ACE applications are now open through October 15. Join a national network committed to providing high-quality, comprehensive Ataxia care. Apply Now!
ACE applications are now open through October 15. Join a national network committed to providing high-quality, comprehensive Ataxia care. Apply Now!
NAF’s programs that support your work to accelerate treatment development.
NAF works with the most knowledgeable, accomplished Ataxia researchers in the world. We are committed to providing the resources needed to pursue a cure and better quality of life for people with Ataxia.
The National Ataxia Foundation (NAF) is committed to funding cutting-edge basic, translational, and clinical research relevant to hereditary and sporadic Ataxia. For decades, NAF has served as a catalytic supporter of ataxia research by investing in high-impact, investigator-driven work across the research and clinical spectrum.
NAF invites research applications from domestic and international non-profit and for-profit institutions. We accept applications across career stages, from graduate students through senior researchers and established clinicians. Researchers based outside the United States are eligible to apply for most research grants from NAF. Specific eligibility requirements will be updated and published each application cycle.
Funding amounts, award mechanisms, program policies, and application and award processes may be adjusted periodically to reflect NAF’s strategic research and clinical funding priorities, existing grant commitments, and overall resource availability. These adjustments ensure that the Foundation can steward funds responsibly while investing in initiatives that advance our mission to accelerate treatments and improve the lives of those affected by Ataxia.
Applications are selected for funding annually following a multistage, competitive peer-review process. All applicants must first submit a Letter of Intent (LOI). High-scoring applicants will be invited to submit full grant applications.
NAF funds research through 7 distinct award mechanisms:
Mechanism-specific descriptions, including funding priorities, eligibility details, funding information, and important deadlines, are described below and on ProposalCentral.
All NAF research grant funding mechanisms follow the same application timeline.
| Grant Submissions | Open Date | Deadline | Decision Notification |
| Letter of Intent | September 14, 2026 | November 18, 2026 | January 2027 |
| Full Proposal | Upon LOI approval | March 1, 2027 | June 2027 |
Applicants are responsible for reviewing the eligibility requirements, application instructions, policies, and deadlines for the selected funding mechanism before submitting an application. Submission of an application constitutes acknowledgment of and agreement to comply with NAF’s grants program policies and requirements.
The Michael Lundquist Grant to Advance MSA-C Research is a $50,000, 1-year, merit-based, nonrenewable grant awarded annually to independent researchers for outstanding proposals that aim to make meaningful advancements in the treatment and care of individuals affected by multiple system atrophy, cerebellar subtype (MSA-C). While proposals may include aspects relevant to other forms of ataxia, the primary focus must be on preclinical, translational, or clinical research directly related to MSA-C.
This grant honors the legacy of Michael Lundquist and reflects NAF’s commitment to advancing research that improves outcomes for people living with MSA-C.
November 18, 2026 by 11:59 PM Eastern Time
To utilize the proposalCENTRAL online portal to submit letters of intent and applications, a user account needs to be created. Use this weblink https://proposalcentral.com to create an account. Creating an account can be done any time prior to submitting a Letter of Intent (LOI) to apply.
March 1, 2027 by 11:59 PM Eastern Time
Application is not available until LOI has been approved.
NAF retains the right to unilaterally cancel awards for nonperformance or noncompliance.
All NAF awards are subject to NAF Annual Research Grant Policies.
Eligibility & Guidelines
1. Applicants must have completed their post-doctoral training and have a full-time appointment as a faculty member, clinical fellow, or senior scientist at a research institution.
2. Non-U.S. citizens are eligible to apply for this NAF grant award.
3. Grant applications are accepted from U.S. and international institutions.
4. Individuals are ineligible if they were the lead PI on an awarded NAF grant within the past two fiscal years. Previous Michael Lundquist Grant to Advance MSA-C Research awardees are ineligible.
5. Applicants and their institutions must be in good standing with any previous NAF awards, as defined by the NAF Research Grants Policy.
6. Only one application may be submitted per applicant (as lead PI) per year; applicants should carefully select the program that best matches their career stage and research proposal.
