Ataxia Tips

Real advice from real people living with Ataxia.

Living with Ataxia means adapting every day—and sometimes, it’s the little tips that make a big difference.

This series features real advice from real people in the Ataxia community—simple things they’ve done to make life a little easier. Follow us on social media for #AtaxiaTipTuesday – we’re we will feature a new tip each week!

Got a tip that’s helped you? Share it here!

Submit a Tip

Short and simple tips work best! 2-3 sentences is recommended. We welcome longer tips, but may need to edit for social media. We encourage you to share a photo of yourself along with your tip. If your tip involves a product or device, a photo of it is helpful (but not required).

Questions? Contact us at naf@ataxia.org.

Recent Tips

Check out some of the latest tips shared by the Ataxia community!

The most up-to-date tips are shared each week on our social media channels. Be sure to follow us to stay inspired and see new ideas as they’re posted!

Lynn

I have had increasing back pain as well as neuropathy of my feet and legs. I tried heat which worked well for both but difficult to use multiple heating pads. I purchased a soft, fuzzy electric blanket. I spread it on my bed with in the evening and lay on top. It’s been a godsend. Really helps with the pain.

Anonymous

Drink tea and coffee using a straw.

Gayle

Add a wrist weight to your writing hand. It helped steady my daughter's hand

Shawn Davis

Broom holders make great cane holders!

Kurt Maupin

For years my lower legs would constantly wake me in the middle of the night because my muscles would ALWAYS overreact and cramp. So, I decided to put a single head pillow underneath my knees at the joint. BINGO! They stopped. Being only half awake it reminds me , WARNING! DO NOT STRETCH YOUR LEGS! Works great for me.

Becky Crowe

Get a recumbent trike! It’s stable with two wheels in front and one in back. I have a Catrike and riding it has allowed me to feel freedom from the symptoms of ataxia. Such as going different speeds rather than just being limited by my slow walking. Looking at scenery and not feeling off balance. Not having to concentrate on every step but just enjoying the ride. Being able to have a conversation while riding. Can’t do that while walking because it takes so much concentration to stay balanced and not fall or trip. People comment on my “cool” bike rather than

Download a printable list of past Ataxia Tips.

Disclaimer: The views and opinions expressed in these tips are those of the individual and do not necessarily reflect the views of the National Ataxia Foundation (NAF). Any medical information shared is based on personal experience and has not been reviewed or endorsed by NAF or a medical professional. Always consult with your own physician or qualified healthcare provider before making any changes to your care or treatment plan.

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Want more tips, stories, and updates from the Ataxia community? Follow us on social media! A new Ataxia Tip is shared every Tuesday, so don’t miss out—join the conversation, share your own experiences, and help spread awareness every time you like, comment, or share.