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Bill Nye the Science Guy is speaking at the 2024 Annual Ataxia Conference! Register now.  LEARN MORE!

Jency W

I got diagnosed at 40 after always walking awkward and 2 years of being unsteady. Now I’m going to start physical therapy and apply for SSDI. It’s sad for me, I have 2 little ones but I know God will see me through.

When Were You Diagnosed? Which Type (If Known)?

Autosomal Recessive Spastic Ataxia

How Has Ataxia Impacted Your Life?

I’m slowly moving and fell a lot before the cane.

What is One Thing You’d Like the People to Know About Ataxia?

We try our best.

Share Your Advice – How Can Others Support Someone with Ataxia?

Let them cry and tell them they are doing great. Encourage them to keep going.

What is Your Ataxia Story?

As an organization dedicated to improving the lives of those affected by Ataxia, we believe that each story has the power to inspire, connect, and empower others. We invite you to share your personal Ataxia journey with us.

Are you here to read the personal stories, but haven’t yet joined as a member? We hope you find comfort in reading about the experiences of others on their Ataxia journey. We invite you to join as a member to receive a new member story each month. It’s free, and you’ll be kept up-to-date on the latest developments in the Ataxia community. 

Recent Member Stories

Parna Mukherjee

I was born in a family with SCA2 back in India. My father had the symptoms of Ataxia as well as all his five siblings. Read More…

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Jency W

I got diagnosed at 40 after always walking awkward and 2 years of being unsteady. Now I’m going to start physical therapy and apply for Read More…

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The Ruehl Family

When Charlie Ruehl was in high school, his mom Susan recalls he would always miss the same step at the bottom of their staircase. She Read More…

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Carol Paige

My unwanted guest arrived when I was conceived. He rode in on my DNA and set up residence in the part of my brain called Read More…

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Tom Lawson

My name is Tom Lawson and I am 46 years old, married with three children and a dog. I was diagnosed with Cerebellar Ataxia six Read More…

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Bob Budack

My Ataxia Story My name is Robert (Bob) Budack and this all began with me when I was about 15 years old (in about 1967).  Read More…

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