NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
EASTERN TIME
Though we are grateful for the support of Parents/Spouses/Friends of people with Ataxia, this group is just for those WITH ataxia.
Join Zoom Meeting
https://us02web.zoom.us/j/88594464256?pwd=Wi9pVWVGeGNtb2ErQmxBckpHdlY1dz09
Meeting ID: 885 9446 4256
Passcode: Ataxia
For more information or meeting access, contact Donna Gorzela at donna.gorzela@gmail.com
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