Welcome to the National Ataxia Foundation

 

2015 NAF Annual Membership Meeting

“Soaring Mile High for a Cure”

March 6-8, 2015

The National Ataxia Foundation (NAF) Board of Directors and our host, the North Central Region would like to thank all those that were able to attend the 58th Annual Membership Meeting (AMM) in Denver, CO and tune into the Live Webinar of the meeting on Sunday, March 8. The slides from the General Session talks are available at http://www.ataxia.org/events/2015-amm-presentations.aspx. Pictures from the 2015 AMM can be viewed here...

 

New: Ataxia Research Studies
Awarded Funding for FY 2015

The National Ataxia Foundation (NAF) is pleased to announce that 23 promising ataxia research studies from the United States, Belgium, Mexico, United Kingdom, Portugal, and Germany were awarded funding at the December 2014 NAF Board of Directors meeting for fiscal year 2015. With the funding of these 23 research studies and the previous research studies funded earlier in 2014, nearly one million dollars was committed for ataxia research.

The funding for these important ataxia research projects have been made possible through the generosity of NAF donors and partners. NAF is truly grateful to all who contributed to the 2014 NAF Annual Ataxia Research Drive, the $200,000 matching research grant from an anonymous donor, our corporate and foundation friends, the Michael and Patricia Clementz Family Endowment Fund for SCA 3 Research, NAF chapters and support groups, individual and group donations, individuals and families who conducted fund raising events, NAF Walk n’ Rolls for Ataxia events, the Bob Allison Ataxia Research Center (BAARC) and our anonymous donor.

The National Ataxia Foundation gratefully acknowledges all who supported these important ataxia research studies. It is through your generosity that enables NAF to continue to fund world-wide cutting-edge ataxia research studies that helps bring us closer to ending ataxia. Thank you!

Click here for the titles and lay summaries of these important ataxia studies


 

2015 NAF Award Recipients

At the 2015 Annual Membership Meeting (AMM) the National Ataxia Foundation recognized the numerous fundraising events that were conducted in 2014. “I Am The Strength Behind Ataxia” awards were presented to Dr. Brent Fogel, The DeMint Family, and Chadapangu Chandu Prasad George. Dr. Susan Perlman received an Outstanding Achievement award for her exceptional care to ataxia patients over the last 35 years and Dr. Lawrence Schut received a Lifetime Achievement award for his exceptional care to ataxia patients for more than 50 years.

     

  


 

STORIES OF CHILDREN WITH ATAXIA NEEDED

The National Ataxia Foundation published a booklet of stories for a 2011 medical conference that provided "Faces of Childhood Ataxia" to doctors and researchers. The booklet became very popular for other venues and audiences and was reprinted once. Now we would like to update the booklet and add new stories of children with ataxia.

To do this, we need the help of those who have a young child or children with ataxia. The stories of the challenges that you and your child struggle with daily will provide the personal stories of children with ataxia. We will also include stories in memory of children who have lost their battle with ataxia. For more information, please contact Sue Hagen at susan@ataxia.org