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Media

A resource of NAF’s press coverage and information for media inquiries.

NAF News

News

2024 NAF Research Grants

NAF Awarded a Record Number of Projects in 2024 18 Studies Funded Totaling $845k Funded! We had our most competitive year ever for Ataxia research Read More…

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Impact Story

The Ruehl Family

When Charlie Ruehl was in high school, his mom Susan recalls he would always miss the same step at the bottom of their staircase. She Read More…

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MEDIA CONTACT
Stephanie Lucas
Communications Director
stephanie@ataxia.org | 763-231-2744

To request a press release to be issued by NAF, submit the information using our Press Release Request Form.

Press Kits

In the News

WPBF - Local ABC Affiliate, March 2024

Check out the on-air interview with Lisa Cole, NAF Support Group Leader and event organizer, and Kyle Billadeau, VP of Operations and Community Services.

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Sports Illustrated, December 2024

While most NIL partnerships are centered around talent promoting a brand or consumer product, four student-athletes across the country have instead used their platforms to increase awareness and help raise funds for a rare disease.

The National Ataxia Foundation partnered this semester with Mya Hooten (University of Minnesota Gymnastics, Brandon Garrison (Oklahoma State Basketball), Elise Evans (Stanford Soccer) and J.D. Urso (University of Miami Baseball) to support research and fundraising efforts for the rare neurodegenerative disease.

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The Knight Crier, November 2023

Friends remember Mike Andersen as quick to help — and quicker to dodge the credit. The U.S. Army veteran and owner of north Orange County-based HVAC company Veteran Air died on Oct. 3 at age 40…Nonprofit founder Cindy Furton De Mint recalled Andersen being proactive when it came to getting involved. She started Brothers on a Quest to raise awareness for ataxia, a condition three out of her sons have. She recalled how Andersen not only showed up to her foundation’s events, but was always a platinum sponsor of the National Ataxia Foundation’s annual walk.

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Star Tribune, September 2023

Friends remember Mike Andersen as quick to help — and quicker to dodge the credit. The U.S. Army veteran and owner of north Orange County-based HVAC company Veteran Air died on Oct. 3 at age 40…Nonprofit founder Cindy Furton De Mint recalled Andersen being proactive when it came to getting involved. She started Brothers on a Quest to raise awareness for ataxia, a condition three out of her sons have. She recalled how Andersen not only showed up to her foundation’s events, but was always a platinum sponsor of the National Ataxia Foundation’s annual walk.

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Star Tribune, September 2023

Defensive tackle Harrison Phillips has a charitable reputation, and he’s cranked that up a notch heading into the 2023 season…Another eight tickets went to the National Ataxia Foundation, a Twin Cities nonprofit assisting people with the namesake disease that affects the nervous system. 

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CBS 58 News, August 2023

The 2nd annual National Ataxia Foundation Bowl for a Cure is scheduled to take place in Richfield aims to deliver a fun-filled bowling experience for participants of all ages on Saturday, Sept. 23. The event aims to raise awareness and support for those affected by ataxia, a rare neurological disorder affecting coordination, speech and balance.

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Healthcare at Home: The Rowan Technology Report, April 2023

The 66th annual convention of the National Ataxia Foundation was held in Las Vegas last week. If you are a nurse, therapist, or physician reacting to that news with, “What is Ataxia? I’ve never heard of it,” the conference theme is addressed to you: “No one should have to teach their doctor about their disease!” The theme was repeated frequently during the three-day conference by everyone from nationally known neurologists from UCLA and Johns Hopkins to TV personality Bill Nye, who has family members stricken with the genetic disorder but has himself been spared.

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News Medical, October 2022

In this interview, we speak to Dr. Lauren Moore from the National Ataxia Foundation about ataxia and how the NFL is helping to raise awareness for this condition.

Star Tribune, October 2022

Ataxia, an obscure neurological term with deep roots in Minnesota, was thrust into the NFL’s concussion protocol lexicon last week and has impacted this week’s Vikings game in Miami.

USA Today, October 2022

The National Ataxia Foundation says ataxia symptoms are similar to being drunk, in that people have problems using their extremities,…

Enstarz, October 2022

Weeks after the dreaded accident happened, the NFL and NFLPA found out that “the outcome in this case is not what was intended when the Protocols were drafted.” The mentioned concussion protocols will keep the players from playing if they are experiencing ataxia. The condition, according to the National Ataxia Foundation, is a rare neurological disease that affects a person’s mobility due to damage to the cerebellum. Poor muscle control leads to a lack of coordination, as well.

Member Stories

Anna Santoro

My name is Anna Santoro and I am the stay-at-home mom of three boys and the primary caretaker to my mom, who has Ataxia type two. My objective is to Read More…

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Korkut Alp

Note: Korkut submitted his story in Turkish. Google Translate was used to translate his submission. The translation may not be accurate. We will include his submission in Turkish, followed by Read More…

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David Beavan

When I was a teenager I remember my father used to weave a little when he walked. We played a lot of golf, and he often toppled over when he Read More…

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Jerry’s Story

I’m actually reluctant to tell my story as it’s far from positive. Currently my tremors are more disabling than my balance issues, which are dreadful. I suppose I noticed things Read More…

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Parna Mukherjee

I was born in a family with SCA2 back in India. My father had the symptoms of Ataxia as well as all his five siblings. At that time, it was Read More…

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Jency W

I got diagnosed at 40 after always walking awkward and 2 years of being unsteady. Now I’m going to start physical therapy and apply for SSDI. It’s sad for me, Read More…

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MEDIA INQUIRIES – CONTACT
Stephanie Lucas
Communications Director
stephanie@ataxia.org | 763-231-2744

To request a press release to be issued by NAF, submit the information using our Press Release Request Form.

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