The NAF Research Seed Money Grant provides support for new and innovative studies that advance understanding of the cause, pathogenesis, or treatment of hereditary, sporadic, and acquired ataxias. These $50,000, 1-year, merit-based, nonrenewable grants serve as seed funding to assist investigators during the early or pilot phases of research, or as supplemental funding for ongoing innovative projects demonstrating a critical need. It is expected that funded projects will generate preliminary data to support applications for larger grants from other funding sources.
November 18, 2026 by 11:59 PM Eastern Time
To utilize the proposalCENTRAL online portal to submit letters of intent and applications, a user account needs to be created. Use this weblink https://proposalcentral.com to create an account. Creating an account can be done any time prior to submitting a Letter of Intent (LOI) to apply.
March 1, 2027 by 11:59 PM Eastern Time
Application is not available until LOI has been approved.
NAF retains the right to unilaterally cancel awards for nonperformance or noncompliance.
In rare circumstances, Seed Money applications may be eligible for increased funding limits. All such requests must be approved by NAF CSO Dr. Lauren Moore ahead of submitting an LOI.
All NAF awards are subject to NAF Annual Research Grant Policies.
Eligibility & Guidelines
The Pioneer SCA3 Translational Research Award is annually granted to independent researchers to support outstanding research proposals that aim to make significant advancements in the development of treatments and/or improvements to patient care for Spinocerebellar Ataxia Type 3 (SCA3). This 1-year, merit-based, nonrenewable grant provides $100,000 in direct research funding. Proposals must have a predominant focus on SCA3 preclinical, translational, or clinical research.
November 18, 2026 by 11:59 PM Eastern Time
To utilize the proposalCENTRAL online portal to submit letters of intent and applications, a user account needs to be created. Use this weblink https://proposalcentral.com to create an account. Creating an account can be done any time prior to submitting a Letter of Intent (LOI) to apply.
March 1, 2027 by 11:59 PM Eastern Time
Application is not available until LOI has been approved.
This 1-year award, beginning September 1, 2027 to August 31, 2028, provides $100,000 in research funding that can be used to support direct research expenses.
No more than 50% of the grant can be used to support personnel costs.
Indirect costs and cost sharing are prohibited from being applied to NAF grants.
No-cost extensions (NCE) will be considered for extenuating circumstances and are subject to approval by NAF.
NAF retains the right to unilaterally cancel any awards for non-compliance or non-performance.
All NAF awards are subject to NAF Annual Research Grant Policies.
Eligibility & Guidelines
1. Applicants must have completed their post-doctoral training and have a full-time appointment as a senior scientist or clinician-researcher at a research institution.
2. Non-U.S. citizens are eligible to apply for a NAF grant award.
3. Grant applications are accepted from U.S. and international institutions.
4. Individuals are ineligible if they were the lead PI on an awarded NAF grant within the past two fiscal years. Past Pioneer SCA3 awardees are also ineligible to apply.
5. Applicants and their institutions must be in good standing with any previous NAF awards, as defined by the NAF Research Grants Policy.
6. Only one application may be submitted per applicant (as lead PI) per year; applicants should carefully select the program that best matches their career stage and research proposal.
The NAF Early Career Investigator Award is a $50,000. 1-year, merit-based, nonrenewable grant designed to support outstanding early-stage scientists who have completed their postdoctoral training within the past 6 years and hold a junior faculty or clinical fellow appointment. This award aims to foster the development of independent research careers by providing seed funding for innovative, high-impact studies in the field of ataxia. Proposals are welcome across the full spectrum of basic, translational, and clinical research, but must have a clear and significant focus on advancing our understanding of the causes, pathogenesis, or treatment of hereditary, sporadic, or acquired ataxias. It is expected that the projects supported by this program will catalyze significant progress toward meaningful scientific insights and therapeutic advances in ataxia.
