NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
EASTERN TIME
Our presenter will be Peg Kanzleiter. She will speak about adaptive recreation and other resources that benefit those with disabilities. We will also be having our annual Central PA Ataxia Support Group picnic at Mike and Karen Leader’s farm following the meeting – please bring a dessert!
RSVP by Wednesday, July 12.
For more information contact Michael Cammer at Phone #: 610-996-5814 | Email: michael.cammer62@hotmail.com
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