EASTERN TIME Topic: Clinical trials and questions Speaker: Sam Kirton, NAF Executive Board of Directors President Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09   For more information, contact Susan Stiles at sstiles12@gmail.com

EASTERN TIME Topic: Clinical Trials and questions Speaker: Sam Kirton, NAF Executive Board of Directors President Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09   For more information, contact Susan Stiles at sstiles12@gmail.com

We welcome anyone to these meetings, regardless of location.   Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia   For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343

Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.

Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.

Mindfulness is identified as a tool for so many with chronic pain, but sitting still and meditating doesn't work for most. I would like to demonstrate and guide participants through more active ways to achieve mindfulness with drawing, and at the same time having an emphasis on being self compassionate through the process. This class

We meet at 10:30-12:30 Central Time on the 2nd Saturday of every month. Zoom link: https://us02web.zoom.us/j/9247613557   For meeting access information or to be added to the mailing list for this group please contact: Shannon Dunphy Lazo at 202-306-2738 or shan_d@hotmail.com  For more information, see our Facebook Group!

For meeting access information contact: David Henry Jr 817-739-2886 (contact by email preferred) spinnerjr884@gmail.com Join our Facebook Group!

PACIFIC TIME Location: Fort Steilacoom Park - 8714 87th Ave SW, Lakewood, WA 98498 Picnic will be next to giant ballfields and grassy area Hot dogs with fixins and tableware will be provided - bring your own picnic OR bring a side to share! Please RSVP with number of attendees to Sherry McLaughlin   For

EASTERN TIME   Join Zoom Meeting https://us02web.zoom.us/j/84872580415?pwd=R09hRnNpVVNPeHhUa0tPYXZXVnJYQT09 Meeting ID: 848 7258 0415 Passcode: 429848   For more information contact Lisa Cole at  772-370-3041 |  lisacoleataxia@gmail.com Join our Facebook Group!

Join Zoom Meeting https://us02web.zoom.us/j/6185650820?pwd=RXlPMmpCc0tXTmxydC9RcUF3RUxOZz09 Meeting ID: 618 565 0820 Passcode: 8nsFHF   For more information join our mailing list by contacting Stephanie Wilkins at Phone #: 816-623-3318 | Email: sfwilkins@yahoo.com Join our Facebook Group: https://www.facebook.com/groups/208618772974351/

EASTERN TIME Pin Chaser Bowling 2:30pm to 5:30pm 4847 N Armenia Ave, Tampa, FL 33603.   The admission fees for adults are $9.99 for a single game or $17.99 for a two-hour session and kids are one dollar less. We guarantee an enjoyable time, so come and be a part of the fun. Please let

PACIFIC TIME Dr. Oguh will be our next guest speaker and will focus on general ataxia issues. Link to join: https://bit.ly/3sYlilo   For access information contact Howard Silverman at Phone #: 702-290-6724 | Email: Silverman3@cox.net or Kristy Anderson at Email: lasvegasataxia@gmail.com or Don Fey at Email: feydw@aol.com Join our Facebook Group: https://www.facebook.com/groups/2090650814550409/?hc_location=group

EASTERN TIME Join Zoom Meetinghttps://us02web.zoom.us/j/81955190420?pwd=dGpGM1FkaXNpSzNXTG4weHA3SXVNUT09   For more information or to be added to the mailing list for this group please contact: William Vetter at (513) 310-7530 or wjuniorvet@gmail.com Join our Facebook Group: https://www.facebook.com/CincinnatiAtaxiaSupportGroup/

EASTERN TIME Join Zoom Meeting https://us06web.zoom.us/j/87233976346?pwd=alhaVHBTVW52M0o2ZVpHaDJGRWh6UT09 Meeting ID: 872 3397 6346 Passcode: XfD77w   For more information contact Dawn Lentz at Email: silvercat2800@hotmail.com

EASTERN TIME Topic: Ataxia Stories Speaker: Howard Silverman (NAF SE Nevada Support Group co-leader) and Lisa Cole (NAF Treasure Coast Support Group leader) Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09   For more information, contact Susan Stiles at sstiles12@gmail.com

Do you or a loved one have SCA2? Join our webinar to learn about the mechanisms of the disease, the diagnostic journey, and what to expect for clinical care with this diagnosis. Register Here!