November 18, 2026 by 11:59 PM Eastern Time
To utilize the proposalCENTRAL online portal to submit letters of intent and applications, a user account needs to be created. Use this weblink https://proposalcentral.com to create an account. Creating an account can be done any time prior to submitting a Letter of Intent (LOI) to apply.
March 1, 2027 by 11:59 PM Eastern Time
Application is not available until LOI has been approved.
This 1-year fellowship, beginning September 1, 2027 to August 31, 2028, provides $50,000 in research funding that can be used to support direct research expenses.
No more than 50% of the grant can be used to support personnel costs.
Indirect costs and cost sharing are prohibited from being applied to NAF grants.
No-cost extensions (NCE) will be considered for extenuating circumstances and are subject to approval by NAF.
NAF retains the right to unilaterally cancel any awards for non-compliance or non-performance.
All NAF awards are subject to NAF Annual Research Grant Policies.
1. Applicants must have completed a PhD, equivalent research degree program (e.g., PharmD, PsyD, ScD), formally combined MD/PhD program, or other combined professional/clinical and research doctoral degree (e.g., DDS/PhD).
2. Applicants must have completed their post-doctoral training within the past six (6) years and have an appointment as a junior faculty member or clinical fellow by Grant Application deadline. Individuals at the Associate Professor level are not eligible. Clinician scientists must have finished their residency no more than six (6) years prior to applying.
3. Non-U.S. citizens are eligible to apply for this NAF grant award. Grant applications are accepted from U.S. and international institutions.
4. Individuals are ineligible if they were awarded a NAF grant within the past two fiscal years. Past NAF Young Investigator Award/Early Career Investigator awardees are also ineligible to apply.
5. Applicants and their institutions must be in good standing with any previous NAF awards, as defined by the NAF Research Grants Policy.
6. Only one application may be submitted per applicant (as lead PI) per year; applicants should carefully select the program that best matches their career stage and research proposal.
The NAF Post-doctoral Fellowship Award is a $40,000, 1-year, merit-based, nonrenewable grant that provides support for early-career researchers conducting innovative studies that can expand our understanding of the cause, pathogenesis, or treatment of hereditary, sporadic, and acquired ataxias. This fellowship is intended to foster the development of promising scientists by supporting mentored research experiences that build toward independent research careers. Funded projects are expected to generate high-quality preliminary data, strengthen research skills, and position fellows for future grant applications and academic advancement.
November 18, 2026 by 11:59 PM Eastern Time
To utilize the proposalCENTRAL online portal to submit letters of intent and applications, a user account needs to be created. Use this weblink https://proposalcentral.com to create an account. Creating an account can be done any time prior to submitting a Letter of Intent (LOI) to apply.
March 1, 2027 by 11:59 PM Eastern Time
Application is not available until LOI has been approved.
This 1-year fellowship, beginning September 1, 2027 to August 31, 2028, provides $40,000 in research funding that can be used as used as salary support or for direct research expenses.
Indirect costs and cost sharing are prohibited from being applied to NAF grants.
No-cost extensions (NCE) will be considered for extenuating circumstances and are subject to approval by NAF.
NAF retains the right to unilaterally cancel any awards for non-compliance or non-performance.
All NAF awards are subject to NAF Annual Research Grant Policies.
Eligible Applicants
1. Applicants must have completed a PhD, equivalent research degree program (e.g., PharmD, PsyD, ScD), formally combined MD/PhD program, or other combined professional/clinical and research doctoral degree (e.g., DDS/PhD).
2. Applicants must have completed at least one year of post-doctoral training, but not more than four years of post-doctoral training at the time of application and should have shown a commitment to research in the field of ataxia.
3. Non-U.S. citizens are eligible to apply for this NAF grant award. Grant applications are accepted from U.S. and international institutions.
4. Individuals are ineligible if they were awarded any NAF grant within the past two fiscal years. Past NAF Post-doctoral Fellowship awardees are also ineligible to apply.
5. Applicants and their institutions must be in good standing with any previous NAF awards, as defined by the NAF Research Grants Policy.
6. Only one application may be submitted per applicant (as lead PI) per year; applicants should carefully select the program that best matches their career stage and research proposal.
