Skip to content

Registration for 2024 Annual Ataxia Conference is NOW OPEN! Early-bird discount available for a limited time.  LEARN MORE!

Media

A resource of NAF’s press coverage and information for media inquiries.

NAF News

Impact Story

The Ruehl Family

When Charlie Ruehl was in high school, his mom Susan recalls he would always miss the same step at the bottom of their staircase. She Read More…

Print Friendly, PDF & Email

MEDIA CONTACT
Stephanie Lucas
Communications Director
stephanie@ataxia.org | 763-231-2744

To request a press release to be issued by NAF, submit the information using our Press Release Request Form.

Press Kits

In the News

Sports Illustrated, December 2024

While most NIL partnerships are centered around talent promoting a brand or consumer product, four student-athletes across the country have instead used their platforms to increase awareness and help raise funds for a rare disease.

The National Ataxia Foundation partnered this semester with Mya Hooten (University of Minnesota Gymnastics, Brandon Garrison (Oklahoma State Basketball), Elise Evans (Stanford Soccer) and J.D. Urso (University of Miami Baseball) to support research and fundraising efforts for the rare neurodegenerative disease.

Read article

The Knight Crier, November 2023

Friends remember Mike Andersen as quick to help — and quicker to dodge the credit. The U.S. Army veteran and owner of north Orange County-based HVAC company Veteran Air died on Oct. 3 at age 40…Nonprofit founder Cindy Furton De Mint recalled Andersen being proactive when it came to getting involved. She started Brothers on a Quest to raise awareness for ataxia, a condition three out of her sons have. She recalled how Andersen not only showed up to her foundation’s events, but was always a platinum sponsor of the National Ataxia Foundation’s annual walk.

Read article

Star Tribune, September 2023

Friends remember Mike Andersen as quick to help — and quicker to dodge the credit. The U.S. Army veteran and owner of north Orange County-based HVAC company Veteran Air died on Oct. 3 at age 40…Nonprofit founder Cindy Furton De Mint recalled Andersen being proactive when it came to getting involved. She started Brothers on a Quest to raise awareness for ataxia, a condition three out of her sons have. She recalled how Andersen not only showed up to her foundation’s events, but was always a platinum sponsor of the National Ataxia Foundation’s annual walk.

Read article

Star Tribune, September 2023

Defensive tackle Harrison Phillips has a charitable reputation, and he’s cranked that up a notch heading into the 2023 season…Another eight tickets went to the National Ataxia Foundation, a Twin Cities nonprofit assisting people with the namesake disease that affects the nervous system. 

Read article

CBS 58 News, August 2023

The 2nd annual National Ataxia Foundation Bowl for a Cure is scheduled to take place in Richfield aims to deliver a fun-filled bowling experience for participants of all ages on Saturday, Sept. 23. The event aims to raise awareness and support for those affected by ataxia, a rare neurological disorder affecting coordination, speech and balance.

Read article

Healthcare at Home: The Rowan Technology Report, April 2023

The 66th annual convention of the National Ataxia Foundation was held in Las Vegas last week. If you are a nurse, therapist, or physician reacting to that news with, “What is Ataxia? I’ve never heard of it,” the conference theme is addressed to you: “No one should have to teach their doctor about their disease!” The theme was repeated frequently during the three-day conference by everyone from nationally known neurologists from UCLA and Johns Hopkins to TV personality Bill Nye, who has family members stricken with the genetic disorder but has himself been spared.

Read article

News Medical, October 2022

In this interview, we speak to Dr. Lauren Moore from the National Ataxia Foundation about ataxia and how the NFL is helping to raise awareness for this condition.

Star Tribune, October 2022

Ataxia, an obscure neurological term with deep roots in Minnesota, was thrust into the NFL’s concussion protocol lexicon last week and has impacted this week’s Vikings game in Miami.

USA Today, October 2022

The National Ataxia Foundation says ataxia symptoms are similar to being drunk, in that people have problems using their extremities,…

Enstarz, October 2022

Weeks after the dreaded accident happened, the NFL and NFLPA found out that “the outcome in this case is not what was intended when the Protocols were drafted.” The mentioned concussion protocols will keep the players from playing if they are experiencing ataxia. The condition, according to the National Ataxia Foundation, is a rare neurological disease that affects a person’s mobility due to damage to the cerebellum. Poor muscle control leads to a lack of coordination, as well.

Member Stories

The Ruehl Family

When Charlie Ruehl was in high school, his mom Susan recalls he would always miss the same step at the bottom of their staircase. She chalked it up to him Read More…

Print Friendly, PDF & Email

Carol Paige

My unwanted guest arrived when I was conceived. He rode in on my DNA and set up residence in the part of my brain called the cerebellum. This is located Read More…

Print Friendly, PDF & Email

Tom Lawson

My name is Tom Lawson and I am 46 years old, married with three children and a dog. I was diagnosed with Cerebellar Ataxia six years ago. Being diagnosed with Read More…

Print Friendly, PDF & Email

Bob Budack

My Ataxia Story My name is Robert (Bob) Budack and this all began with me when I was about 15 years old (in about 1967).  I started having double vision Read More…

Print Friendly, PDF & Email

A Poem for Brian

This a poem I wrote for Brian Oliveira my husband who passed away from complications associated with Spinocerabellar Ataxia Type 3 (SCA3).  Dedicated to Brian OliveiraWritten by Sari Oliveira Imagine Read More…

Print Friendly, PDF & Email

Timothy Wahl

Episodic Ataxia: The Invisible Impairment Often misdiagnosed, misunderstood, and unseen. A sufferer writes of a silver lining in his tale of swoon and gloom. by Timothy Wahl My childhood was Read More…

Print Friendly, PDF & Email

MEDIA INQUIRIES – CONTACT
Stephanie Lucas
Communications Director
stephanie@ataxia.org | 763-231-2744

To request a press release to be issued by NAF, submit the information using our Press Release Request Form.

Print Friendly, PDF & Email
Translate »

Join the Ataxia community today!

Become a free member for exclusive content from NAF.