EASTERN TIME Zoom link: https://jhjhm.zoom.us/j/98422128138 For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu

Dr. Susan Perlman of UCLA Medical Center in Los Angeles joins NAF to offer a Q&A session for the Ataxia community. This is an informal discussion-style webinar without a set topic. You will have the opportunity to ask any questions you have related to Ataxia. Please do not submit questions in advance. Post your questions

EASTERN TIME Presented by: Emily Mahoney, MMT, LGPC, LPMT, MT-BC Register to attend here For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu

CENTRAL TIME Join Zoom Meeting https://us02web.zoom.us/j/82743190713?pwd=M1ZndWFaS3FlYmgxU2Q3NzB5d2cydz09 Meeting ID: 827 4319 0713 Passcode: 051016 For more information or to be added to the group’s mailing list please contact Richard Jones at (715) 639-2324 or jones1957@hotmail.com. We look forward to seeing you!

EASTERN TIME Join Zoom Meeting https://us02web.zoom.us/j/88103588444?pwd=ZU14QVhVYU53QnQ1UFZsZnQ3ellQUT09 Meeting ID: 881 0358 8444 Passcode: 636176   For more information or to join this group’s mailing list contact Karen Russell at Phone #: 804-543-8707 | Email: klrataxia@gmail.com  

EASTERN TIME For meeting access information, please contact Kathleen Gingerelli at kgingerelli@msn.com | 201-681-7639

Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.

Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.

Google Meets Link: https://meet.google.com/wms-koqx-evb Contact Instructor Christina Newell at christinanwwasg@gmail.com with questions.

CENTRAL TIME Location: Harmony Gardens in Maplewood.  https://www.harmonygardenssenior.org/ For access information join our Facebook Group https://www.facebook.com/groups/103233603504142/ For other questions contact Lenore Healey Schultz at Phone #: 612-724-3784 | E-mail: schultz.lenore@yahoo.com

We welcome anyone to these meetings, regardless of location.   Zoom information: https://us02web.zoom.us/j/87999250029?pwd=ZloxZkFGL0RDcTk2VUxjS3V2R2hqUT09 Meeting ID: 879 9925 0029 Passcode: Ataxia   For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343

EASTERN TIME Our presenter will be Peg Kanzleiter.  She will speak about adaptive recreation and other resources that benefit those with disabilities. We will also be having our annual Central PA Ataxia Support Group picnic at Mike and Karen Leader's farm following the meeting - please bring a dessert! RSVP by Wednesday, July 12. For

CENTRAL TIME Celebrating New Adventures for Linda and Skippy Soaring Wings Vineyard,17111 S. 138th St. Springfield, NE 68059 Linda and Skippy, Nebraska Ataxia co-founders, are moving to South Carolina to their forever home.  They will still be involved with the Nebraska Ataxia Support Group and the organization, however, they will join us remotely for meetings

EASTERN TIME   For meeting access information, contact the support group leaders or join our Facebook Group: https://www.facebook.com/groups/501238100417901/ For more information about our group contact Letitia Diggs at Letitia.diggs@iCloud.com | 202-386-8289 or Veronica Denis at aaataxia@gmail.com

Members, Please save the date: Saturday, July 15th! (exact time and location TBD) We will have a social meet-up at a park in the east bay area.  We would love to see you in person.  More details will follow in the next couple weeks! For more information, contact Shirley Hanks at shirley@hanks.com

CENTRAL TIME For information and virtual access, contact Greg Forster at ForGreg77@protonmail.com

PACIFIC TIME Link: https://us06web.zoom.us/j/4170430276?pwd=bHgxaWNhQ3JIVStBRVp3cmRneDdOUT09&fbclid=IwAR1ff9dQCl6nYFTcuCrNNcWdBKR1n3gu5uiLjmtfeiTijd25AplHZLFBk1w#success For questions or meeting information, contact the support group leaders: Kristy Taylor - kristyanderson1234@gmail.com Daniel Gavern - dkgavern@gmail.com

EASTERN TIME Meeting Location: Reading Branch Library conference room, 8740 Reading rd., Cincinnati, Ohio.   For more information or to be added to the mailing list for this group please contact: William Vetter at (513) 310-7530 or wjuniorvet@gmail.com Join our Facebook Group: https://www.facebook.com/CincinnatiAtaxiaSupportGroup/

EASTERN TIME Topic: Stretching Exercises Speaker: Cole Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09   For more information, contact Susan Stiles at sstiles12@gmail.com

Meeting location:  Carmel Mountain Ranch Library, 12095 World Trade Drive, San Diego, CA 92128 For meeting information or questions, reach out to Group Leader: Pamela Kahn at familykahn@cox.net (or call 760-855-0487)

EASTERN TIME Presented by: Emily Mahoney, MMT, LGPC, LPMT, MT-BC Register to attend here For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu

We meet at 7pm Eastern every third Wednesday of the month. For meeting access information Join our Facebook Group: www.facebook.com/groups/1468963499991380/ For more information contact Susan Harding at susangmharding@gmail.com