This URM Pre-doctoral research fellowship is a competitive, non-renewable, merit-based award intended to enhance research and/or clinical training of promising students who are matriculated in pre-doctoral or clinical health professional degree training programs and who intend careers as scientists, physician-scientists or other clinician-scientists aimed at continuing ataxia basic science, translational science or clinical research towards the goal of serving individuals with ataxia.
This award provides partial support ($50,000 across 2 years; $25,000 annually) for study and research and may be used to support pre-doctoral students who are pursuing research with an ataxia-relevant theme. Proposals across the spectrum of basic, translational, and clinical research are welcome.
November 18, 2026 by 11:59 PM Eastern Time
To utilize the proposalCENTRAL online portal to submit letters of intent and applications, a user account needs to be created. Use this weblink https://proposalcentral.com to create an account. Creating an account can be done any time prior to submitting a Letter of Intent (LOI) to apply.
March 1, 2027 by 11:59 PM Eastern Time
Application is not available until LOI has been approved.
This award provides up to two years of support, beginning September 1, 2027 to August 31, 2029, totaling $50,000 ($25,000 per year).
Funding can be used to support direct research costs associated with the funded proposal and can be used to support the student’s annual stipend.
Indirect costs and cost sharing are prohibited from being applied to NAF grants.
A progress report is required 11 months after the start of the grant funding term. The second year of funding is contingent on satisfactory demonstration of progress by the awardee.
NAF retains the right to unilaterally cancel any awards for non-compliance or non-performance.
All NAF awards are subject to NAF Annual Research Grant Policies.
Eligible Applicants:
At the time of application, the applicant must:
1. Have a baccalaureate degree or equivalent and be currently enrolled in a PhD or equivalent research degree program (e.g., PharmD, PsyD, ScD), a formally combined MD/PhD program, or other combined professional/clinical and research doctoral (e.g., DDS/PhD) in the United States.
2. Have successfully completed their qualifying exams, or equivalent, in their respective programs by the final proposal due date.
3. Be a U.S. citizen, non-citizen U.S. national, U.S. permanent residents, individual granted deferred action status under the Deferred Action for Childhood Arrivals Program, or individual granted Temporary Protected Status.
4. Identify as one or more of the following:
i. An individual from underrepresented racial and ethnic groups in the U.S., including but not limited to Black or African American, Hispanic or Latino, American Indian or Alaska Native, Native Hawaiian and other Pacific Islanders. Individuals from racial or ethnic groups not listed here that can be demonstrated convincingly to be underrepresented by the grantee institution are also encouraged to apply.
ii. An individual who identifies as LGBTQIA+.
iii. Individuals with a disability, who are defined as those with a physical or mental impairment that substantially limits one or more major life activities, as described in the Americans with Disabilities Act of 1990.
5. Have identified a research project and sponsor, show evidence of high academic performance in the sciences, and a commitment to a career as an independent research scientist, or as an independent physician-scientist or other clinician-scientist (dual-degree training) with a specialized interest in ataxias. The primary sponsor should be an active investigator and be committed both to the candidate’s research training and to direct supervision of his/her/their research.
6. Past NAF Graduate Student Fellowship or Pre-doctoral Fellowship to Promote Diversity in Ataxia Research awardees are ineligible to apply.
7. Only one application may be submitted per applicant (as lead PI) per year; applicants should carefully select the program that best matches their eligibility, career stage, and research proposal.
The Graduate Research Fellowship is a competitive, non-renewable, merit-based award intended to encourage pre-doctoral students to pursue research and a career in the field of ataxia. This award provides partial support ($25,000, 1-year) for study and research and may be used to support pre-doctoral students who are pursing research with an ataxia-relevant theme. Applications for any type of ataxia are accepted for this award. Proposals across the spectrum of basic, translational, and clinical research are welcome.
November 18, 2026 by 11:59 PM Eastern Time
To utilize the proposalCENTRAL online portal to submit letters of intent and applications, a user account needs to be created. Use this weblink https://proposalcentral.com to create an account. Creating an account can be done any time prior to submitting a Letter of Intent (LOI) to apply.
