ataxia patients? What barriers exist? A study of workers and non-workers with Read More…
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