EASTERN TIME This group is for spouses and partners without Ataxia who have a spouse or partner with Ataxia. This is our spot to learn from one another, vent, have fun, and discuss topics important to us! For meeting access information join our Facebook Group https://www.facebook.com/groups/AtaxiaSpousesAndPartners/. For additional information about the group contact Dana Mauro

We meet on the third Friday of the month at 11:30am Eastern Time. Guest Speaker: Rachel Glendenning, Speech-Language Pathologist. She will be talking about strategies for speech, swallowing, and cognition. For meeting access information contact Susan Masse at: 860-528-1875 or  Smasse1875@gmail.com

Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.

Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.

EASTERN TIME Topic: Catrike Pedals with a Purpose Speaker: Ellie Martin (via YouTube video) Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09   For more information, contact Susan Stiles at sstiles12@gmail.com

EASTERN TIME Zoom link: https://us06web.zoom.us/j/85747241562?pwd=M0JJV2tHM1g3cGs3TjJ3YlpnRWJMQT09   For more information, email Brenda Cavanaugh at bkjgcavanaugh@gmail.com Don't forget to join our facebook group! https://www.facebook.com/groups/900105314524248

Do you or a loved one have a SCA2? Our expert will teach us how SCA2 is studied and give an overview of the current state of research and drug development for the disease. Register Here!

EASTERN TIME Presented by: Emily Mahoney, MMT, LGPC, LPMT, MT-BC Register to attend here For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu

We hope to see you there! For access information contact: Jodie Kawa at Phone #: 828-384-8414 or Email: jodiekawa@comporium.net\ Maggie Dentremont at Phone #: 828-777-7411 Email: magdalenedentremont@gmail.com Join our Facebook Group: https://www.facebook.com/groups/919905244740316/

Join us for our virtual meeting at 2pm Central Time! For the Zoom meeting access information contact Julia Pantoga at Phone #: 414-899-5195 | E-mail: sharpturninstitute@gmail.com

Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.

Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.

EASTERN TIME Location: Old Worthington Library 820 High St., Worthington   Zoom link to follow   For more information, contact Sue Moore: susanlmoore1@gmail.com 614-395-9933

EASTERN TIME Topic: Introduction and background (Living with Ataxia story) Speaker: Douglas "Art" Thomas (via YouTube video) Zoom link: https://us02web.zoom.us/j/86331773905?pwd=bnZtOVF2ZVNVS1pJNG1xZ1E0a3Vidz09   For more information, contact Susan Stiles at sstiles12@gmail.com

EASTERN TIME Presented by: Emily Mahoney, MMT, LGPC, LPMT, MT-BC Register to attend here For more information, contact Melissa Egerton, JHU Health Educator at megerto2@jhmi.edu

EASTERN TIME Topic: Financial and Legal Considerations for Individuals with Disabilities and Their Families   It is critical to understand the various financial and legal considerations for individuals with disabilities. Having a better understanding will help you to be better prepared now, and in the future. This workshop will discuss important government benefits (Social Security Retirement,

Meetings are at 3PM Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.

Meetings are at 6PM EST Click here to register For more information contact Courtney Ng at courtney@hopeforataxia.org.

MOUNTAIN TIME Join Zoom Meeting https://us02web.zoom.us/j/86106135905?pwd=SUtUQlFoa1o4QU8xMWJIT1MzQ0Y3dz09 Meeting ID: 861 0613 5905 Passcode: 278134   For information and meeting access, contact: Mary Fuchs at Phone #: 480-212-6425 | maryrio101@gmail.com Join Our Facebook Group!

EASTERN TIME Saturday, August 5, 2023, 1:30pm to 3:30pm Eastern Time The location is the Hiawassee Branch Library Meeting Room. Located at 7391 W. Colonial Drive. Orlando, FL 32818. Zoom Link: https://us02web.zoom.us/j/86492397155?pwd=clpKVjBUY0VlRm9wcFV4cUpRN3NOdz09 Meeting ID: 864 9239 7155 Passcode: 829517   Please R.S.V.P., space is limited.   R.S.V.P. to lisacoleataxia@gmail.com or msdee004@yahoo.com

PACIFIC TIME Guest Speaker: Charlotte DePew Link to join: https://bit.ly/3sYlilo   For access information contact Howard Silverman at Phone #: 702-290-6724 | Email: Silverman3@cox.net or Kristy Anderson at Email: lasvegasataxia@gmail.com or Don Fey at Email: feydw@aol.com Join our Facebook Group: https://www.facebook.com/groups/2090650814550409/?hc_location=group