March 1, 2027 by 11:59 PM Eastern Time
Application is not available until LOI has been approved.
This award provides one year of support, beginning September 1, 2027 to August 31, 2028, totaling $25,000.
Funding can be used to support direct research costs associated with the funded proposal and can be used to support the student’s annual stipend.
Indirect costs and cost sharing are prohibited from being applied to NAF grants.
NAF retains the right to unilaterally cancel any awards for non-compliance or non-performance.
All NAF awards are subject to NAF Annual Research Grant Policies.
Eligible Applicants:
At the time of application, the applicant must:
1. Have a baccalaureate degree or equivalent and be currently enrolled in a PhD or equivalent research degree program (e.g., PharmD, PsyD, ScD), a formally combined MD/PhD program, or other combined professional/clinical and research doctoral (e.g., DDS/PhD)
2. Have successfully completed their qualifying exams or equivalent in their respective programs by the final proposal due date.
3. Non-U.S. citizens are eligible to apply for this NAF grant award.
4. Grant applications for this award are accepted from U.S. and international institutions.
5. Past Graduate Research Fellowship or Pre-doctoral Fellowship to Promote Diversity in Ataxia Research awardees are ineligible to apply.
5. Only one application may be submitted per applicant (as lead PI) per year; applicants should carefully select the program that best matches their eligibility, career stage, and research proposal.
Additional Eligibility Guidelines
Eligibility requirements vary by funding mechanism. NAF accepts applications from both U.S. and international researchers and institutions; however, certain funding opportunities may have additional citizenship, geographic, institutional, or other eligibility requirements.
NAF does not permit duplicate funding. A Principal Investigator (PI) may not request or accept NAF funding for a research project, or any portion of a project, that is already supported for the same purpose by NAF or another public or private funding source.
Applicants are responsible for ensuring that any existing or pending funding is compatible with the NAF award period. NAF awards must begin within the published award period and may not be deferred to accommodate overlapping funding support.
If a proposal receives overlapping funding from another organization while it is under review by NAF or after an NAF award has been made, the PI must promptly notify NAF to arrange withdrawal of their application or award.
Applicants are responsible for carefully reviewing all eligibility criteria and program policies before applying. Applications that do not meet eligibility requirements may be administratively rejected without review.
To be considered for funding, applicants and their institutions must be in good standing with NAF and in compliance with all applicable grants program policies, reporting requirements, and existing award terms and conditions.
NAF utilizes ProposalCentral to manage the application, review, award, and reporting processes.
Applicants are responsible for:
Applicants are responsible for allowing sufficient time to complete and submit their Letter of Intent (LOI) and, if invited, full application before the published deadline.
NAF cannot accept:
Applicants are responsible for ensuring that all submitted materials accurately represent their own scientific work, analysis, conclusions, and intellectual contributions.
Applicants remain fully responsible for the accuracy, originality, and completeness of all application materials, regardless of any tools used during preparation.
All references and source materials must be appropriately cited.
1. Create a proposalCENTRAL account.
2. Submit a Letter of Intent by the deadline
3. If your LOI scores highly, you will be invited to submit a full application
Does my proposal need to focus on ataxia?
Yes. All applications must demonstrate a clear and significant focus on hereditary, sporadic, or acquired ataxia. Some funding mechanisms require a direct focus on a specific type of ataxia.
Applications with only indirect, incidental, or tangential relevance to ataxia are not responsive to program priorities and may not be advanced for review.
Under which grant mechanism should I apply?
| If you are a: | Please consider and review guidelines for: |
|---|---|
| PhD Student | Predoctoral Fellowship Programs |
| Postdoctoral Researcher | Postdoctoral Fellowship Award |
| Early Career Researcher | Early Career Investigator Award |
| Established Investigator | Research Seed Money Grant |
| Senior SCA3 Researcher | Pioneer SCA3 Translational Award |
| Senior MSA-C Researcher | Michael Lundquist MSA-C Research Grant |
Eligibility requirements and funding priorities vary across award mechanisms. Depending on career stage, institutional affiliation, citizenship, NAF award history, research focus, and other funding support, some researchers may not be eligible for NAF funding opportunities in a given cycle.
