I got diagnosed at 40 after always walking awkward and 2 years of being unsteady. Now I’m going to start physical therapy and apply for SSDI. It’s sad for me, I have 2 little ones but I know God will see me through.
When Were You Diagnosed? Which Type (If Known)?
Autosomal Recessive Spastic Ataxia
How Has Ataxia Impacted Your Life?
I’m slowly moving and fell a lot before the cane.
What is One Thing You’d Like the People to Know About Ataxia?
We try our best.
Share Your Advice – How Can Others Support Someone with Ataxia?
Let them cry and tell them they are doing great. Encourage them to keep going.
What is Your Ataxia Story?
As an organization dedicated to improving the lives of those affected by Ataxia, we believe that each story has the power to inspire, connect, and empower others. We invite you to share your personal Ataxia journey with us.
Are you here to read the personal stories, but haven’t yet joined as a member? We hope you find comfort in reading about the experiences of others on their Ataxia journey. We invite you to join as a member to receive a new member story each month. It’s free, and you’ll be kept up-to-date on the latest developments in the Ataxia community.
Recent Member Stories
Eric Petit
I was diagnosed ataxia in October 2021 at 60 years old The ataxia I am impacted is SCA2 This ataxia is well known in my Read More…
Brian G
Back in October of 2024 I was managing a hotel restaurant and came down 2 steps and just kept going without the ability to stop. Read More…
Cynthia Thibodeaux
I spent 10 yrs with a Dr who thought I had MS. After a visit to Mayo clinic in MN, I was told no MS, Read More…
Marina Parker
Oh boy, where do I start? At the beginning I guess…following neck surgery I developed a 4cm abscess on my left prefrontal cortex. I had Read More…
Freyglee Borges
I am from Venezuela, South America, I am 24 years old and living a “normal life” studying at university. My Ataxia is quite rare. I Read More…
Cameron Dingerson
My name is Cameron Dingerson, and I have a rare form of spinocerebellar ataxia: SCA11. The impetus for me sharing my story is the upcoming Read More…
