Calendar of Events
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2 events,
Ataxia Resources and Discussion Group Meeting
Ataxia Resources and Discussion Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: “Crap that’s happened to
Boston Support Group Evening Chat
Boston Support Group Evening Chat
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We welcome anyone to these
1 event,
55+ with Ataxia Support Group (Just Us Ataxians) Meeting
55+ with Ataxia Support Group (Just Us Ataxians) Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Though we are grateful for
2 events,
All About SCA14
All About SCA14
CENTRAL TIME ZONE During this webinar, two experts will join us to take a look at the causes and symptoms of Spinocerebellar Ataxia Type 14 (SCA14), the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into the disease. Register: Click here. Speaker Information Dong-Hui Chen, MD,
Johns Hopkins University Music Therapy Session
Johns Hopkins University Music Therapy Session
EASTERN TIME ZONE This group is based around music listening: sharing songs, listening together, and reflecting on the music and lyrics. Meeting Information Spring Music Therapy sessions run every Wednesday at 1pm for 8 weeks beginning on April 3. Only those that register in advance will be sent the link to join. Link to
0 events,
3 events,
North Carolina Triangle Support Group Meeting
North Carolina Triangle Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us06web.zoom.us/j/86398858395?pwd=BXXyTNclg1IubQMC9Jfe2aYd5KuBpL.1 Meeting ID:
Global Support Group (Hope For Ataxia) Meeting – 1st Session
Global Support Group (Hope For Ataxia) Meeting – 1st Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86206829129?pwd=aEIrZ1laWVplbDdIYXJtQW11S2cwZz09 Meeting ID:
Global Support Group (Hope For Ataxia) Meeting – 2nd Session
Global Support Group (Hope For Ataxia) Meeting – 2nd Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86206829129?pwd=aEIrZ1laWVplbDdIYXJtQW11S2cwZz09 Meeting ID:
0 events,
0 events,
1 event,
Ataxia Resources and Discussion Group Meeting
Ataxia Resources and Discussion Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: 4th year anniversary party
1 event,
Johns Hopkins University Support Group Meeting
Johns Hopkins University Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://jhjhm.zoom.us/j/93492624629 Contact
2 events,
Ask the Ataxia Expert
Ask the Ataxia Expert
CENTRAL TIME Dr. Susan Perlman of UCLA Medical Center in Los Angeles joins NAF to offer a Q&A session for the Ataxia community. This is an informal discussion-style webinar without a set topic. You will have the opportunity to ask any questions you have related to Ataxia. Register Now: https://us02web.zoom.us/webinar/register/WN_H6YG5LgfQEyZc4zgz_4Dzw Please do not submit questions
Johns Hopkins University Music Therapy Session
Johns Hopkins University Music Therapy Session
EASTERN TIME ZONE This group is based around music listening: sharing songs, listening together, and reflecting on the music and lyrics. Meeting Information Spring Music Therapy sessions run every Wednesday at 1pm for 8 weeks beginning on April 3. Only those that register in advance will be sent the link to join. Link to
0 events,
2 events,
Global Support Group (Hope For Ataxia) Meeting – 1st Session
Global Support Group (Hope For Ataxia) Meeting – 1st Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86206829129?pwd=aEIrZ1laWVplbDdIYXJtQW11S2cwZz09 Meeting ID:
Global Support Group (Hope For Ataxia) Meeting – 2nd Session
Global Support Group (Hope For Ataxia) Meeting – 2nd Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86206829129?pwd=aEIrZ1laWVplbDdIYXJtQW11S2cwZz09 Meeting ID:
3 events,
St. Louis Support Group Meeting
St. Louis Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet at 10:30AM-12:30PM on
Treasure Coast Support Group Meeting
Treasure Coast Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Register in advance for this
Central Ohio Support Group Meeting
Central Ohio Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information April speaker (re-scheduled from February):
2 events,
Southeastern Nevada Support Group Meeting
Southeastern Nevada Support Group Meeting
PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Guest speaker: Austin Johnson, from
Cincinnati Support Group Meeting
Cincinnati Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/81955190420?pwd=dGpGM1FkaXNpSzNXTG4weHA3SXVNUT09 Contact
2 events,
PrepRARE: CRC-SCA Natural History Study Information Panel
PrepRARE: CRC-SCA Natural History Study Information Panel
CENTRAL TIME ZONE Have you ever wondered what it is like to participate in an Ataxia natural history study? This type of research study collects data about how specific types of Ataxia progress over time. Come learn about the CRC-SCA Natural History Study! This panel will feature current study participants and clinical research coordinators. They
Ataxia Resources and Discussion Group Meeting
Ataxia Resources and Discussion Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Recipes and cooking utensils
0 events,
3 events,
Johns Hopkins University Music Therapy Session
Johns Hopkins University Music Therapy Session
EASTERN TIME ZONE This group is based around music listening: sharing songs, listening together, and reflecting on the music and lyrics. Meeting Information Spring Music Therapy sessions run every Wednesday at 1pm for 8 weeks beginning on April 3. Only those that register in advance will be sent the link to join. Link to
Western New York Support Group Meeting
Western New York Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the third
Canada Support Group Meeting
Canada Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet at 7pm every
1 event,
Richmond Support Group Meeting
Richmond Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are held on the third
2 events,
Global Support Group (Hope For Ataxia) Meeting – 1st Session
Global Support Group (Hope For Ataxia) Meeting – 1st Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
Global Support Group (Hope For Ataxia) Meeting – 2nd Session
Global Support Group (Hope For Ataxia) Meeting – 2nd Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
5 events,
Twin Cities Support Group Meeting
Twin Cities Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Location: Harmony Gardens in Maplewood https://www.harmonygardenssenior.org/
Central Pennsylvania Support Group Meeting
Central Pennsylvania Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Location: Penn State Hershey Medical Center's
Ataxia Connection (Nebraska Support Group) Meeting
Ataxia Connection (Nebraska Support Group) Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are from 11am-1pm; lunch
Northern California Support Group Meeting
Northern California Support Group Meeting
PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Guest Speaker: Dr. Alexandra Nelson,
African Americans with Ataxia Support Group Meeting
African Americans with Ataxia Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information For meeting access information, contact
2 events,
Northwestern Washington Yetis Support Group Meeting
Northwestern Washington Yetis Support Group Meeting
PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Google Meets Link: https://meet.google.com/wms-koqx-evb
Cincinnati Support Group Meeting
Cincinnati Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Location: Reading Branch Library Conference Room
1 event,
Ataxia Resources and Discussion Group Meeting
Ataxia Resources and Discussion Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Cognitive Issues Speaker: Dr.
