Calendar of Events
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1 event,
Ataxia Resources and Discussion Group Meeting
Ataxia Resources and Discussion Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Sleep difficulties Speaker: n/a
2 events,
Lower Michigan Support Group Meeting
Lower Michigan Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the fourth
All About Ataxia Caused by Stroke
All About Ataxia Caused by Stroke
CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at ataxia caused by stroke, including the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research. Register: Click here. Speaker Information Jeremy Schmahmann, MD, FAAN, FANA, FANPA; Senior Clinical Neurologist Massachusetts General
2 events,
Chair Yoga for Ataxia
Chair Yoga for Ataxia
CENTRAL TIME ZONE For people affected by Ataxia it can be hard to stay mobile when challenged with balance and other neurological issues. This is why Sacred Mountain Yoga is offering this special Chair Yoga and Mobility online series for the global Ataxia community. This session is accessible for people in chairs and wheelchairs -
Johns Hopkins University Music Therapy Session
Johns Hopkins University Music Therapy Session
EASTERN TIME ZONE This group is based around music listening: sharing songs, listening together, and reflecting on the music and lyrics. Meeting Information Spring Music Therapy sessions run every Wednesday at 1pm for 8 weeks beginning on April 3. Only those that register in advance will be sent the link to join. Link to
1 event,
All About SYNE1 Ataxia
All About SYNE1 Ataxia
CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of SYNE1 Ataxia, the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into the disease. SYNE1 Ataxia can be referred to as any one of
3 events,
North Carolina Triangle Support Group Meeting
North Carolina Triangle Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Please reach out to the
Global Support Group (Hope For Ataxia) Meeting – 1st Session
Global Support Group (Hope For Ataxia) Meeting – 1st Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
Global Support Group (Hope For Ataxia) Meeting – 2nd Session
Global Support Group (Hope For Ataxia) Meeting – 2nd Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
1 event,
Stand-Up to Ataxia
Stand-Up to Ataxia
EASTERN TIME ZONE Join us for a night where humor meets heart, all in support of NAF! Get ready to crack up and contribute to improving the lives of people with Ataxia at our exclusive "Comedy for a Cause" evening. This isn't just any comedy night; it's your chance to laugh, cheer, and bid for
0 events,
3 events,
Alabama Support Group Meeting
Alabama Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information: Dr. Marissa Dean – Associate
Ataxia Resources and Discussion Group Meeting
Ataxia Resources and Discussion Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Birthday celebrations Speaker: n/a
Boston Support Group Evening Chat
Boston Support Group Evening Chat
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We welcome anyone to these
1 event,
55+ with Ataxia Support Group (Just Us Ataxians) Meeting
55+ with Ataxia Support Group (Just Us Ataxians) Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Though we are grateful for
1 event,
Johns Hopkins University Music Therapy Session
Johns Hopkins University Music Therapy Session
EASTERN TIME ZONE This group is based around music listening: sharing songs, listening together, and reflecting on the music and lyrics. Meeting Information Spring Music Therapy sessions run every Wednesday at 1pm for 8 weeks beginning on April 3. Only those that register in advance will be sent the link to join. Link to
0 events,
2 events,
Global Support Group (Hope For Ataxia) Meeting – 1st Session
Global Support Group (Hope For Ataxia) Meeting – 1st Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
Global Support Group (Hope For Ataxia) Meeting – 2nd Session
Global Support Group (Hope For Ataxia) Meeting – 2nd Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
5 events,
St. Louis Support Group Meeting
St. Louis Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet at 10:30AM-12:30PM on
North Texas Support Group Meeting
North Texas Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meeting will be in the
Treasure Coast Support Group Meeting
Treasure Coast Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Register in advance for this
Kansas City Support Group Meeting
Kansas City Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the second
Central Ohio Support Group Meeting
Central Ohio Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meeting Location: Worthington Library Zoom
1 event,
Cincinnati Support Group Meeting
Cincinnati Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/81955190420?pwd=dGpGM1FkaXNpSzNXTG4weHA3SXVNUT09 Contact
1 event,
Ataxia Resources and Discussion Group Meeting
Ataxia Resources and Discussion Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: n/a Speaker: n/a Zoom
0 events,
3 events,
Johns Hopkins University Music Therapy Session
Johns Hopkins University Music Therapy Session
