NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA). SIGN THE PETITION
IN-PERSON MEETING - EASTERN TIME The Johns Hopkins Ataxia Center is hosting an in-person care partner retreat. The day will consist of presentations, boxed lunch and worksheet activity to cope with stress Click HERE to view program schedule Event: Care partner retreat (Care partners only) Date: November 11 Time: 11:00 am-3:00 pm Location: The Meeting House 5885
HYBRID MEETING - EASTERN TIME Location: EMORY BRAIN HEALTH CENTER - First Floor Training Room 12 Executive Park Drive Atlanta, GA 30329 Zoom info to come Please use this link if you would like to sign up for the group's mailing list: https://mailchi.mp/5325ed76faee/atlanta-ataxia For more information or zoom access contact Greg Rooks at 404-822-7451 |rooksgj@yahoo.com
EASTERN TIME An in person Friendsgiving/ potluck, will be put on by the Richmond, Virginia Ataxia Support Group. It will be held on Sunday, November 12th, 1-4:00 p.m. (EST). Contact Karen Russell (804) 543-8707, klrataxia@gmail.com for further information.
Meeting location: Carmel Mountain Ranch Library, 12095 World Trade Drive, San Diego, CA 92128 For meeting information or questions, reach out to Group Leader: Pamela Kahn at familykahn@cox.net (or call 760-855-0487)
CENTRAL TIME Location: Harmony Gardens in Maplewood. https://www.harmonygardenssenior.org/ For access information join our Facebook Group https://www.facebook.com/groups/103233603504142/ For other questions contact Lenore Healey Schultz at Phone #: 612-724-3784 | E-mail: schultz.lenore@yahoo.com
CENTRAL TIME Hockey Pucks and Sticks Omaha Lancer Hockey - Liberty First Credit Union Arena in Ralston, NE - 7300 Q St, Ralston, NE 68127 RSVP required by Monday, Nov 13, 2023 RSVP email – info@nebraskaataxia.org or phone number 402-979-6331 For information, visit our website: https://nebraskaataxia.org/events/ For more information contact: Theresa Nelson, 402-979-6331,
Join us for an evening of fun and laughter, all while making a positive impact on the community. This event, featuring several comedians including legendary comic Rich Williams, starts with a pre-show reception at 6:00 p.m. including free appetizers, a cash bar, and silent auction items. The show starts at 7:30 pm! Location Hilton Garden
EASTERN TIME Meeting Location: Reading Branch Library conference room, 8740 Reading rd., Cincinnati, Ohio. For more information or to be added to the mailing list for this group please contact: William Vetter at (513) 310-7530 or wjuniorvet@gmail.com Join our Facebook Group: https://www.facebook.com/CincinnatiAtaxiaSupportGroup/