What should be included in the Letter of Intent (LOI)?
All LOIs must be submitted through ProposalCentral by the stated deadline.
LOI contents include brief need and impact statements, a researcher biosketch, and a one-page Specific Aims document. Please review LOI instructions and formatting guidance linked on this webpage and on ProposalCentral.
May I request NAF funding for a project that is already funded, in whole or in part, by another organization? What happens if my proposal is funded elsewhere?
No. NAF does not permit duplicate funding for the same research activities. A PI may not request or accept NAF funding for a research project, or any portion of a project, that is already supported for the same purpose by NAF or another public or private funding source.
If a proposal receives overlapping funding from another organization while it is under review by NAF or after an NAF award has been made, the PI must promptly notify NAF to arrange withdrawal of their application or award.
May I submit more than one LOI or apply to multiple programs in the same application cycle?
No. Researchers may only submit one LOI per cycle.
May I resubmit a project that was not selected for funding in a previous cycle?
Yes. Applicants whose proposals were not selected for funding in a previous cycle are welcome to resubmit in a future funding round. When possible, resubmitted applications should reflect meaningful improvements and address prior reviewer feedback.
Each application is evaluated independently within the current funding cycle and is subject to NAF’s competitive, multistage peer review process. A prior invitation to submit a full proposal or advancement in a previous review cycle does not guarantee the same outcome in a future competition.
May multiple investigators from the same institution apply?
Yes. However, each application must be distinct and may not include overlapping scientific aims or duplicated budget requests.
Am I eligible if my institution is located outside the United States?
Yes, with one exception: applicants applying under the Predoctoral Fellowship to Promote Diversity in Ataxia Research mechanism must be enrolled at institutions in the United States.
I have previously been awarded funding from NAF. May I apply for another grant type in this new funding cycle?
It depends.
Researchers who have served as the lead PI on an NAF-funded award within the past two fiscal years are not eligible to apply for additional funding.
In addition, most NAF funding mechanisms do not permit researchers to receive more than one award through the same mechanism. The Seed Money Research Grant is the only exception to this rule; previous Seed Money awardees may reapply, subject to all other eligibility requirements.
Previous NAF awardees may be eligible for different funding mechanisms later in their careers, provided all eligibility requirements are met.
Examples:
Researchers with an active award under a No-Cost Extension are not eligible to apply for an additional award.
How are applications evaluated and selected for funding?
All applications undergo competitive peer review by scientific experts at both the LOI and full proposal stages. Applications are evaluated based on factors such as scientific merit, significance, feasibility, investigator qualifications, and alignment with program priorities, eligibility guidelines, and policies.
Final funding decisions are informed by peer review results, portfolio balance considerations, strategic funding priorities, and available funding. All funding recommendations from NAF’s Scientific Review Committee are subject to approval by NAF’s Board of Directors.
If my proposal is funded, may I delay my project start date if I have other funding that hasn’t ended?
No. NAF awards must begin at the start of the published award period. Award start dates may not be deferred to accommodate existing stipend support or funding related to the same research.
Are there any restrictions on how my awarded funds may be used?
Specific restrictions on use of funds vary by funding mechanism. Applicants should review NAF’s Grants Program Policy Manual and the instructions associated with their selected funding opportunity before applying.
Common Budget Questions:
Are indirect/F&A costs allowed?
No.
Can awards support stipends or salary?
Yes, consistent with effort and subject to mechanism-specific limitations.
Are fringe benefits allowed?
No.
Is tuition support allowed?
No.
Can I request travel support?
Yes, subject to program-specific limitations.
Can I request publication support?
Yes, subject to program-specific limitations.
Can I rebudget after award activation?
Only with prior NAF approval.
May award funds be used for expenses not included in the approved budget?