EASTERN TIME ZONE This group is based around music listening: sharing songs, listening together, and reflecting on the music and lyrics. Meeting Information Spring Music Therapy sessions run every Wednesday at 1pm for 8 weeks beginning on April 3. Only those that register in advance will be sent the link to join. Link to
Western New York Support Group Meeting
Western New York Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the third
Canada Support Group Meeting
Canada Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet at 7pm every
2 events,
Richmond Support Group Meeting
Richmond Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are held on the third
The Dakotas Support Group Meeting
The Dakotas Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We welcome those anywhere from
3 events,
NAF Science Showcase: Jacques P. Tremblay, PhD
NAF Science Showcase: Jacques P. Tremblay, PhD
CENTRAL TIME ZONE Explore a past NAF research grant awardee's funded study, gaining scientific insights about their Ataxia research. Dr. Jacques P. Tremblay, will present the research, "Development of a Gene Therapy Approach for Friedreich's Ataxia by Deletion of GAA Expansion in the Frataxin Gene." Register: Click here. Research Lay Summary: Friedreich ataxia is due to
Global Support Group (Hope For Ataxia) Meeting – 1st Session
Global Support Group (Hope For Ataxia) Meeting – 1st Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
Global Support Group (Hope For Ataxia) Meeting – 2nd Session
Global Support Group (Hope For Ataxia) Meeting – 2nd Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
6 events,
Twin Cities Support Group Meeting
Twin Cities Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
Northwestern Washington Yetis Support Group Meeting
Northwestern Washington Yetis Support Group Meeting
PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
African Americans with Ataxia Support Group Meeting
African Americans with Ataxia Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
Wisconsin Ataxia Warriors Support Group Meeting
Wisconsin Ataxia Warriors Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
Boston Support Group Meeting
Boston Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
Tampa Bay Support Group Meeting
Tampa Bay Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
2 events,
Southeastern Nevada Support Group Meeting
Southeastern Nevada Support Group Meeting
PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
Cincinnati Support Group Meeting
Cincinnati Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
1 event,
Ataxia Resources and Discussion Group Meeting
Ataxia Resources and Discussion Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
1 event,
Johns Hopkins University Support Group Meeting
Johns Hopkins University Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
1 event,
Johns Hopkins University Music Therapy Session
Johns Hopkins University Music Therapy Session
EASTERN TIME ZONE This group is based around music listening: sharing songs, listening together, and reflecting on the music and lyrics. Meeting Information Spring Music Therapy sessions run every Wednesday at 1pm for 8 weeks beginning on April 3. Only those that register in advance will be sent the link to join. Link to
2 events,
Colorado Support Group Meeting
Colorado Support Group Meeting
MOUNTAIN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Social Security Administration and
Spouses and Partners of Loved Ones with Ataxia Support Group Meeting
Spouses and Partners of Loved Ones with Ataxia Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information This group is for spouses
3 events,
Chicago Support Group Meeting
Chicago Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information This is a support-only meeting.
Global Support Group (Hope For Ataxia) Meeting – 1st Session
Global Support Group (Hope For Ataxia) Meeting – 1st Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
Global Support Group (Hope For Ataxia) Meeting – 2nd Session
Global Support Group (Hope For Ataxia) Meeting – 2nd Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
0 events,
0 events,
1 event,
Ataxia Resources and Discussion Group Meeting
Ataxia Resources and Discussion Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Ataxia Research Speaker: Sarah
1 event,
Lower Michigan Support Group Meeting
Lower Michigan Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the fourth
0 events,
1 event,
Annual Ataxia Conference
At this annual gathering attendees meet and learn from world-leading Ataxia researchers and clinicians, network, and reunite with old friends. Hundreds of people – from patients, to caregivers, to medical professionals – travel from all over the world to attend the conference. Attendees get the opportunity to learn about Ataxia subjects such as: research, genetics,
3 events,
Global Support Group (Hope For Ataxia) Meeting – 1st Session
Global Support Group (Hope For Ataxia) Meeting – 1st Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
Global Support Group (Hope For Ataxia) Meeting – 2nd Session
Global Support Group (Hope For Ataxia) Meeting – 2nd Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
2 events,
Los Angeles Support Group Meeting
Los Angeles Support Group Meeting
PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Special meeting to view the