0 events,
2 events,
NAF Science Showcase: Dr. Hannah Shorrock
NAF Science Showcase: Dr. Hannah Shorrock
CENTRAL TIME ZONE Explore a past NAF research grant awardee's funded study, gaining scientific insights about their Ataxia research. Dr. Hannah Shorrock will present the research, "A CAG expansion selective small molecule screen for multiple spinocerebellar ataxias." Register for Webinar: Click here. Research Lay Summary: The spinocerebellar ataxias (SCAs) are a group of dominantly inherited neurodegenerative
Johns Hopkins University Music Therapy Session
Johns Hopkins University Music Therapy Session
EASTERN TIME ZONE This group is based around music listening: sharing songs, listening together, and reflecting on the music and lyrics. Meeting Information Spring Music Therapy sessions run every Wednesday at 1pm for 8 weeks beginning on April 3. Only those that register in advance will be sent the link to join. Link to
0 events,
4 events,
Western North Carolina Support Group Meeting
Western North Carolina Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We welcome Austin Johnson from
Chicago Support Group Meeting
Chicago Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information This is a support-only meeting.
Global Support Group (Hope For Ataxia) Meeting – 1st Session
Global Support Group (Hope For Ataxia) Meeting – 1st Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
Global Support Group (Hope For Ataxia) Meeting – 2nd Session
Global Support Group (Hope For Ataxia) Meeting – 2nd Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
3 events,
Greater Jax Area Support Group Meeting
Greater Jax Area Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meeting Location: Discovery Village at
Central Ohio Support Group Event
Central Ohio Support Group Event
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information I look forward to seeing
Fairies and Shadows – A Performing Arts Party
Fairies and Shadows – A Performing Arts Party
EASTERN TIME ZONE Immerse yourself in the captivating fusion of light and darkness at "Fairies and Shadows - A Performing Arts Party"! This event promises an evening of mesmerizing performances, from the graceful movements of fire dancers to the whimsical allure of bubbles, all set amidst a backdrop of costumes and mysterious shadows. Beyond the
2 events,
Denver Walk N’ Roll
Denver Walk N’ Roll
MOUNTAIN STANDARD TIME ZONE The Denver Walk N' Roll will bring together families, friends, co-workers, neighbors, and the community to support NAF’s mission to accelerate the development of treatments and improve the lives of people living with Ataxia. Join us for a fun event! Start a Team or Donate: Click here. Event Information Join us for
Louisiana Support Group Meeting
Louisiana Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Join us in person or
1 event,
Ataxia Resources and Discussion Group Meeting
Ataxia Resources and Discussion Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Sleep difficulties Speaker: n/a
2 events,
Lower Michigan Support Group Meeting
Lower Michigan Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the fourth
All About Ataxia Caused by Stroke
All About Ataxia Caused by Stroke
CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at ataxia caused by stroke, including the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research. Register: Click here. Speaker Information Jeremy Schmahmann, MD, FAAN, FANA, FANPA; Senior Clinical Neurologist Massachusetts General
2 events,
Chair Yoga for Ataxia
Chair Yoga for Ataxia
CENTRAL TIME ZONE For people affected by Ataxia it can be hard to stay mobile when challenged with balance and other neurological issues. This is why Sacred Mountain Yoga is
Johns Hopkins University Music Therapy Session
Johns Hopkins University Music Therapy Session
EASTERN TIME ZONE This group is based around music listening: sharing songs, listening together, and reflecting on the music and lyrics. Meeting Information Spring Music Therapy sessions run every Wednesday at 1pm for 8 weeks beginning on April 3. Only those that register in advance will be sent the link to join. Link to
1 event,
All About SYNE1 Ataxia
All About SYNE1 Ataxia
CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of SYNE1 Ataxia, the typical diagnostic journey for those affected,
3 events,
North Carolina Triangle Support Group Meeting
North Carolina Triangle Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us06web.zoom.us/j/86398858395?pwd=BXXyTNclg1IubQMC9Jfe2aYd5KuBpL.1 Meeting ID:
Global Support Group (Hope For Ataxia) Meeting – 1st Session
Global Support Group (Hope For Ataxia) Meeting – 1st Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
Global Support Group (Hope For Ataxia) Meeting – 2nd Session
Global Support Group (Hope For Ataxia) Meeting – 2nd Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
1 event,
Stand-Up to Ataxia
Stand-Up to Ataxia
EASTERN TIME ZONE Join us for a night where humor meets heart, all in support of NAF! Get ready to crack up and contribute to improving the lives of people with Ataxia at our exclusive "Comedy for a Cause" evening. This isn't just any comedy night; it's your chance to laugh, cheer, and bid for
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