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September 25th

International Ataxia Awareness Day


International Ataxia Awareness Day (IAAD) is on September 25th of each year. It is a coordinated effort from individuals and Ataxia organizations around the world to help shed light on this rare disease. NAF is committed to leading the way on this outreach effort – but we need your help! We encourage individuals and disease organizations to join us by planning events and/or awareness campaigns for IAAD. 


Organize or Join an IAAD Event

Planning an event or activity is a great way to raise awareness and get others involved in taking action. Organizing your awareness activity on or around September 25, 2020 will help build strength of the awareness effort and draw media attention. Activities can be small or large, social or educational, informational or fundraiser – the possibilities are endless! 

Organize an Event
Get started by promoting your IAAD event or activity. Submit the event details using the form at the bottom of this page. We’ll add it to our events calendar. Tell your friends, family, and local news outlets about your event. Contact us if you have any questions or need assistance. 

Find an Event
Check out our events calendar to find an IAAD event near you. Many Walk N’ Roll to Cure Ataxia events are held in honor of IAAD. Join us at an event or walk in your area! Local support groups are also a great resource for meetings and events. Find a support group leader in your area and reach out!

Use the IAAD Campaign Kit

We have printable materials that you can use free of charge. The IAAD Campaign Kit provides facts about Ataxia and suggestions for planning your own awareness campaign. It is provided as a tool to help you generate ideas. Want to get even more involved? IAAD is a great time to start up Ataxia advocacy initiatives. Get a proclamation for IAAD in your city or state. Instructions that explain the process are included in the downloads below. Visit our advocacy page for more info about ongoing initiatives.

Download IAAD Materials:

Post on Social Media

An easy way to help with Ataxia awareness is using social media. You can post a personal story or information about Ataxia to help with the awareness efforts. NAF’s IAAD campaign kit offers social media post ideas and images. Follow NAF on Facebook and Twitter to share our IAAD messages. Use #IAAD19 for your social media posts to help International Ataxia Awareness Day trend on social media!

Follow Us:

Here are some graphics you can download to use on social media:



In 2019, we had a “United Against Ataxia” campaign in recognition of IAAD. We fight Ataxia every day – in our own ways. Some by learning to live with the disease, some by teaching others about Ataxia, some by raising money for research, and others by working relentlessly on the science to understand and treat the disease. Working together, we believe the fight will lead to a cure. We are #UnitedAgainstAtaxia

Join us in raising awareness and encouraging others to to get involved! Become a member of NAF to make sure that you get the latest information about our IAAD efforts – it’s free.

Send Us Your #UnitedAgainstAtaxia Pics

Show us the people in your life that are #UnitedAgainstAtaxia. Send us a picture of your group holding hands or locking arms. You could get together with family, friends, coworkers, or your medical care team. Be creative! We’ll use the photos that you submit for our IAAD social media campaign. Send your pictures to or post them to NAF’s social media pages.*

*Submitting a photo gives NAF the right to use your photo on social media and other marketing materials.


Submit Event Information

Notify us of your IAAD event or fundraiser so that we can add it to the NAF events calendar and include it in our IAAD statistics report.
All fields marked with an * are required.

Upcoming Events

  1. VIRTUAL Northeast Ohio Ataxia Support Group Meeting

    August 4 @ 6:00 pm - 7:00 pm
  2. VIRTUAL Global Ataxia Support Group Meeting – Time slot #1

    August 6 @ 3:00 pm - 5:00 pm
  3. VIRTUAL Global Ataxia Support Group Meeting – Time slot #2

    August 6 @ 6:00 pm - 8:00 pm
  4. VIRTUAL Massachusetts Walk & Roll Planning Meeting

    August 7 @ 10:00 am - 11:00 am
  5. VIRTUAL African Americans with Ataxia Support Group Meeting

    August 7 @ 12:30 pm - 2:00 pm

Anyone can get involved in making a difference for Ataxia.

Make an impact today by donating to our event.

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