A designation to recognize centers that provide comprehensive care and services for individuals affected by Ataxia and their families.
NAF’s Ataxia Centers of Excellence (ACE) program is to designate exceptional regional centers providing comprehensive care and services for individuals affected by Ataxia and their families. In addition to providing expert clinical care for a variety of Ataxias and Ataxia-related disorders, the Centers should be engaged in clinical research and/or clinical trials, provide professional and lay education to patients and their families in the areas they serve, and work with NAF locally and nationally in its efforts to continually improve the lives of those affected by Ataxia.
Current NAF Ataxia Centers of Excellence in the United States are listed on the map below. Select a state to view more information. International ACE’s are listed in alphabetical order below the map.
Lima, Peru
Website: www.incn.gob.pe
Phone: 511 4117700
Melbourne, Australia
Website: eyeandear.org.au/
Phone: 03 9929 8666
Montréal, QC
Website: www.chumontreal.qc.ca
Phone: 514 890-8000
Bonn, Germany
Website: www.ukbonn.de/
Phone: 49 228 2870
Comprehensive Clinical Care
Professional Training and Research
Community Education and Outreach
NAF accepts applications three times per year. If approved, designated centers will maintain their recommendation for five years from the date of approval, at which time they will be required to re-submit a proposal for review. Selected sites must meet annual reporting requirements to maintain ACE designation.
Ataxia clinical sites seeking a NAF Ataxia Centers of Excellence (ACE) designation must submit their proposal using the ACE application form before the application cycle deadline. If you have any questions, email Kelsey Trace at kelsey@ataxia.org.
APPLICATION CYCLE
December 1, 2022 –
March 31, 2023
April 1, 2023 –
July 31, 2023
August 1, 2023 –
November 30, 2023
APPLICATION DUE DATE
End of Business Day –
March 31, 2023
End of Business Day –
July 31, 2023
End of Business Day –
November 30, 2023
DECISION COMMUNICATED BY
April 30, 2023
August 31, 2023
December 31, 2023
START/
END DATE
May 2023 /
April 2028
September 2023 /
August 2028
January 2024 /
December 2028
Applications will be reviewed by a committee composed of NAF staff, representatives from the NAF Medical Research and Advisory Board, an industry representative from NAF’s Drug Development Collaborative, and a patient representative. All applications will be scored, using the following criteria:
The scoring of applications is part of an internal review process. Therefore, scores will not be shared with any site applying for designation, regardless of whether the site is given designation. Following review of the application, applicants not selected for designation may request a virtual meeting to discuss avenues to strengthen future applications.
If you have any questions about NAF’s Ataxia Center of Excellence designation, contact our Research Services Manager, Kelsey Trace, at kelsey@ataxia.org.
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501(c)(3)
EIN 41-0832903
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PO Box 27986
Golden Valley, MN 55427
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600 Highway 169 South
Suite 1725
Minneapolis, MN 55426
763-553-0020
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