No.
All proposed budgets must comply with NAF’s allowable and unallowable cost guidelines. Applications containing noncompliant budgets may be administratively rejected.
After the award period ends, all final financial reports will be reviewed against approved budgets and allowable cost guidelines. Institutions are required to repay NAF if any award funds were directed to unallowable costs.
What reporting requirements does NAF have for awardees?
NAF awardees must complete required pre-award, mid-project, post-project, and longitudinal reporting as detailed in award agreements and as assigned through ProposalCentral.
Timely completion of required deliverables supports award initiation, project monitoring, and assessment of funded research outcomes and impact.
Award payments and researcher and institutional good standing are contingent upon compliance with reporting requirements and all other applicable award terms, conditions, and grants program policies.
Want to check out research that we have funded in the past? Click a link from past years to a see a list of researchers and information about their studies.
If you are considering requesting a No-Cost Extension for your funded award, please review the below and reach out to Aimee Alcott at aimee@ataxia.org for more information and next steps.
We know that patient recruitment for research is important to the success of your work. NAF is here to help.
We maintain an active list of Ataxia research opportunities for patients on our website. We ensure that studies listed on our site have undergone approval by esteemed Institutional Review Boards (IRBs), Research Ethics Boards (REBs), and/or Research Ethics Committees (RECs). In addition, NAF offers recruitment assistance via email and social media, including targeted recruitment efforts by location and Ataxia type. We can also work with you to develop and deliver an informational webinar on your research study.
If you would like to have your study listed on our website or request help with recruitment, download the Research Recruitment Application or email research@ataxia.org with your question.
NAF hosts an annual patient conference each year which is attended by those affected by Ataxia and their caregivers/family members. Attendance is often over 500 individuals. Presentations by leading Ataxia researchers are given during the 2-day conference. Ataxia researchers are invited to participate in the exhibit area of the meeting to recruit patients for IRB approved research studies or share their research findings.
If you are interested in recruiting patients at NAF’s Annual Ataxia Conference, please contact us at (763) 553-0020 or email research@ataxia.org.
NAF partners with Sanford Research Coordination of Rare Dieseases (CoRDS) to maintain a registry of Ataxia patients. Access the registry to find potential participants for your research studies.
NAF and the University of Florida’s Center for NeuroGenetics are working together to maintain a repository of brain and spinal cord tissue from Spinocerebellar Ataxia (SCA) donors. This tissue is available to SCA researchers to help advance our understanding of these diseases. To learn what is available and how to request tissue, download our instruction sheet.
The Clinical Research Consortium for the Study of Cerebellar Ataxia (CRC-SCA) is on a mission to better understand the factors that determine disease progression among Cerebellar Ataxia with the goal of improving the understanding of disease process, current treatments, and development of disease-modifying therapies. CRC-SCA collects longitudinal data and biospecimens for research participants who have a confirmed diagnosis of SCA 1, 2, 3, 6, 7, 8 or 10. Ataxia researchers can request data and biosamples.
ICAR is a collaborative research environment that promotes exchanges of ideas and knowledge to improve understanding of Ataxias and accelerate treatment development initiatives. This bi-annual conference is hosted by NAF, Ataxia UK, FARA and AGI. It is attended by hundreds of delegates from countries around the world. The event offers oral presentations, poster presentations and networking opportunities.
The Ataxia Global Initiative (AGI) is a worldwide research platform that has the goal to facilitate the clinical development of therapies for ataxias. AGI´s activities are based on the principles of openness, transparency, flexibility and fairness.
The Centralized Ataxia Genomics Core (CAGC) is a freely accessible resource developed with support from the National Ataxia Foundation and hosted within the Clinical Neurogenomics Research Center based at the University of California, Los Angeles. This application is designed to facilitate connections within the ataxia research community related to shared interest in the same gene(s) and/or genetic variant(s). The goal of the CAGC is to improve collaboration to help solve undiagnosed Ataxia cases through a centralized ataxia-specific data repository of genomic data collected from both research and/or clinical sources.
