NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
CENTRAL TIME
Navigating the Legal Concerns
Discuss what you need to know about power of attorney, living will, Disability, Social Security Insurance and other legal issues
Speaker – Emily Tosoni, Baird Holm
NEW Location- University of Nebraska at Omaha’s Community Engagement Center (UNO CEC)
6400 South University Drive Road North, Omaha, NE 68182 Room #201
Plan a little extra time to find the space, park and take the elevators to the second floor.
Lunch provided
Join virtually via Zoom if you cannot attend in person, email info@nebraskaataxia.org for the Zoom link
For meeting information and virtual access, visit our website: https://nebraskaataxia.org/events/
For more information contact: Theresa Nelson, 402-979-6331, theresa.nelson@nebraskaataxia.org
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
